The Sickle Cell Disease Association of America (SCDAA) serves as the nation's headquarters for sickle cell disease support and advocacy & the search for a cure.
Baltimore, MD
Joined July 2009
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SCDAA retweeted
Today is the first day of #SickleCellAwarenessMonth!
Everyone always ask me how they can get involved:
🩸 Donate blood & host blood drives
🩸 Donate time (volunteer at sickle cell clinics/orgs)
🩸 Donate money (to the Sickle Cell Disease Association of America, Inc. — National, or a local sickle cell community based organization)
🩸 Join the NMDP registry to donate bone marrow
🩸 Support your friends, family, fraternity/sorority members, church members, classmates, etc who may be living with sickle cell. Sometimes they need help with basic needs.
🩸 Visit sicklecelldisease.org to learn more about sickle cell – at Pflugerville, TX
SCDAA retweeted
The Sickle Cell Disease Association of America Inc. (SCDAA), a national non-profit membership organization that advocates for people affected by sickle cell disease, appointed Akua Okunseinde to its board of directors. Read more here: rarerevolutionmagazine.com/s…
#SickleCell #SickleCellDisease #SCD @SCDAAorg
SCDAA retweeted
ASH looks forward to tuning in to hear @DrAlexisThompsn, Chair of ASH's Sickle Cell Disease (SCD) Task Force, Dr. Edward Donnell Ivy, Chief Medical Officer of @SCDAAorg , and colleagues from @MinorityHealth discuss the importance of comprehensive care for sickle cell disease.
SCDAA retweeted
Today I attended a briefing on sickle cell disease.
But what stayed with me wasn’t policy…
it was the pain people described.
#sicklecell @FulcrumTx @SCDAAorg #sicklecellevents #sicklecelldisease
SCDAA retweeted
Happening tonight! Join @ConquerSCD to celebrate 10 years of Sickle Cell progress with ASH. #ASH25 #ConquerSCD
SCDAA retweeted
🧪 On this #ClinicalTrialsDay, we highlight Dr. Rivlin's CAB study at NYH&H Through hands-on, experiential learning.
Learn more: ow.ly/YbcC50VVKqc
#Hematology #SickleCell #CommunityLedResearch #ClinicalTrials
SCDAA retweeted
Your voice matters!🗳️📢
Voting is a powerful way to stand up for health care equity and ensure all communities, including those impacted by sickle cell disease, are supported. Make your voice heard—get out and vote today!
Together, we can drive change.
SCDAA retweeted
We had an amazing time wrapping up October at the @SCDAAorg’s 52nd Annual Convention, learning about opportunities to advance care and collaboration in #sicklecelldisease and connecting with #sicklecellwarriors. Check out some of our favorite moments below!
SCDAA retweeted
I’m deeply grateful for this year’s Champion Award. I stand on the shoulders of so many and can’t name them all, but thank you for the trust and opportunity to advocate tirelessly for the sickle cell community. 🩸🌙🫶🏾
SCDAA retweeted
We have had an incredible time at the 52nd Annual National Convention! 🎉 This is just a recap of the first half of Day 1—stay tuned for all the exciting updates and inspiring sessions ahead! #SCDAA #52ndAnnualNationalConvention #Recap #sicklecellawareness #strongertogether
SCDAA retweeted
Elodie is a transplant survivor. She discussed having to coordinate her own care and not being able to go back to hwe hematogist because “technically” she no longer has sickle cell disease after receiving a bone marrow transplant. - @SCDAAorg
#sicklecell #sicklecelldisease
SCDAA retweeted
Dr. Rowley, Doris and Janet Frempong at the 52nd Annual National Convention. MOMENRUM: A Journey into a new sickle cell era!
SCDAA retweeted
Watch Fuad El Rassi, MD & Modupe Idowu, MD discuss the latest Sickle Cell Disease #SCD updates from #SCDAAMOMENTUM #SCDAAinATL @SCDAAorg - to participate, visit: bit.ly/2024-SCD-T xitter.cf/i/broadcasts/1ypJdpXkZ…
SCDAA retweeted
One week away! Register for the Sickle Cell Data Collection Summit today. The SCDC state programs will showcase their work and highlight how their data are being used to impact the sickle cell community in their state. Register: bit.ly/4ddJoxi #SickleCell
ALT Promotional graphic for the Sickle Cell Data Collection (SCDC) Summit on Monday, October 28 at 10:00 AM ET. U.S. map with 16 SCDC funded states shaded red. SCDC and CDC logo.
SCDAA retweeted
Excitement is building as we prepare to attend @SCDAAorg Annual National Convention next week in Atlanta, GA. We're eager to connect and learn with everyone in attendance! Let us know in the comments how we can connect with you while there.
SCDAA retweeted
The #SickleCellDisease Association of America Inc. @SCDAAorg, will hold its 52nd annual national convention Wednesday, Oct. 23 through Saturday, Oct. 26 in Atlanta, Georgia!
This four-day multidisciplinary convention will follow the theme, “Momentum: A Journey into a New #SickleCell Era.” Register here: sicklecelldisease.org/get-in…
SCDAA retweeted
The #SickleCellDisease Association of America Inc. @SCDAAorg, will hold its 52nd annual national convention Wednesday, Oct. 23 through Saturday, Oct. 26 in Atlanta, Georgia!
This four-day multidisciplinary convention will follow the theme, “Momentum: A Journey into a New #SickleCell Era.” Register here: sicklecelldisease.org/get-in…
SCDAA retweeted
Discover the latest advancements in sickle cell research and treatment at the 52nd annual Sickle Cell Convention in Atlanta. Read more here: rarerevolutionmagazine.com/s…
@SCDAAorg
