Involving people with learning disabilities in end-of-life care planning. Working together to develop a toolkit and resources. Led by @TuffreyWijne (NIHR202963)
Joined March 2022
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The Victoria & Stuart Project retweeted
PCPLD National Conference ‘What’s new in palliative care for people with a learning disability?’. 📣Call for abstracts 📣 Come and share your story, project or research! Details below ⬇️
The Victoria & Stuart Project retweeted
Brilliant ways to support advance care planing discussions: @VictStuProject @NoBarriersHere
Check them out! Co-produced by people with learning disabilities!
The Victoria & Stuart Project retweeted
Just one day till our annual conference! Excited to see all our lovely members and learn from brilliant speakers @olivia_warnes, Dr Andrea Bruun @VictStuProject and Professor Kish Bhatti-Sinclair.
Birmingham here we come! ☺️
The Victoria & Stuart Project retweeted
Spaces available for our 2024 conference - exploring equitable access to palliative and end-of-life care.
September 27th, Birmingham.
Speakers include Olivia Warnes from @hospiceuk Dr Andrea Bruun @VictStuProject and Prof Kish Bhatti-Sinclair.
Book here: apcsw.org.uk/dates-for-the-d…
The Victoria & Stuart Project retweeted
Really enjoying Chicago! The serious work starts tomorrow @IASSIDD #iassidd2024
The Victoria & Stuart Project retweeted
Very excited to be speaking about the @VictStuProject at the @NHS_ELFT National Online Learning Disability and Autism Conference later this year 💻
Check out this year's themes and sign up here: elft.nhs.uk/news/national-on…
The Victoria & Stuart Project retweeted
What makes your day a GOOD DAY?
Important end-of-life care planning question
But why not think about today too? Have a good day everyone!
Download our new "When I'm ill" cards FREE:
victoriaandstuart.com/end-of…
The Victoria & Stuart Project retweeted
Barriers to end-of-life care planning with people with intellectual disabilities included: reluctance to consider death and dying, with a preference to focus on ‘planning for living’. #hpm #hapc buff.ly/3xN5NCV with PODCAST here: buff.ly/3VqnG3R
The Victoria & Stuart Project retweeted
Sometimes it can be hard to know where to start when talking about end of life.
The @VictStuProject looks at how to talk about it with people with disabilities, and they've launched a new toolkit to help others have these important conversations.
victoriaandstuart.com/
The Victoria & Stuart Project retweeted
What an amazing day launching the end of life planning toolkit for people with learning disabilities from the @VictStuProject
We are really proud @NoBarriersHere features in this toolkit as a gold standard resource, alongside the phenomenal @TalkingMats & @uk_beyondwords
1/2
The Victoria & Stuart Project retweeted
Well, what an incredible day 😊 Celebrating the launch of @VictStuProject toolkit! Filled with tears and laughter! So proud of all the work we have done and that people will now be able to use it 💜
🗣️📢Resources now available!!! victoriaandstuart.com/end-of…
The Victoria & Stuart Project retweeted
📢 We're delighted to be at the launch of the @VictStuProject's new end of life planning toolkit today!
The toolkit is a fantastic resource to help people with learning disabilities think about end of life care - and features some of our own word-free pictures. #victstuproject
The Victoria & Stuart Project retweeted
Insightful first #coproduction meeting but it’s not too late to join our team!
We’re looking for LGBTQ+ people from a minoritised ethnic background to join us. We meet online monthly & you’ll be paid for your time.
Register your interest here: shorturl.at/60TXI
We’re delighted to announce a partnership between @MSHospice @NoBarriersHere & @mariecurieuk for a new study
Are you an LGBTQ+ person from a minoritised ethnic background? Do you want a say on equity in palliative care?
Be part of our co-production team: shorturl.at/60TXI
The Victoria & Stuart Project retweeted
Grab one of the last conference seats on 21 June tinyurl.com/27xku4wz
Webinar Thursday 27 June 12.30-13.30: tinyurl.com/yv8w4xnb
@KingstonUni @PCPLDnetwork @VictStuProject @MeetMacIntyre @DimensionsUK @VODGmembership @LearningDisEng
The Victoria & Stuart Project retweeted
It's Learning Disability Week! "DO YOU SEE ME?" This is what it feels like when we see and listen to each other!
On Thursday, this group will host & speak at the final @VictStuProject conference. Launching new end of life care planning toolkit. Plus, webinar 27 June. Book👇1/2
The Victoria & Stuart Project retweeted
First paper from @VictStuProject out in @PalliativeMedJ 🚀 Focus groups on end-of-life care planning with people with learning disabilities. First week into this role and I was dancing with a wig, co-facilitating one of these groups. See what we found here journals.sagepub.com/doi/10.…
The Victoria & Stuart Project retweeted
Can’t talk about dying? YES YOU CAN! People with learning disabilities show you how!
Few more places made available at our in-person conference 20 June
rb.gy/5as1d3
Or join a short webinar 27 June
rb.gy/jva0do
The Victoria & Stuart Project retweeted
At we approach the end of Dying Matters Week, Meg and Rachel reflect on their experiences with the Victoria & Stuart Project, the Toolkit, and how to have those difficult conversations.
macintyrecharity.org/news-bl…
#DyingMatters #DyingMatters2024 #LivingWellDyingWell
The Victoria & Stuart Project retweeted
'Excellent workshop'
'Brilliant trainers & resources'
'So clearly presented'
'Having Jess there to share her experience was the best thing'
📢Feedback from our Supporting People with Learning Disability Loss and Bereavement course
⏰Book 15 May now: bit.ly/3HIoUj3
The Victoria & Stuart Project retweeted
Have you booked your ticket yet for @VictStuProject Conference?
This will be an amazing, informative and inclusive event - do join us! ⬇️
#palliativecare #learningdisabilities
Come, meet, listen, learn! 20 June conference: Our colleagues and advisors with a learning disability will present the new toolkit for end of life care planning. Lots of amazing speakers. Book now! Registration open 👉bit.ly/4aozRCs
