Palliative Care for People with Learning Disabilities Network. UK based charity raising awareness and sharing best practice. Shortlisted for NDA Awards 2021.
United Kingdom
Joined February 2013
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‘Learning disability nurses save lives. Without urgent intervention, this profession will disappear, leaving people with a learning disability at even greater risk’
learningdisabilitytoday.co.u…
The sad reality that a worrying number of people with learning disabilities are missing out on an early cancer diagnosis which could have saved their lives
channel4.com/news/barriers-t…
PCPLD Network retweeted
Healthcare professionals in palliative and end-of-life care: help shape the new Impact Centre at King’s College London. Share your insights in our short, anonymous survey (15 mins).
Take part: qualtrics.kcl.ac.uk/jfe/form…
PCPLD Network retweeted
📢 The new LeDeR report is now available. The 2023 annual report analyses the deaths of 3,556 people with a learning disability & autistic people who died in 2023. The work is part of efforts to reduce health inequalities. Access here: kcl.ac.uk/ioppn/assets/pdfs/… #LeDeR @KingsIoPPN
PCPLD Network retweeted
⭐️MAIN CALL FOR ABSTRACTS NOW OPEN ⭐️
Online abstract submissions are invited for original research relevant to palliative care and in consideration of the conference theme #PCC2026
More info 👇
🔗pccongress.org.uk/main-abstr…
Talking about dying with people with learning disabilities: webinar details below from the Victoria & Stuart Programme, together with @KingstonUni in partnership with @mariecurieuk
PCPLD Network retweeted
We're excited to exhibit at this years Nursing Live in Birmingham for the third consecutive year running . We look forward to sharing our Palliative and End of Life expertise and resources and celebrating the best in Nursing care.
Sign up for your free place
invt.io/1exbpxrujab
Learning disability and palliative care conference coming up at @StChrisHospice! Find out more below 🙌
stchristophers.org.uk/course…
‘A person with a learning disability may need more than one conversation to fully understand and accept what has happened’ - important to remember this when discussing that somebody has died 🫶🏼
Calling our colleagues in general practice ⬇️
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PCPLD Network retweeted
The #NHS should make #ReasonableAdjustments to make it easy for #disabled people to use services. Hear what works for Kareem to find out about the support you could ask for youtu.be/6bdxREk9_2I #LearningDisability
Have you heard about the DAPPLE project? It’s a 3 year research study that aims to find the best ways to make sure that people with a learning disability get the right care and support at the end of their lives.
dappleproject.com
PCPLD Network retweeted
Did you know that #DisabilityPrideMonth is celebrated every July in honour of the anniversary of the signing of the Americans with Disabilities Act (ADA) in July 1990? Happy #DisabilityPride Month from all of us at the BC Epilepsy Society! #Epilepsy #EpilepsyAwareness
PCPLD Network retweeted
Are you a carer supporting someone with a learning disability?
The @unisouthampton are looking for #carers with a variety of experiences, ages, genders, and ethnicities.
Find out more here!👇
bit.ly/4lxZ8Qb
#VoiceOpportunity
ALT Promotional image for a University of Southampton and Voice focusing on annual health checks for people with learning disabilities. Includes close-up of a hand with a blood pressure cuff, with details about participation, closing date 31 July 2025, and a £20 shopping voucher incentive.
A little preview of our amazing conference yesterday! Lots of dancing and brilliant discussions. Who knew talking about palliative care could be so much fun!
As we close for the day, a brilliant afternoon here at #pcpld2025 conference: the Dapple Project, communicating grief in young people with severe and profound learning disabilities and our ‘soap box session’ . A huge thank you to all our speakers, presenters and attendees!
Our last ever Linda McEnhill Award presented to Prof Irene Tuffrey-Wijne - our previous @PCPLDnetwork chair, academic and researcher in palliative care for people with a LD, for her incredible contribution to the field . A huge congratulations and thank you!!!
A truly fabulous performance at #pcpld2025 conference from the inspirational Baked Beans Choir!
A fantastic morning at #pcpld2025 conference - overview of research so far, the READY project, a hospice/CPCT LD audit, the importance of relational care and ‘on the sofa’ with some of brilliant poster presenters! Looking forward to this afternoon’s session!