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For more info on @PPALSorg check out our website PPALS.org and like us on Facebook facebook.com/jfrc914/ #RareDisease
PPALS retweeted
Thank you to our own Austin Letcher for your presentation at PPALS! It is an honor to meet and collaborate others passionate about rare disease advocacy!
@PPALSorg @amicusrx1
PPALS retweeted
#PPALSPACT2023 @PPALSorg case study discussion with PAOs, biotech & pharma attendees. Lots of good conversations @SanfordCoRDS @jgersh1115 @bwuebbels @DMLaGreca @RobertTomaino
PPALS retweeted
#PPALSPACT2023 @SanfordBenF speaking to Industry Intermediate class at Day 2 of @PPALSorg PACT course at @SanfordResearch Great discussion on appropriate interactions with #rarediseasepatientadvocacyorganizations @BarbWuebbels @jgersh1115 @DMLaGreca
PPALS retweeted
#PPALSPACT2023 @DrDavidPearce discussion on @SanfordResearch on Day 1 of @PPALSorg PACT course. @RobertTomaino @SanfordCoRDS @jgersh1115 @DMLaGreca @BarbWuebbels #patientadvocacyinlifesciences
@PPALSorg is pleased to announce the return of PPALS Presents! The next installment of the webinar series will feature a discussion about the best “Pathways for Seeking Community Insights.” Join us online Thursday, March 30th at 4pm (EST)
#patientadvocacy
mailchi.mp/197ba24167e3/ppal…
@PPALSorg and @SanfordResearch are pleased to announce that the registration link for the 2023 Patient Advocacy Certificate Training (PACT) course is live! The course will take place at Sanford Research Institute campus in person from May 8th-11th.
mailchi.mp/acffb490b877/regi…]
PPALS retweeted
Mark Sept 27 for a must attend @_OurOdyssey_ special topic meetup. Thanks @Srotberg15 for being on the program! @PPALSorg @SanfordCoRDS @RobertTomaino @HDYOFeed @EveryLifeOrg @RareAdvocates @CystinosisCRN @livinlavidalopo @One_Rare_ @UpliftingAth #RareDisease #chronicillness
Don't miss: Seth Rotberg patient advocate & Co-Founder of Our Odyssey will be guest speaker on Sept. 27th at 5:30 pm ET, "Empowering Yourself and Others as a Patient Advocate" for those impacted by a rare or chronic condition ourodyssey.org/topic-specifi…
#RareDisease #chronicillness
ALT A picture of Seth Rotberg and logos for Our Odyssey and Travere. Text says Empowering Yourself and Others as a Patient Advocate.
Thanks Keri McDonough from @SyneosHealth for the @PPALSorg shoutout in her view of @DynamicGlobalEv Chief Patient Officer summit which took place in July. Not only did it feature several PPALS members and PACT faculty, but the meeting was focused on #PatientAdvocacy!
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PPALS retweeted
Young adults (18-35) impacted by rare or chronic conditions
👉Join us!
@_OurOdyssey_ hosts free virtual meetups!
The next one is Sunday August 28th 4 - 5pm EST
Learn more & sign up here: ourodyssey.org/virtual-meet-……
#RareDisease #chronicillness
ALT Image contains picture of a zoom call with smiling participants. Logos for Our Odyssey and Travere. Text says: It's your community. Young Adults aged 18 to 35 impacted by rare or chronic conditions. Join our free virtual meetups.
PPALS retweeted
Lots of learning, connecting and wonderful discussions were had at #PACT2022. Thank you @PPALSorg & @SanfordCoRDS for a great week!
PPALS retweeted
"I am so glad we had this time together!" A fabulous group of Patient Advocates at the end of the @SanfordCoRDS @PPALSorg #PACT2022 Great energy & discussions! Thank you to all for a stellar experience! @jgersh1115 @BarbWuebbels @RobertTomaino @SanfordBenF
PPALS retweeted
It's @michelerhee between 2 Robs @RobertTomaino & @RobLong47 moderating Findi g the Common Ground for @SanfordCoRDS @PPALSorg #PACT2022 Really good conversation! @UpliftingAth @jgersh1115 @BarbWuebbels @DMLaGreca Thanks for your enthusiasm!
Thank you Sanford/PPALS #PACT2022 Attendees and Faculty. It was a great week of discussions and learning from each other! Go forth and Collaborate! #patientadvocacyinlifesciences #patientadvocacy
@PPALSorg @SanfordCoRDS @jgersh1115 @BarbWuebbels @JFCConsultants #PACT2022
PPALS retweeted
@michelerhee leading #patientadvocacyinlifesciences w/ colleagues working in #patientadvocacy function about challenges! @PPALSorg @SanfordCoRDS @jgersh1115 @BarbWuebbels Great conversation!!!
Thanks @JFCConsultants and Rob Long
@UpliftingAth
sharing the best practices of working with Non Profit Organizations
@SanfordCoRDS
@PPALSorg
@jgersh1115
@BarbWuebbels
@teaminspire
@RobertTomaino
#rarediseases #patientadvocacyinlifesciences #PACT2022 #PPALS
PPALS retweeted
Thanks Rob Long @UpliftingAth sharing how they work with Industry, PAOs and other stakeholders. @SanfordCoRDS @PPALSorg @jgersh1115 @BarbWuebbels @teaminspire @RobertTomaino @DMLaGreca #rarediseases #patientadvocacyinlifesciences #PACT2022
PPALS retweeted
Day 3 at @SanfordCoRDS @PPALSorg #PACT2022 Discussions on Working with Non-Profits, CSuite, Collaboration with Academia, Nonprofit, Industry & Government, and Finding Our Common Ground. @jgersh1115 @BarbWuebbels @RobertTomaino IT HAS BEEN TERRIFIC!!
PPALS retweeted
Thanks Jamie Ring for the History of Patient Advocacy at @SanfordCoRDS @PPALSorg #PACT2022 It was indepth, intriguing & Informative. Having historical perspective gives a stronger base for the #patientadvocacyinlifesciences function. @jgersh1115 @BarbWuebbels @BarbWuebbels