Sara Robey retweeted
Hey doctors?
If youāre reading this, I genuinely would like to know something.
Why are so many of you so quick to dismiss us?
Nobody wants to be sick. Nobody wants to spend their free time in waiting rooms, seeking referrals, or begging to be taken seriously.
Yet, thatās what so many of us are forced to do, especially women.
Listen, if a patient takes time out of their day to come to your office, itās not because theyāre bored or lonely. Itās because something is wrong and they need help.
Patients are waiting 6-8 months just to see a specialist. Thatās after countless hours, even days, searching Reddit, Facebook groups, Twitter threads, trying to figure out what their symptoms mean and which doctors will take them seriously.
We miss work, birthdays, holidays, life itself, because our bodies are malfunctioning and no one will help.
Weāre not doing this āfor attention.ā
Weāre doing this because weāre sick. And we know our bodies.
It makes zero sense for someone to go through all of this just for fun.
Yet somehow, it makes sense to some doctors to call us dramatic, anxious, or fakers.
If you donāt know whatās wrong, just say that.
Donāt gaslight us. Dont write us off.
Research for us, refer us out or consult with someone.
Patients are doing so much just to be believed. Meet us halfway!
Sara Robey retweeted
šØ BOOOOOM!!!
Senator Bennet might have just ended RFK Jr.'s chances of being nominated as HHS Secretary. Watch how he cuts through the BS and asks the tough questions.
THIS is how you do it.
Sara Robey retweeted
NEWLY RELEVANT RAMS D-LINE NUGGET, @JourdanRodrigue.
*Awesome* This Is Football with @JourdanRodrigue who embedded with Rams scouts. The thought behind Rams draft: You can't replace Aaron Donald with one guy but a unique type of chemistry with prospects can help. That's how they landed on FSU's Jared Verse and Braden Fiske. Watch:
Sara Robey retweeted
This is very real and costs between 200-300k, depending on how much damage has been done from previous surgeries and treatments or age. The plastic surgeon who does this surgery is based in New York and is an expert in doing āeverything at onceā.
Instead of a regular face lift, they go through and lift every part of the face individually which stops the face from looking āpulledā and instead relocates skin, tissue and fat pads to where they were originally.
When the face is still it looks pretty natural, when it moves it just looks botoxed. Unless you saw the before and afters you would never guess how extreme this surgery was.
This isnāt skincare, lasers, facials or treatments, itās extreme and expensive surgery. Donāt let these people sell you products that āmade them look youngerā.
Sara Robey retweeted
Thereās a teenager in the ICU in BC with bird flu.
As news spreads- Iām seeing increasing number of people ask āwhat health conditions did he have? Was he overweight?ā
Can we PLEASE not do this again? A 16 year old is fighting for his life. Stop looking for fault /1 š§µ
I think Smile 2 is the film thatās surprised me the most this year. Iām not typically a horror film fan, tho I love creepy stories. I got to see this one last Friday and have been thinking about it a lot since. Really well done, great performance by Naomi Scott. So good!
Sara Robey retweeted
HEALTH UPDATE:
It has officially been one year since I contracted Covid-19 while on set for my movie that Iāve been working on.
I was once a very healthy 31-year old man, but now every day is a struggle for me.
A THREAD... š§µ
So sick of what passes for healthcare these days. Waited 4 months for an apt, dr told me he wants to put me on a med that we *know* makes me very sick again + immunosuppressants. Messaged to ask how long Iāll be on them and was told Iāll need to make another apt to find out.
Sara Robey retweeted
I mean... these studies are undoubtedly important, but to be honest, it's not how I want to see the NIH RECOVER money spent . We can characterize symptoms and definitions for years to come, but that's not going to change any treatment options that I have to offer to teens with #LongCovid and post-Covid #Dysautonomia. It's more than 4 years into #LongCovid shadow pandemic: we need FDA-approved therapies now! š©¹šš©āš¬
#BrainHealth #NeuroTwitter #MedTwitter #CovidIsntOver
Understanding differences of #LongCovid between children and teens
jamanetwork.com/journals/jam⦠@JAMA_current
Sara Robey retweeted
Several studies on patients with #LongCovid and #Dysautonomia found reduced VO2max in patients compared to healthy controls, which appears to be due to decreased peripheral oxygen extraction and not deconditioning.
A correlation between increased cardiorespiratory fitness (V02 max) and protection from brain aging (reflected by less demyelination) pnas.org/doi/epub/10.1073/pn⦠@PNASNews @MusBouhrara
Am I the only person with chronic illness who gets enraged by āgenius Drā tv shows? Saw an ad for Brilliant Minds, and all I could think about is how Iāve been begging for drs on my team to coordinate my care and give a sh!t for 3.5 years and they shrug their shoulders.
Sara Robey retweeted
āNo Olympic athletes are going to get Long Covid! Itās been 4 years and I donāt know anyone who has Long Covid!ā
Yes. You do. Many people donāt disclose their disabilities for fear of ableist backlash. Others donāt connect the dots and may not realize they have Long Covid š§µ/1
Sara Robey retweeted
āIf you were REALLY that sick then it wonāt matter if you get set back.ā
Iām begging non disabled people to stop acting like we canāt possibly have a quality of life while severely ill. Like our baseline isnāt the most important thing to us.
My baseline is EVERYTHING š§µ/1
Had an apt with the long Covid clinicās cardiologist yesterday. Basically told him after 3 years we need to go back to the drawing board and try to address the worst symptoms so my day to day life is more bearable. Got my fingers crossed.
Sara Robey retweeted
Wildly controversial take but I feel like people who are curious about older horror films should watch them instead of just imagining what they were probably like. xitter.cf/Variety/status/1812543ā¦
Maika Monroe: āWhen I started, horror movies were moving away from hot girl running, covered in blood, to interesting, unique, layered characters and storytelling. There are so many credible female roles within this genre now.ā bit.ly/4eV2Pgu
What an amazing young lady. š
Violet Affleck: "To confront the Long COVID crisis I demand mask availability, air filtration and far-UVC light in government facilities, including jails and detention centers and mask mandates in county medical facilities. We must expand availability of tests and treatment.
And most importantly, the county must oppose mask bans for any reason. They do not keep us safer. They make them vulnerable members of our community less safe and make everyone less able to participate in Los Angeles together. Thank you." š„š„š„
We need antivirals NOW.
Replying to @weeklyshowpod
Viral persistence of SARS-CoV-2 is rapidly growing throughout society in the form of Long Covid, w/ HIV/AIDS like damage to immune systems on the rise.
xitter.cf/LongCovidAP/statā¦
Meanwhile, Long Covid viral & immune RNA biomarkers have been found using a viral load test for SARS2 thatās sensitive enough to be applied clinically from readily available transcriptomic equipment, yet @NIH hasnāt included it in viral persistence clinical trials. We need this story amplified & the FDA to approve the Long Covid viral load test using blood 𩸠transcriptomics so that everyone in the public can be tested for Long Covid. We need #AntiviralsNow.
Sara Robey retweeted
Replying to @weeklyshowpod
Viral persistence of SARS-CoV-2 is rapidly growing throughout society in the form of Long Covid, w/ HIV/AIDS like damage to immune systems on the rise.
xitter.cf/LongCovidAP/statā¦
Meanwhile, Long Covid viral & immune RNA biomarkers have been found using a viral load test for SARS2 thatās sensitive enough to be applied clinically from readily available transcriptomic equipment, yet @NIH hasnāt included it in viral persistence clinical trials. We need this story amplified & the FDA to approve the Long Covid viral load test using blood 𩸠transcriptomics so that everyone in the public can be tested for Long Covid. We need #AntiviralsNow.
Horrifying. Trophy hunting should be banned.
Local villagers said he was a 2 year old elephant. In his death he folded his legs as if he were still a baby. #BanTrophyHuntingNow























