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Joined June 2012
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Happy birthday! This year, SmithSolve celebrates 2️⃣0️⃣ years!
We’re grateful to our team, clients, and patient communities for working side-by-side to improve the lives of people with rare diseases through advocacy and communications.
Showing Up, the SmithSolve newsletter, is where we pause to share what we're learning, what's working, what's evolving, and where we see opportunity across #pharma, #biotech and #healthcare.
Read the latest and subscribe: smithsolve.com/#newsletter-s…
What happens when 80+ advocates spend four days learning together? Countless insights. ✨
Thanks @PPALSorg for another inspiring year filled with great conversations on supporting patient communities and advancing #PatientAdvocacy.
See you Sioux Falls in 2027! 💙
#PPALS
Wishing you a happy Fourth of July from all of us at SmithSolve, including our very patriotic pup, Tippy. 🐾
How are you spending the holiday? 🎆
#FourthofJuly #IndependenceDay #America250
Summer Fridays are in session! ☀️🍉🏖️
From Memorial Day through Labor Day, our team can sign off early on Friday afternoons and kick off the weekend a little sooner. That means more time to recharge and return refreshed.
How are you building more balance into your summer?
This Pride Month, we celebrate the LGBTQ+ community. You belong, you matter, you are seen. We stand with you today and every day. 🌈
#PrideMonth #Inclusion #LGBTQ+
Today we recognize #WorldSickleCellDay and #Juneteenth. Sickle cell disease disproportionately affects the Black community, and gaps in awareness, research, and equitable access to care remain. As we reflect on freedom and progress, we’re reminded of the need for health equity.
“Are we OK?”
The answer?
It depends on the day.
Read Chris Smith's perspective on how far we’ve come, barriers that stand in the way of progress, and what “OK” can one day mean for the people who need and deserve our collective support: linkedin.com/pulse/we-ok-chr…
Research shows that mental health challenges are anything but rare within the rare disease community.
According to @rarepatientvoic, 82% of patients & caregivers experience frequent emotional distress, but access to mental health support continues to fall short.
This #MentalHealthAwarenessMonth, we’re recognizing the distinct pressures patients & caregivers face, reinforcing that better mental health = better outcomes. ❤️🫶📈
Learn how one rare disease community works to understand and address mental health challenges in this CheckRare podcast with Dr. Al Freedman, rare disease psychologist and rare dad. Listen here: xlhimpact.com/tools-and-reso…
#PatientAdvocacy #RareDisease
𝐏𝐚𝐭𝐢𝐞𝐧𝐭𝐬 𝐝𝐨𝐧’𝐭 𝐣𝐨𝐢𝐧 𝐜𝐥𝐢𝐧𝐢𝐜𝐚𝐥 𝐭𝐫𝐢𝐚𝐥𝐬 𝐭𝐨 𝐛𝐞 “𝐬𝐮𝐛𝐣𝐞𝐜𝐭𝐬.” 𝐓𝐡𝐞𝐲 𝐣𝐨𝐢𝐧 𝐟𝐨𝐫 𝐚 𝐩𝐮𝐫𝐩𝐨𝐬𝐞:
To access innovative therapies
To help build a better future
To move science forward
That’s impact. That’s courage. That’s community.
The CISCRP’s Perceptions & Insights Study reinforces what rare disease families show us every day. Patients are more than participants. They are partners in progress. They’re advocates and changemakers. Read the study: bit.ly/3RzsdkG
That’s why clinical trial communications need to be relevant and credible. Learn how we help our partners earn trust and rethink communications through a patient-inclusive lens: smithsolve.com/services/prod….
#PatientAdvocacy #ClinicalTrials #RareDisease #PatientEngagement
Today, on International MPS Awareness Day, we’re proud to recognize the resilience and progress of the MPS & ML community. 💜
For more than a decade, we’ve worked alongside people with MPS & ML, their families, advocates, and supporting organizations to advance drug development, design clinical trials, build awareness and disease education, elevate patient insights, and strengthen community capacity.
It has been a privilege to see this community evolve, organize, and lead intentionally. We honor every family, advocate, and partner advancing understanding and hope for people living with MPS & ML.
#PatientAdvocacy #RareDisease #MPSAwarenessDay #MPS #ML
20 years ago today, SmithSolve began with a bold goal: to elevate voices across the #RareDisease community.
A lot has changed since then. We’ve grown our team, expanded our capabilities, and deepened our impact. But what’s mattered most from the start are the relationships.
🔹 “You’re credible because you’re involved. You show up at industry and community forums.”
🔹 “The work you put in makes a difference in the lives of these families.”
We’re proud of the progress we’ve made together – and even more energized for what’s ahead. 🎉
📹 Watch a short video of our team and partners reflecting on the journey at SmithSolve.com.
#SmithSolve20 #PatientAdvocacy