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Joined September 2021
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HBA Support retweeted
Delighted to announce the 2026-27 Medical Student Essay Prize
‘Beyond diagnosis: what are the opportunities & risks of population-wide genomic screening?’
Deadline 1st December 2026
Max 2,000 words
More details, get in touch. Prizes to be won!🏅 @ProfDBaralle @SureshSomarathi
We've decided to no longer post on X. You can find us on facebook.com/HBASupport, instagram.com/hba_support or linkedin.com/company/hbasupp… – please join us there to stay up to date with brain aneurysm support, news & research.
Our new "Brain Aneurysms & Beyond" Podcast is out NOW!
Join a neuroscience nurse and brain haemorrhage prevention charity in Ep1 as we ask “How do you live well with a brain aneurysm?” with practical tips on navigating everyday life with an aneurysm.
hbasupport.org/podcast
HBA Support retweeted
Join representatives from @hba_support and Brain & Spine Foundation on the 25th of September for an online session for people living with unruptured brain aneurysms.
The session will be live and not recorded, and completely free to attend.
Register here: ow.ly/CSRK50WS5X7
#BrainAneurysmAwarenessMonth is all about changing the silent story of brain aneurysms, replacing fear with facts and worry with support. We're here to support people affected by brain aneurysms and families with increased risk. Please visit hbasupport.org/brainaneurysm… for more info
We are delighted to be a patient partner for this pivotal and ground-breaking study. As a charity representing patients impacted by brain aneurysms and their families, who possibly have hereditary risk, this research is critical for better, more personalised patient care.
A landmark research initiative attempting to lay the foundation for the UK’s first genetic screening programme for brain aneurysms is set to get underway soon
@hba_support @RebeccaMiddle16 @unisouthampton @UHSFT
neuronewsinternational.com/r…
HBA Support retweeted
A landmark research initiative attempting to lay the foundation for the UK’s first genetic screening programme for brain aneurysms is set to get underway soon
@hba_support @RebeccaMiddle16 @unisouthampton @UHSFT
neuronewsinternational.com/r…
HBA Support retweeted
We need action from government, not just words. In My Neuro Survey, people most reported being unable to access specialist mental health support despite needing this.
Sign our open letter to now. bit.ly/ActForThe1in6 Thank you.
Calling all neurovascular or medical professionals supporting people with brain aneurysms with possible hereditary links - please fill our survey to help us create a guide to help newly diagnosed patients surveymonkey.com/r/KXKBJBY
Great to see our founder's podcast episode being shared - have a listen if you want to hear how Hereditary Brain Aneurysm Support began.
Tune into The Road to Genome MON 24 MARCH to hear Rebecca Middleton (@RebeccaMiddle16) share her experience as a patient & creation of the organisation Hereditary Brain Aneurysm Support (@hba_support)
Listen here eu1.hubs.ly/H0hH_l70 or wherever you get your podcasts
Thanks to @clemencybh for sharing her story on @BBCNews & @BBCTwo to raise awareness of brain injury and recovery. Our brain aneurysm rupture survivors understand the shock of a sudden rupture, huge recovery challenges and the devastating impact brain injury has.
#aftertherupture
Last chance to take part in research to help us learn more about the experiences of families with hereditary brain aneurysms. If you or your partner is at-risk of hereditary brain aneurysms we need to hear from you before Jan 31st! Find out more here hbasupport.org/post/what-are…
FREE Guide - Understanding Familial Brain Aneurysms
Most brain aneurysms occur sporadically, meaning randomly with no pattern, and are not hereditary. However, sometimes patterns can occur in families.
Find out more in our free downloadable guide here: hbasupport.org/support#guide…
We're posting less on X so to stay updated you can follow us on facebook.com/HBASupport or linkedin.com/company/hbasupp…
Have you or your family been impacted by a brain aneurysm?
We're running research projects that need to hear about your patient experience to help improve care and support. A friendly chat is all we need.
Find out more here: hbasupport.org/get-involved#…
#brainaneurysms
HBA Support retweeted
We have responded to Lord Darzi’s Independent Investigation of the NHS in England. Read the
full statement from our Chief Executive @GCarr_Neuro on our website neural.org.uk/news/the-neuro… #NHS #BackThe1in6
ALT Neurological Alliance England logo, writing on a purple background. Our response to Lord Darzi's independent investigation of the NHS in England. Lord Darzi’s diagnosis today has confirmed what many people with neurological conditions have been telling us for years. A broken health service has made accessing the right treatment, care and support at the right time a lengthy battle for many and simply out of reach for others. Having seen the diagnosis, we now need action to treat the root causes. Lord Darzi’s frank assessment of the lack of patient voice in decision making emphasises the need for people affected by neurological conditions and organisations who support them to be at heart of this process."
Thanks to @RareRevolutionM for sharing our story - great article!
September marks #BrainAneurysmAwarenessMonth, a crucial time to shine a light on a condition that affects so many lives, yet remains underrepresented in public conversations. At @hba_support it holds special significance as they reflect on their journey.
rarerevolutionmagazine.com/h…
HBA Support retweeted
.@hba_support has announced the upcoming launch of multiple projects intended to improve care and support for patients with familial #BrainAneurysms
#BrainAneurysmAwarenessMonth @RebeccaMiddle16 @samirmatloob1 @DSalmon82
neuronewsinternational.com/h…
Thank you so much for helping us shine a light on this underrepresented condition during brain aneurysm month ⬇️⬇️
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HBA Support retweeted
Thank you @BBCWomansHour for sharing my story, raising awareness of familial brain aneurysms and @hba_support Women are more likely to have a brain aneurysm and the risks increases when you’re post menopausal. Excited about the ROAR Study led by Diederik Bulters to unpick why 🧬
❗️Brain aneurysms are more common in women than men.
@RebeccaMiddle16, founder of @hba_support, was diagnosed in 2015 and has since undergone treatment.
She speaks to @BBCNuala about the hereditary impact of this on both her and her family ⬇️