@SCProdigy

Care for What Comes Next - Together, Beyond Treatment. Redefining survivorship in sickle cell - supporting patients navigating curative therapies.

sicklecellprodigy.org
Joined March 2022
  • Tweets1.9K
  • Following90
  • Followers329
392Media
Replying to @SCCConsortium
@SCCConsortium 4th Annual Sickle Cell Caregiver Summit, Nov 15-17, caregivers from all walks of life will connect and empower one another. Here's your chance to gain resources in caring for loved ones with SCD. Register today at scdcaregivers.org. 💖 #SCDCaregivers #SCDAAMI
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B Positive choir has been inspiring others since @MOBOAwards We sing with passion and raise awareness of #SickleCell & Blood Donation @GiveBloodNHS "From Now On" was recorded to share our joy with others contact us [email protected] #BpositiveChoirOfficial
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SickleCellProdigy retweeted
Sickle Cell 101@sicklecell1016 Nov 2024
Have you ever thought about undergoing a bone marrow transplant (BMT) to treat #sicklecell disease (SCD)? 🤔Here are three facts you should know about BMT for SCD. #SickleCell101 #BoneMarrowTransplant #SickleCellAwareness
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Replying to @SCProdigy
Donate and save life!🙏
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Replying to @SCProdigy
Totally agree 💯
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Replying to @SCProdigy
Wow! This is a News!
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Oftentimes, we talk about lived experiences of patients who have undergone gene therapy but on episode 3 of #ThroughTheGenes, we sit down with Amanda Olaghere to unpack the caregiver experience. This and more now available on all podcast platforms. open.spotify.com/show/0BeH3v…
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The Warriors Convention features a special segment "Beauty Within Sickle Cell" in honor of Jasmine Rivera, who bravely battled Sickle Cell Disease. Jasmine shared her journey on social media, emphasizing inner beauty. We will be offering hair and makeup sessions for the prom.
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SickleCellProdigy retweeted
UEO Sickle Cell@UEOSickleCell27 Jun 2024
🎉 Meet our new Officers! 🔸Kevin, President Healthcare & Networking Expert 🌍 🔸Jemela, VP Social media maven 💻 🔸Maurice, Treasurer Communication pro & school resources leader 📚 🔸Shawna, Secretary Bridging SCD families & hospitals 🏥 Engage & share!👏 #SickleCellMidwest
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*Book Now for 27 June 4.30 or 5pm* We’re collecting patient feedback on sickle cell services at University Hospitals Southampton NHS Trust . Sessions are held online, and feedback will be anonymous. Book now free buff.ly/3VIfU44 #southampton #sicklecell
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SickleCellProdigy retweeted
Olamipeju@theolapejuu20 Jun 2024
Not sure you even know how many babies,teens and adults we keep losing because of this condition! It’s something within our control to end the prevalence!!! Do the needful❗️
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This year's World Sickle Cell Day: WE ARE #STRONGERTOGETHER. 💪🏽Meet Addassa, our Peer-to-Peer Mentoring Program Manager! She ensures young kids with sickle cell get support and guidance. More info and applications via the link buff.ly/3VQsP5j #WorldSickleCellDay
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SickleCellProdigy retweeted
UEO Sickle Cell@UEOSickleCell20 Jun 2024
This #WorldSickleCellDay, we highlight the lack of #reproductivehealth resources for #sicklecell patients. @sickle_red aims to address this gap, advocating for quality care on fertility, pregnancy & more. Learn more: sicklecellred.org/ #WSCD24 #SickleCellMidwest
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SickleCellProdigy retweeted
Her Sickled Journey@hersickledj19 Jun 2024
Happy World Sickle Cell Day! Each year I’m seeing more and more being done in the name of #sicklecell awareness, & to say I’m proud is an understatement!!! Knowing that more people are starting to understand the challenges that those of us with sickle cell face is refreshing ♥️
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SickleCellProdigy retweeted
Ruthie@ruthieruwen19 Jun 2024
Happy world sickle cell day to all the warriors, patient advocates and all affected by SCD. May change come. Be informed, learn and help us raise more awareness about this neglected genetic disease.
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SickleCellProdigy retweeted
Larry Madowo
@LarryMadowo16 Jun 2024
Singer @adekunleGOLD opens up about living with sickle cell disease and how he adapted his lifestyle to stay healthy. About 80% of sickle cell patients are in Africa. Nigeria has the largest population of people living with the condition in the world

Adekunle Gold opens up about life with sickle cell disease

CNN's Larry Madowo speaks to Nigerian singer Adekunle Gold on living with sickle cell disease and his new mission to create awareness

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The 11th Annual Warriors Convention is here, and Scholarships are available. 👗👔We are geared up with exciting announcements that PROM and Homecoming will be back this year! 🔗 👩‍💻 Scholarship sign up: tinyurl.com/2024WarriorConSc… This convention, happening in Atlanta Georgia.
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The SC3 team is excited to hear your suggestions for the upcoming Warriors Convention from July 17th-21st in Atlanta, Georgia. This year’s theme is University-themed, promising a lot of enjoyable moments like prom and homecoming. scholarship: 🔗tinyurl.com/2024WarriorConSc…
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SickleCellProdigy retweeted
UEO Sickle Cell@UEOSickleCell14 Jun 2024
👋🏿 Hey #SickleCell Community! Our Community Check-in Support Call takes a break this Saturday, but we'll be out in the community spreading #SickleCellAwareness! Stay tuned for event updates on our next Support Call!🤗 #sicklecellmidwest #sicklecellsupport #sicklecelladvocacy
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SickleCellProdigy retweeted
SickleCellProdigy@SCProdigy12 Jun 2024
On Wednesday June 12, at 11 AM (PT) we will be live on Instagram to discuss #ThroughTheGenes podcast. Also, every dollar counts towards our producer Abayomi’s hip replacement surgery. 🙏🏾 Donate below 👇🏾 and let’s keep sharing gofund.me/046b42af #SickleCellProdigy
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