@MyotonicStrong

The world's largest patient organization focused solely on #myotonicDystrophy. Our mission is Community, Care, and a Cure.

 663 13th Street, Oakland, CA
myotonic.org
Joined July 2009
  • Tweets3.7K
  • Following328
  • Followers1.6K
1.3KMedia
🎥 Our new Community, Care, and a Cure video series is live! See how your support is changing lives for people living with myotonic dystrophy. 💛Donate now: giving.classy.org/campaign/6… 👇Watch the stories below:

Donate to MDF's Everyday Giving Campaign

Help change the future for those living with #MyotonicDystrophy! 💚 Together, we can fuel MDF's mission of Community, Care, and a Cure. 🌟 Every donation makes a difference! Follow my lead and donate...

give.myotonic.org
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Do you know how to recognize a potentially predatory #myotonicDystrophy research opportunity? Many opportunities are legitimate, but not all offer the same protections for your privacy, rights, and personal information.​​​​​ Learn more at: myotonic.org/predatory-resea…
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Unsure whether a request is legitimate? Contact MDF before responding at [email protected] or 415-800-7777. We are happy to help!
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For International #MyotonicDystrophy Awareness Day, the Zabezhinsky family helped shine a bright light on DM! 💚 Thanks to their efforts, Target Field and downtown Minneapolis glowed green, while DM was spotlit on live TV! myotonic.org/international-d…
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👉 🔬Join MDF's Meet the #MyotonicDystrophy Drug Developer with Dyne Therapeutics on October 23rd 🧬 for an update on their DM program! 📝 Register to attend & get early access to the recording! 💻events.zoom.us/ev/AuhDDPjs6V…
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Dyne Therapeutics has shared a message to the #myotonicDystrophycommunity reaffirming its commitment to DM1 research and to advancing z-basivarsen (DYNE-101), an investigational therapy currently being evaluated in two ongoing global clinical trials: dyne-tx.com/message-to-the-g…
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Myotonic Dystrophy Foundation retweeted
Institut de Myologie@Inst_Myologie
Sep 17
💚 #MyotonycDystrophyAwarenessDay #GoGreenForDM The chapel at the heart of @HopPitieSalpe was lightened in green for a special evening thanks to REDs team from @researchmyology to raise awareness on #MyotonicDystrophy @Telethon_France @DM1Steinert @MyotonicStrong
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City St. George's University of London researchers and clinicians went #GreenForDM in honor of International #myotonicDystrophy Awareness Day and hosted an educational event about DM alongside the Myotonic Dystrophy Support Group UK! myotonic.org/international-d…
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Brookville, Indiana, put International #MyotonicDystrophy Awareness Day on the map! Thank you to Jessica Ison, along with family and friends for spreading awareness! myotonic.org/events/internat…
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Registration is now open for the 2027 MDF Conference in Seattle! Join the #MyotonicDystrophy community April 28-May 2 for research updates, education, connection, wellness, and more. Explore the Community and Professional Tracks and register today: myotonic.org/events/2027-mdf…
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Today the Boston City Hall is glowing green for International #MyotonicDystrophy Awareness Day! Thank you to MDF Support Group Facilitator, Jim Dolan, and friends for spreading awareness! myotonic.org/international-d…
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Myotonic Dystrophy Foundation retweeted
Institut de Myologie@Inst_Myologie
Sep 15
💚 #MyotonycDystrophy Awareness Day #GoGreenForDM 💚 ✳️ Congratulations to the REDs research Team from @researchmyology and @dm_scope members for their collective action supporting #MD awareness Day today! 🫶🏻👏🏻 @MyotonicStrong @Telethon_France @DM1Steinert
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Today the CN Tower in Toronto lights up green again and so will the Burrard Bridge for the first time! Thank you to MDF Support Group Facilitator, Julie LeBoeuf, for making sure these landmarks mark International Myotonic Dystrophy Awareness Day! myotonic.org/international-d…
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New proclamation in Massachusetts for International #MyotonicDystrophy Awareness Day! 🎉💚 Thank you to MDF Support Group Facilitator Jim Dolan for making it happen! 🏛️👏 Learn more about Jim's journey to make this happen: einpresswire.com/article/942…
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The @UR_Med's research team, including MDF grant recipient, Dr. Johanna Hamel, is going #GreenForDM!💚 📢 Join in the awareness for International #MyotonicDystrophy Awareness Day! Wear green and tag us in your photos! myotonic.org/international-d…
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New proclamation for town of Amherst to recognize International #MyotonicDystrophy Awareness Day! 💚 Congratulations to Jane Mairs for making it happen! Thank you to Amherst Town Council President, Mandi Jo Hanneke, and Ana Devlin Gauthier, for supporting this initiative! 🏛️👏 Learn how to request a local proclamation with MDF’s Proclamation Guide: myotonic.org/wp-content/uplo…
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🌍 #GoGreenForDM this year! 📢 Shoutout MDF Board Member, Belen for sporting green during her travels. Join us in raising awareness for the 6th annual International #MyotonicDystrophy Awareness Day! Wear green and tag us in your photos! myotonic.org/events/internat…
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🌍 📢 Shoutout to our MDF Canadian Support Group and their facilitators for joining us in going #GreenForDM this year to raise awareness for International #MyotonicDystrophy Awareness Day! Join them by wearing green and tagging us on social media today! myotonic.org/international-d…
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🌍 📢 Shoutout to our MDF Kansas City Support Group and their facilitators for joining us in going #GreenForDM this year to raise awareness for International #MyotonicDystrophy Awareness Day! Join them by wearing green and tagging us on social media today! myotonic.org/international-d…
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🌍 Today is the 6th annual International #MyotonicDystrophy Awareness Day! 📢 Shoutout to all our MDF support groups and their facilitators for joining us in going #GreenForDM this year to raise awareness! Join them by wearing green and tagging us on social media today! myotonic.org/international-d…
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