Today on #SLC13A5Awareness Day, I will be proudly honoring our grandson, Rowan, and wearing purple to raise awareness for all families and communities affected by SLC13A5 Epilepsy. Thank you to @TESSResearch for your continued support for families like ours. #TESSResearch @SenateCA

Today on #PurpleDay, we raise awareness for epilepsy. Epilepsy is one of the most common neurological diseases globally with 65 million people around the world, including 300,000 Canadians, living with epilepsy. Today, I am wearing purple to honour my grandson, as well as every person living with epilepsy, and their families. @TESSResearch @SenateCA

On this Rare Disease Day, I urge everyone to #ShowYourStripes to raise awareness for every person, family, friend, and community impacted by rare diseases, including SLC13A5 Epilepsy. Together, we can increase visibility, advocate for more research and promote equity for all the strong and brave people living with rare diseases. #RareDiseaseDay @TESSResearch @SenateCA

I thoroughly enjoyed the opportunity to join members of the @RCofFergusElora at lunch today to hear Michael and Amber Black speak about our grandson Rowan’s journey with Slc13a5 Epilepsy and the @TESSResearch Foundation. Thanks for your rapt attention and the very thoughtful questions and comments. #CommunitySupportMatters

November is Epilepsy Awareness Month. Characterized by neonatal seizures, fever sensitivity, status epilepticus, developmental delay and tooth anomalies, SLC13A5 is a rare form of epilepsy with fewer than five officially diagnosed individuals in Canada. Research continues on this, and other, rare epileptic diseases so that we can help these families and children live long, healthy and prosperous lives. @SenateCA @TESSResearch

SLC13A5 Epilepsy International Awareness Day is May 13. Join me, others and @TESSResearch in raising awareness within our communities in support of those affected by this devastating genetic disorder. #SLC13A5Awareness #TESSResearch

Today is #PurpleDay, an initiative which I hold close to my heart. Together, let’s join together in raising awareness about epilepsy and showing support for those living with epilepsy, and their families. Today, I’ll be honouring our grandson, Rowan. @TESSResearch @SenateCA

This afternoon, I was honoured to rise in the @SenateCA to highlight Rare Disease Day. Today and everyday, let’s support and celebrate the many individuals living with rare disorders, their families, and health care providers. @SenateCA @raredisorders youtu.be/2cS2Gyr87GQ