Part of Trafford Parents Forum-providing support for parent carers of children and young people with Special Educational Needs/Disabilities through peer2peer.

Trafford
Joined June 2020
Stronger Together Empowering Parents STEP Trafford retweeted
Please do not ever minimise a child’s voice in any situation. Parents ARE the experts in their own children and young people - respect that & work with them to keep the best interests of the child / young person at the centre always. #SEND #Autism #ParentCarer
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Stronger Together Empowering Parents STEP Trafford retweeted
And too often schools are labelling unmet needs in a classroom as ā€œbehaviour issuesā€ šŸ˜ž its a system that benefits nobody at the end of the day 🫤
Often a quarter to a third of the class has ASN. If complex kids are included as well, the system will fail them too. Large classes, with masses of people with disparate needs, don’t work. Schools need separate specific units. Behaviour issues shouldn’t be lumped with autism.
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Stronger Together Empowering Parents STEP Trafford retweeted
So. At the point that my children fell into crisis, public services were unable to offer timely support. We were fortunate at that time we could write a cheque to self fund some emergency care. We could manage that for about 3-6 months. That was all. 7 years later, we were still self funding care. CAMHS had discharged us against our wishes after 4 months, they didn’t have the appropriate specialist on staff, they offered something else which made everything worse. There was no paediatric care pathway on NHS for our child’s since identified genetic condition. 1 co-morbid condition we could transfer to adult services at 18. There was nothing until then, we’d have to wait 9 years. We were a single income household as one of us had to become full time parent carer. The sole earner went thru redundancy 6 times in 9 years, driving us further into debt. Our home fell into disrepair as we couldn’t afford to maintain it. Our savings lasted 9 months, 9 years later, we’ve borrowed money and yes, @Keir_Starmer, we have lived with that gnawing feeling in our stomach for years on end that we are financially on a knife edge. We’re the undeserving middle class you have in your mind’s eye. Us and tens of thousands of families, who’ve been punched down, woken up to structural injustice and have had enough. We advocate for every family who are struggling, every family pushed to the brink, every family unable to get back up. Please, let’s stop the Hunger Games of need. Let’s not perpetuate harmful narratives around undeserving poor, undeserving middle class. Tired tropes which continue division and discrimination. Instead, let’s aspire to build a better Britain for every child and every family. Let’s ensure equity, dignity, co-operation and participation are upheld. Let’s do better. Together. šŸ™šŸ» @BethRigby @SkyNews @NotFineinSchool
Sky News
@SkyNews24 Oct 2024
BREAKING: Sir Keir Starmer says those with assets are 'not working people' - paving way for possible tax rises Read more: trib.al/HLQRCKA šŸ“ŗ Sky 501, Virgin 602, Freeview 233 and YouTube
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Stronger Together Empowering Parents STEP Trafford retweeted
Disability benefits cuts would be devastating, and lead to even higher levels of poverty. Life already costs more for disabled people. The government should use next week's budget to strengthen the benefits system, not cut away at it. inews.co.uk/news/pip-assesso…
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Stronger Together Empowering Parents STEP Trafford retweeted
Our columnist, @catrionamoore13 of @IPSEAcharity spoke to @Channel4News last night about how children with #SEND are being failed every day by not being given the support they're entitled to: youtube.com/watch?v=BA-Oqyoa…
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Stronger Together Empowering Parents STEP Trafford retweeted
šŸ“¢ Tune in to @Channel4News at 7pm this eveningĀ  Our Policy Manager, Catriona Moore, will be discussing today’s report from @NAOorguk, which highlights the ongoing failures in support for children and young people with SEND.
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Stronger Together Empowering Parents STEP Trafford retweeted
Powerful words. Like @CarrieGrant1 we’ve walked that exact path twice. 64k families sharing the same heartache via @NotFineinSchool. The pressure is untenable. Kids and families are being broken, left with the long shadow of trauma and recovery. These are hard conversations to have. It starts by raising the standard of the conversation about parents, children and families. It starts by upholding dignity for all those needing support. It starts not by asking leading questions to confirm institutional bias about parents’ perceptions, but by understanding how parents are perceived by institutions (and power holders). Let’s break down the barriers to come together and find the solutions. Together. Join us. teamsquarepeg.org
Unless systemic changes are made that include Education, Health and Social Care our children and families will continue to suffer. #SEND #autism #ADHD #adoption
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Stronger Together Empowering Parents STEP Trafford retweeted
If only people had listened and acted five years ago when parents of disabled children took a judicial review against the Chancellor and Secretary of State for Education. Parents/carers and disabled young people are not to blame for this mess. #SEND
The SEN system costs Ā£10.7bn a year and demand will increase. We recommend government: • urgently shares plans with local authorities facing financial risk • considers whole system reform • decides how current investment can be better spent More šŸ‘‡ nao.org.uk/reports/support-f…
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Stronger Together Empowering Parents STEP Trafford retweeted
We certainly have been 'sounding the alarm' – the impact of inadequate support for children & young people w/ SEND is profound. Ministers must commit to ensuring the SEND system works by upholding the law so families no longer have to fight for what the law says they should have.
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Stronger Together Empowering Parents STEP Trafford retweeted
Too many families have told me they have lost confidence in the current SEND system. We need bold leadership to join up education, health, and care services for better planning and early intervention, so fewer children reach crisis point. childrenscommissioner.gov.uk…
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Stronger Together Empowering Parents STEP Trafford retweeted
Autism is invisible to most people
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Stronger Together Empowering Parents STEP Trafford retweeted
In Celebration of National Allied Health Professional Day today, we are promoting the roles of Specialist Allied Health Professional working in cancer care in Greater Manchester.
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Stronger Together Empowering Parents STEP Trafford retweeted
Essential autumn reading for disabled young people, parents, families and allies - long awaited and much needed proposals to modernise and streamline the law on disabled children’s social care. Lots of important questions to get your teeth into
Our consultation on Disabled Children's Social Care has been published today. The consultation is open until Monday 20 January 2025 šŸ“… Find out more and how to respond on our website: lnkd.in/eeVkRVve
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Stronger Together Empowering Parents STEP Trafford retweeted
Not much has changed since this documentary was filmed 11 years ago! In fact more foodbanks exist now. The system is still failing those in need: buff.ly/3Y2DjON
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Stronger Together Empowering Parents STEP Trafford retweeted
A big thank you to Melanie Grabowski for writing this blog post for us about her family's experiences & her masters research. notfineinschool.co.uk/home/f…
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Stronger Together Empowering Parents STEP Trafford retweeted
This is a really helpful graphic from @contactfamilies summarising the excessively complex law on social care assessment for disabled children and families
All parent carers of disabled children in the UK have a right to ask for their family’s needs to be assessed by social services through a Needs Assessment and a Carer’s Assessment. Check out Contact for help guidance on applying, challenging and complaining @contactfamilies
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Stronger Together Empowering Parents STEP Trafford retweeted
Health, education and social care getting their heads together to deal with children’s needs. You mean like in an education, health and care needs assessment?
The Children's Commissioner has warned against years-long waits for diagnoses and support for children with conditions such as autism and Down's syndrome. @ChildrensComm says the government needs to 'put children first'. #KayBurley OM
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Stronger Together Empowering Parents STEP Trafford retweeted
Four out of five school staff say their setting does not have enough money to meet the needs of pupils with special educational needs and disabilities according to new research from @tes. tes.com/magazine/news/specia…
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Stronger Together Empowering Parents STEP Trafford retweeted
#Oliverscampaign I have the MOST incredible news to tell you The Oliver McGowan Mandatory Training in Learning Disability & Autism has WON the NHS Parliamentary Awards for the Excellent in Training Award I can’t thank everyone involved enough but most of all Thank you OLIVER
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Stronger Together Empowering Parents STEP Trafford retweeted
Our report on Tuesday will reveal in stark terms how neurodivergent children are being robbed of precious years of their childhoods, facing delays and inequalities with getting diagnoses and support for autism, ADHD and other conditions like cerebral palsy.
Crisis in autism care as patients wait four years for diagnosis ⁦@thetimes⁩ - using my data powers I have exposed the shocking and unacceptable delays for children - often waiting for many years of their childhood for help ā¬‡ļø thetimes.com/article/533a656…
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