Specialist Respiratory Physiotherapist at Air Physiotherapy. Singer in my free time.
Twickenham
Joined September 2011
- Tweets279
- Following138
- Followers94
- Likes356
Stephanie Grefsheim retweeted
A very detailed study on #MECFS from the NIH group. My take-home points after a quick read:
🧠 MECFS is a brain disorder in keeping with my assertion that #POTS is a CNS disorder.
link.springer.com/article/10…
🧠 Transcranial dopplers in the supine and standing position were not done - a missed opportunity to detect cerebral hypoperfusion in pts. vs controls.
🧠 2-Day CPET was not done - a missed opportunity to detect post-exertional malaise in pts vs. controls
🧠 Autonomic dysfunction in the form of sympathetic overactivity, unrelated to anxiety or depression, is a major underlying mechanism of fatigue in MECFS.
🧠 Immunologic and mitochondrial dysfunctions are among the mechanisms of MECFS.
🧠 Biological sex differences in MECFS exist via distinct metabolic, immunologic and genetic pathways.
#MedTwitter #NeuroTwitter #Dysautonomia #LongCovid
The long-awaited NIH Intramural Study of ME/CFS, led by Avindra Nath, has finally been published in full.
🧵 "Considering all the data together, Post-infectious ME/CFS (PI-ME/CFS) appears to be a centrally mediated disorder." 1/
nature.com/articles/s41467-0…
Stephanie Grefsheim retweeted
“Scientists around the world are in a race to figure out why millions of people suffer from #LongCovid”
“The study provides evidence that ‘LC is a tissue-based disease’ meaning.. dysfunction is happening in different organ systems, said @MichaelPelusoMD” sfchronicle.com/health/artic…
Stephanie Grefsheim retweeted
For people with neurologic conditions, online classes are convenient and often affordable. They also can address common concerns such as stiffness, balance, coordination, and cognitive difficulties: bit.ly/46Oy5s4
#Fitness #PhysicalTherapy #Exercise
ALT A woman sits on a yoga mat and does the exercises shown on a TV screen next to her.
Stephanie Grefsheim retweeted
Nose breathing for heart health. 🫀
There are claims that nasal-only breathing is superior to mouth breathing.
How does their physiology differ? And does nose breathing really produce beneficial effects on the body?
Thread. 🧵
Stephanie Grefsheim retweeted
Thank you to @linseymarr for explaining the effectiveness of masks on @60Minutes Overtime with @DrLaPook. I really wish this segment featured on the full broadcast and not online only though, as the whole country really needs to watch it!
Stephanie Grefsheim retweeted
Our noses are amazing organs that have over 30 different functions.
The nose regulates our whole breathing system. It is a filter, an air-conditioner, it helps immune defence against bacteria and viruses, get more oxygen because of NO, and can help to calm the nervous system.
Stephanie Grefsheim retweeted
Soon, we will be formally announcing the launch of our new clinic: a center dedicated to recovery from complex chronic illnesses. In this clinic we will treat folks with conditions like #EDS, #LongCOVID, #MECFS and #LongLyme. We were incredibly intentional about the decision 1/
Stephanie Grefsheim retweeted
I wish the author of this Editorial for @TheLancetInfDis had signed their name: it's a great editorial on #LongCovid reflective of reality.
#MedTwitter #NeuroTwitter #immunotherapy
thelancet.com/journals/lanin…
Stephanie Grefsheim retweeted
Latest film is up! @doctorasadkhan and I talk to @BhupeshPrusty about reactivated latent viruses in Long Covid and ME/CFS.
youtu.be/0dI7uaTni5g
Stephanie Grefsheim retweeted
Free access over the summer! This is fantastic! Spread the word!
Beam #cysticfibrosis youth, developed in collaboration with Johns Hopkins CF center and @YogaForCF is FREE all summer long! Please spread the word and help CF families from around the world benefit from this awesome resource. Read more here beamfeelgood.com/blogs/beam-…
Stephanie Grefsheim retweeted
Sometimes the natural rhythm of our breathing can become disrupted, which is known as a breathing pattern disorder (#bpd). What does this actually look like? How can it be treated? Our case study shows how the process works and the difference it can make bit.ly/3r6ncD6
Stephanie Grefsheim retweeted
Michael Heseltine, 90 years old, leaves nothing behind as he lays into Boris Johnson on @Channel4News – at Sitges, Spain
Stephanie Grefsheim retweeted
Never heard of this before. I wonder what else we're using or consuming that has a negative impact on our health.
I don't use mouthwash for a number of health reasons.
One effect is on nitric oxide production
which regulates blood vessels.
Mouthwash users had 85% higher risk of physician-diagnosed hypertension compared to less frequent users.
doi.org/10.1080/08037051.201…
Stephanie Grefsheim retweeted
Managing #Dysautonomia can be challenging, but the most important aspects are:
✅ It's not psychological, it's physiological
✅ Don't refer to psychologists or CBT as a knee-jerk reaction
✅ Recommend ⬆️ fluids/salt intake
✅ Recommend compression garments
✅ Recommend supine/sitting exercise
✅ Recommend meds
#MedEd #MedTwitter #NeuroTwitter
onlinelibrary.wiley.com/doi/…
Stephanie Grefsheim retweeted
Do you work for a great leader? Make today the day you tell them. #greatleaders
Stephanie Grefsheim retweeted
#pwLC: please take this ~10 min survey about your experience with employment, disability benefits, and more! #LongCovid brookingsi.qualtrics.com/jfe…
✨NEW ✨Long Covid patient experience survey. If you have #longcovid, please consider taking this ~10 min survey about your experience with employment, disability, & more. I will publish findings at Brookings, and in a journal article. Survey link: brookingsi.qualtrics.com/jfe…… (1/4)
Stephanie Grefsheim retweeted
✨NEW ✨Long Covid patient experience survey. If you have #longcovid, please consider taking this ~10 min survey about your experience with employment, disability, & more. I will publish findings at Brookings, and in a journal article. Survey link: brookingsi.qualtrics.com/jfe…… (1/4)
Stephanie Grefsheim retweeted
Monday 17th April 12.30 - 13.45
Helene Bellas is presenting on breathing pattern disorder. Don’t miss this! @HeleneBellas is a brilliant speaker and an expert on this topic. Can’t wait eventbrite.com/cc/voicefit-l…
