Champion Patient/Family/Caregiver Partnership in Healthcare. Collaborator. Change. + Disruption. Lived Experience Expertise. Views my own #GentlyFierce
Ottawa, Ontario, Canada
Joined May 2012
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Julie Drury retweeted
A quick outline of the main issues the Commissioner has found, can be found here along with a link to the final report:
ottawalrtpublicinquiry.ca/ne…
Julie Drury retweeted
BREAKING | 'Egregious violations of public trust': The #Ottawa LRT commission releases its final report: cbc.ca/1.6668152 #OttCity #OttNews
We'll have continuing coverage on CBC.ca/Ottawa, CBC Radio One and CBC News at 6.
Julie Drury retweeted
"The contribution of informal caregivers is often
ignored in economic evaluations of the healthcare
system, but it is estimated that caregiver contributions range from two-thirds to greater than 80% of the total cost of care" pubmed.ncbi.nlm.nih.gov/2938… @JPHirdes
Julie Drury retweeted
My child had RSV at 10 weeks & again at 22 months. Both times resulted in multiple ER visits + hospital stay. Absolutely ZERO advantage for him to have had RSV at a young age, only risks (both acute & longer term). Anyone suggesting willful illness in children has lost their way.
Julie Drury retweeted
Inside @CHEO's fight to control rising RSV, COVID-19 and flu cases.
@AlexMunter tells @NightShiftMD: “It’s just awful because too many kids already wait too long for planned surgery or a planned procedure. And now we’re having to cancel those.”
cbc.ca/1.6643679
Julie Drury retweeted
Children's hospitals are bursting at the seams trying to cope with a tripledemic of #COVID19, #RSV and #influenza. @AlexMunter, CEO of @CHEO, says there's a feeling of powerlessness that we're letting kids down cbc.ca/listen/live-radio/1-7… via @cbcwhitecoat @NightShiftMD #pediatrics
Julie Drury retweeted
Across generations, Canadians have dedicated their lives to preserve peace. To honour those who have served and continue to serve, we pause for 2 minutes of silence. Make November 11 the most unforgettable day of the year. #CanadaRemembers
Julie Drury retweeted
❤️ this tweet to receive a reminder on 11/11 to pause for 2 minutes of silence and make Remembrance Day the most unforgettable day of the year.
Julie Drury retweeted
I spoke with Premier @FordNation today. I emphasized the importance of standing up for Canadians’ rights and freedoms, including workers’ rights – and I reiterated that the preemptive use of the notwithstanding clause is wrong and inappropriate.
Julie Drury retweeted
Calling all Family Partners✨
Please take our 10+ min survey to help us understand and inform how Canadian children’s healthcare organizations engage family partners. We appreciate your input! survey.zohopublic.com/zs/mzC…
Julie Drury retweeted
Palliative care is so special….in these next decades of healthcare, should we actually begin to think about it being un-specialized?🤔
Palliative care needs to be peppered into all care!
#MedTwitter #Meded #Healthcare #Palliativecare #Health #Patientcare #patientengagement
Julie Drury retweeted
Trying to put into words the pain of being told by HCWs that I “have” to hold my deaf non speaking child down for procedures, watching them use physical restraints, his sobbing…this is a haunting and incredibly important issue #PTSD #MedicalMoms
'There's an expectation in the system that parents do restrain children, and we might need to challenge that preconception, and put other staff supports in place.' #trauma @seastarbatita @SolidFooting @UofCr4kids @dreyalcohen @francocarneval3
hollandbloorview.ca/stories-…
Julie Drury retweeted
Countless visits to the ER over 21 years with a medically fragile diagnosed child. Sent home on numerous occasions. Also had them say “ so what do you want to do ? What do you suggest? We are the experts with our kids , but also puts huge responsibility with medical decisions.
Julie Drury retweeted
I'm so grateful for voices being heard! Parents of kids w/#mentalhealth needs are also at risk for PTSD. The pediatric side of #healthcare puts a lot of pressure on the parent/caregiver as the care "partner". Our PTSD often goes undiagnosed & untreated.
Julie Drury retweeted
Really important study and interview. Thanks for sharing. @aedwards777 @julia_orkin @catediskin @Sherri_Inthesix
Julie Drury retweeted
#Caregivers & #patients are rarely at decision making tables. We are often limited to giving "advice." There are notable but few exceptions. Little will change until we lead with you. Politicians & system leaders can't fix the issues in #HealthSystem without co-designing with us
Julie Drury retweeted
A new Ontario law gives hospitals the power to label anyone not requiring acute care as ALC, triggering an involuntary move to long-term care, their home, a shelter, etc. Experts say this puts seniors/people with mental health disorders/others at risk. theglobeandmail.com/canada/a…
Julie Drury retweeted
Wait times for children needing surgery in Canada putting them at risk of lifelong consequences /via @globeandmail @carlyweeks theglobeandmail.com/canada/a… #onhealth #onpoli – at Toronto, Ontario
Julie Drury retweeted
Extraordinarily powerful @NEJM graphic piece illustrating the hidden crisis of family caregiving, and the disproportionate toll it takes on women: nejm.org/doi/full/10.1056/NE…
Everyone has a role to play in better supporting unpaid family caregivers.
We can and must do better.
Julie Drury retweeted
We need transformative codesign of #HealthSystem with #caregivers, #patients & front line #HCWs. Government relies on caregivers to care for ppl with increasingly complex needs. Equip us. Enable us. Support us. Listen to us. Provide us access to resources we need to do this work.