Improving Healthcare Through Genomics - working together to embed Genomics into standard care for patients and families across the South West.
South West England
Joined April 2021
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NHS SW Genomic Medicine Service Alliance retweeted
🧬Come and find us on LinkedIn!
📢We’re building up our LinkedIn channel to share even more from the South West Genomic Medicine Service, including latest news, opportunities and much more.
💻Connect with us:
linkedin.com/company/nhs-sou…
NHS SW Genomic Medicine Service Alliance retweeted
What is a genetic condition?' Find out in this new bitesize animation from our support community @SWAN_UK
📢What is a genetic condition? We are excited to launch the first of our three new animations: Please watch and share to help us reach more families.
youtu.be/ZxT61DM90DU?si=M_da…
NHS SW Genomic Medicine Service Alliance retweeted
It's #WorldMentalHealthDay
A reminder that the Rareminds Wellbeing Hub is an amazing resource to help you live as well as possible with your #RareCondition.
Find information on things like #diagnosis, #relationships and navigating #healthcare
👉 rareminds.org/wellbeing-hub/
NHS SW Genomic Medicine Service Alliance retweeted
The #NHS GMS is the first in the world to roll out ‘revolutionary’ blood tests for cancer patients. Prof Dame Sue Hill @CSOSue said: “This is a great example of the NHS harnessing the power of #genomics to enable targeted cancer treatments." england.nhs.uk/2025/05/nhs-f…
NHS SW Genomic Medicine Service Alliance retweeted
WE CAN NOT WAIT! See you then @jimconey - and thank you for all you do. Happy #RareChromoDay.
It’s Rare Chromo day!
You can hear me and the comedy writer Shaun Pye chatting about raising children with a rare genetic condition today at 1pm for @Unique_charity
Sign up rarechromo.org/get-ready-for……
NHS SW Genomic Medicine Service Alliance retweeted
📕 Happy #RareChromoDay! All over the world, our members have been sharing their experiences of life with rare gene and chromosome disorders. Join us in celebrating them by visiting our website and reading our Little Red Book today! #MyUniqueStory
rarechromo.org/little-red-bo…
NHS SW Genomic Medicine Service Alliance retweeted
🧬 IT'S RARE CHROMOSOME AND GENE DISORDER DAY 2025, #RareChromoDay
We're so excited to share two publications. Have a read, share and let us know what you think in the replies💬
- The Little Red Book: rarechromo.org/little-red-bo…
- 'Unique experiences' report: rarechromo.org/get-ready-for…
NHS SW Genomic Medicine Service Alliance retweeted
Do you have or care for someone living with a rare chromosome and gene disorder?
Unique is an open, supportive community for people who are looking for information, share experiences and connect. Join our free membership and access our services.
👉 rarechromo.org/join-us/
NHS SW Genomic Medicine Service Alliance retweeted
Yesterday we hosted a #PCUKStudyDay on genomic medicine in pancreatic cancer with Genetic Counselling Lead, Matilda Bradford and HPB CNS Hayley Turner. During the study day we were thrilled to highlight the positive difference genomic medicine can make to treatment and care now.
NHS SW Genomic Medicine Service Alliance retweeted
Metagenomics is changing lives - and Ellie is a great example of this. She had her eyesight restored following metagenomic testing at @GreatOrmondSt, which is being mainstreamed through SPID, which we run with @NorthThamesGMS and @SEgenomics. Read more👇
bbc.co.uk/news/articles/czx4…
NHS SW Genomic Medicine Service Alliance retweeted
Think #genomics isn’t relevant to your clinical role? Pls think again. Join us for 1st in a new series of lunch and learn webinars. Discover how genomics is being used across routine #healthcare. Let’s bring genomics into everyday #practice. Book here: bit.ly/4i2YNmH
NHS SW Genomic Medicine Service Alliance retweeted
We're holding a free 1hr online workshop, designed and developed for #Pharmacists and #PharmacyTechnicians to enhance knowledge of #genetics in stroke treatment, #CYP2C19 testing pilots, + learn how to support patient queries about #genomics Register here: bit.ly/4iMLuYb
NHS SW Genomic Medicine Service Alliance retweeted
Tune into The Road to Genome MON 24 MARCH to hear Rebecca Middleton (@RebeccaMiddle16) share her experience as a patient & creation of the organisation Hereditary Brain Aneurysm Support (@hba_support)
Listen here eu1.hubs.ly/H0hH_l70 or wherever you get your podcasts
NHS SW Genomic Medicine Service Alliance retweeted
Are you a pharmacy professional working in Cornwall? If so, we’d love to hear your views on embedding genomics in your everyday practice! Further details here: royaldevon.nhs.uk/media/l0vp… @ciosicb @RCHTWeCare @KernowPharmacy @Dbearman1
NHS SW Genomic Medicine Service Alliance retweeted
What an inspiring start to the SWAG Cancer Alliance Annual Conference!
We are all excited to see what innovations the day can bring at #SWAGCA2025
NHS SW Genomic Medicine Service Alliance retweeted
A cutting-edge genetic testing service at the Royal Devon has welcomed its 50th baby. Baby Annie’s mum was born with an extremely rare genetic condition. Thanks to the pioneering PGT service, Annie and her sister, Elsie, did not inherit the condition.
ow.ly/MeiY50Vftx0
NHS SW Genomic Medicine Service Alliance retweeted
1 in 8 men will get prostate cancer. That’s a dad, uncle, brother, partner or best mate.
Check your risk in 30 seconds with Prostate Cancer UK’s online risk checker and share with your loved ones.
➡️ prostatecanceruk.org/risk-ch…
#ProstateCancerAwarenessMonth
ALT 1 in 8 men will get prostate cancer. Check your risk in 30 seconds. Prostate Cancer UK. Men, we are with you.
NHS SW Genomic Medicine Service Alliance retweeted
The National Genomics Education Programme have launched #GeNotes collection specifically for #Genomics cases in your gastroenterology and hepatology practice @BritSocGastro
bsg.org.uk/news/new-national…
NHS SW Genomic Medicine Service Alliance retweeted
With 3,000 participants recruited so far on the Generation Study, today's episode highlights lessons from early recruitment. Our guests discuss how ongoing engagement is refining information sharing and improving the study’s approach 🎙️
Listen here: ow.ly/RHmE50Vkyim
ALT Headshots of the speakers on this episoode, Vivienne Parry, Alice Tuff-Lacey, Dalia Kasperaviciute and Kerry Leeson Bevers, on a branded template.
NHS SW Genomic Medicine Service Alliance retweeted
Today we launch our report detailing feedback from 100+ people who've been screened for #LynchSyndrome
Thanks to every person who took time to share their story with us & everyone who helped us to reach people.
Read the report & our recommendations👇 bit.ly/Lynchscreeningfeedbac…
ALT Read our report detailing feedback from over 100 people who have been screened for Lynch syndrome. We share what needs to change.