Previously Coordinated Ipswich & Colchester Support Group and now Ataxia UK Volunteer

Ipswich, Suffolk, UK
Joined September 2012
Include

Only show posts containing:

Exclude

Hide posts containing:

Time range
-
Minimum likes
Patricia Riggs retweeted
Her face when she saw clearly with glasses for the first time.
67
262
16
6,274
228,865
Patricia Riggs retweeted
With children heading back to school this week, it can be tricky deciding whether or not to keep your child at home if they are feeling unwell. If you're unsure, see our advice on when a child should be kept at home. ➡️ nhs.uk/live-well/is-my-child…
9
30
35
21,575
Patricia Riggs retweeted
A 14-year-old girl who had been reported missing has been located. Jessica had gone missing from Saxmundham. Police would like to thank members of the public for their support.
2
12
32
6,706
On this #Motivational_Monday we want to remind you that your rare disease does not have to ruin your future 💙 #Ataxia #Awareness #RareDisease #StrongerTogether #PatientsHelpingPatients #Disability #DNA
3
3
112
Patricia Riggs@RiggsPatsyAug 31
Replying to @NerissaWilliams
Wordle 1,899 5/6 🟨⬛⬛⬛🟨 ⬛⬛⬛🟩🟩 ⬛🟩🟩🟩🟩 ⬛🟩🟩🟩🟩 🟩🟩🟩🟩🟩
81
Patricia Riggs retweeted
What does the first day of meteorological autumn have in store? 🍂 Here is our latest 4cast with all the details ⤵️
2
16
93
29,369
Have you every experienced issues with travel due to disability? Tell us your experiences with taxis, buses, trains, ect. in the comments. #Ataxia #Awareness #RareDisease #StrongerTogether #PatientsHelpingPatients #Disability #Charity
3
1
93
Patricia Riggs retweeted
GCSE results are just one moment in your journey – they don’t define you or your future. If someone you know has received their results today, check in and see how they’re feeling. Your support could make a real difference 💙 Find out more ➡️ nhs.uk/mental-health/childre…
9
64
74
20,347
IntraBio Inc. has announced a Phase III trial of N-acetyl-L-leucine for CACNA1A-related disorders, including SCA6 and EA2. The multinational study is not yet recruiting. Enrollment will focus on patients already receiving care at selected trial sites. ataxia.org/pharma
5
5
274
Patricia Riggs@RiggsPatsyAug 20
Replying to @NerissaWilliams
Wordle 1,888 6/6 ⬛⬛🟨⬛⬛ ⬛🟩⬛⬛🟨 ⬛🟩🟨⬛⬛ ⬛🟩⬛🟩🟩 ⬛🟩⬛🟩🟩 🟩🟩🟩🟩🟩
12
Patricia Riggs retweeted
Don't forget a layer if you're heading out tonight 🌙 Clear skies and cooler northerly air will bring a notably chilly night, especially in the north where temperatures may fall into the low single figures 🥶
12
26
5
150
33,870
EXCLUSIVE: Ataxia Aware chats to Dr Roy Sillitoe of the cerebellum science center You can read our full chat here: ataxia-aware.org/storiesande… #Ataxia #Awareness #RareDisease #PatientsHelpingPatients #StrongerTogether #Disabled #Health
2
3
98
Patricia Riggs retweeted
🏴󠁧󠁢󠁳󠁣󠁴󠁿☀️ The King has arrived at Balmoral for the summer. Welcomed by a Guard of Honour formed by The Royal Regiment of Scotland, His Majesty also met Corporal Cruachan IV, the Shetland Pony mascot of the Regiment.
210
394
39
5,429
210,414
Patricia Riggs retweeted
'We needed to bring to the attention of the public the kind of risks we are facing' Phil Garrigan, chair of the National Fire Chief’s Council, told #BBCBreakfast why they wanted a national government alert warning people not to light anything that could spark a wildfire bbc.co.uk/news/live/crjejgz5…
117
110
10
347
41,913
During, this week, we support the #RareDisease #Dazzle4Rare community, at @Ataxia_aware #Ataxia #charity Wales We are a #Patient focused #charity based in #Wales with a #Global impact #Patients helping patients #StrongerTogether ataxia-aware.org
4
3
96
Patricia Riggs@RiggsPatsyAug 16
Replying to @NerissaWilliams
Wordle 1,884 4/6 ⬜⬜⬜⬜⬜ 🟨⬜🟨⬜⬜ ⬜🟨🟨⬜🟨 🟩🟩🟩🟩🟩
21
Patricia Riggs@RiggsPatsyAug 16
#Nectar why can't I log in this morning?!
2
18
Patricia Riggs@RiggsPatsyAug 5
Replying to @ElonBeyondX
No
8
Thank you very much to Kate for sharing your story. It is truly important to talk about the mental health side of having ataxia 💙 You can read Kate's story here: ataxia-and-me.org/stories-at… #Ataxia #Awareness #RareDisease #StrongerTogether #PatientsHelpingPatients
3
1
87