29 | Sickle Cell Advocate | @_titooye | #HerSickledJourney
London, England
Joined May 2012
- Tweets2.2K
- Following236
- Followers2K
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The next chapter 👀
Welcome to Our Sickled Journey CIC🩸
A community built to support, educate, advocate and connect people affected by sickle cell.
Because no one should have to navigate this journey alone.
This is just the beginning! 💪🏽
#oursickledjourney #sicklecell #cic
Her Sickled Journey retweeted
so as some of you know sickle cell can be real unpredictable. so I now have one ticket available! Looking for someone with sickle cell who is feeling up for coming to Wireless today! 18-25.
Drop myself or @hersickledj a message. First come, first serve basis. Share pls.
Her Sickled Journey retweeted
Sickle cell disease is a lifelong blood disorder causing severe pain.
Many people like Tito need regular blood transfusions from closely matched donors to help manage symptoms.
Your donation is a lifeline.
Visit blood.co.uk to donate today. 🩸
#WorldSickleCellDay
What do you do if you find out your baby has sickle cell?
Here are some tips for what is often a very stressful time in the life of a family ♥️ #sicklecell #family
Her Sickled Journey retweeted
wow. Haven’t promoted on here. But I brought back my show. But with a twist. Had a talk with some friends @hersickledj @AstarMusicUK @IbeBellah 🥳
"SOME PEOPLE DRINK BATTERY ACID" | Mistar & Mates - The Roundtable Editi... youtu.be/MGTlAq4wbTg?si=VLCZ… via @YouTube
Her Sickled Journey retweeted
She sums it up beautifully!!!!!
My first thoughts on the newly approved NHS treatment for sickle cell 🧬 #sicklecell #exacel #casgevy #genetherapy
My first thoughts on the newly approved NHS treatment for sickle cell 🧬 #sicklecell #exacel #casgevy #genetherapy
Her Sickled Journey retweeted
VOXELOTOR WITHDRAWN FROM NHS. We are deeply shocked and extremely disappointed by Pfizer’s sudden decision to withdraw Voxelotor (OXBRYTA®) from the NHS in the UK, and across the world. We were given no warning. Read our full statement here buff.ly/3N2Ec4E
Swimming is a crucial skill, but with #sicklecell, it’s can easily trigger a crisis & land me in the hospital 😭 Still, I’ve decided to take on the challenge (with great caution) & learn. Wish me luck & drop your tips below! ♥️🙏🏽🏊🏽♀️
#HerSickledJourney #SickleCellAwarenessMonth
Her Sickled Journey retweeted
🚨🩸URGENT. BLOOD NEEDED. PLEASE SHARE 🩸🚨
There is currently a shortage of blood in the UK and people like myself cannot receive our regular treatment because of it. If you can, PLEASE sign up and donate blood!!!
—> blood.co.uk <—
RT 🙏🏾
Her Sickled Journey retweeted
Season 2 is going to be mad!! 🤯 #Supacell2
Sickle cell crisis in people with the trait… #sicklecell #knowyourgenotype
Her Sickled Journey retweeted
10/10 series
As a black girl from south London who has sickle cell, I thought it would be fitting to share my thoughts on #Supacell 👁️👁️
#hersickledjourney #sicklecell #netflix #sicklecellawareness
Her Sickled Journey retweeted
I actually love this perspective.
Would absolutely love to see more people who have sickle cell giving their honest thoughts and feedback on Supacell.
Also because it’s just nice to see the faces of people living with the condition we are advocating for 🥰🤍
As a black girl from south London who has sickle cell, I thought it would be fitting to share my thoughts on #Supacell 👁️👁️
#hersickledjourney #sicklecell #netflix #sicklecellawareness
Her Sickled Journey retweeted
Definitely going to watch Supercell again.
As a black girl from south London who has sickle cell, I thought it would be fitting to share my thoughts on #Supacell 👁️👁️
#hersickledjourney #sicklecell #netflix #sicklecellawareness