Previously Coordinated Ipswich & Colchester Support Group and now Ataxia UK Volunteer

Ipswich, Suffolk, UK
Joined September 2012
Patricia Riggs retweeted
Her face when she saw clearly with glasses for the first time.
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Patricia Riggs retweeted
With children heading back to school this week, it can be tricky deciding whether or not to keep your child at home if they are feeling unwell. If you're unsure, see our advice on when a child should be kept at home. ➡️ nhs.uk/live-well/is-my-child…
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Patricia Riggs retweeted
A 14-year-old girl who had been reported missing has been located. Jessica had gone missing from Saxmundham. Police would like to thank members of the public for their support.
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On this #Motivational_Monday we want to remind you that your rare disease does not have to ruin your future 💙 #Ataxia #Awareness #RareDisease #StrongerTogether #PatientsHelpingPatients #Disability #DNA
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Patricia Riggs retweeted
What does the first day of meteorological autumn have in store? 🍂 Here is our latest 4cast with all the details ⤵️
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Have you every experienced issues with travel due to disability? Tell us your experiences with taxis, buses, trains, ect. in the comments. #Ataxia #Awareness #RareDisease #StrongerTogether #PatientsHelpingPatients #Disability #Charity
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Patricia Riggs retweeted
GCSE results are just one moment in your journey – they don’t define you or your future. If someone you know has received their results today, check in and see how they’re feeling. Your support could make a real difference 💙 Find out more ➡️ nhs.uk/mental-health/childre…
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IntraBio Inc. has announced a Phase III trial of N-acetyl-L-leucine for CACNA1A-related disorders, including SCA6 and EA2. The multinational study is not yet recruiting. Enrollment will focus on patients already receiving care at selected trial sites. ataxia.org/pharma
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Patricia Riggs retweeted
Don't forget a layer if you're heading out tonight 🌙 Clear skies and cooler northerly air will bring a notably chilly night, especially in the north where temperatures may fall into the low single figures 🥶
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EXCLUSIVE: Ataxia Aware chats to Dr Roy Sillitoe of the cerebellum science center You can read our full chat here: ataxia-aware.org/storiesande… #Ataxia #Awareness #RareDisease #PatientsHelpingPatients #StrongerTogether #Disabled #Health
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Patricia Riggs retweeted
🏴󠁧󠁢󠁳󠁣󠁴󠁿☀️ The King has arrived at Balmoral for the summer. Welcomed by a Guard of Honour formed by The Royal Regiment of Scotland, His Majesty also met Corporal Cruachan IV, the Shetland Pony mascot of the Regiment.
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Patricia Riggs retweeted
'We needed to bring to the attention of the public the kind of risks we are facing' Phil Garrigan, chair of the National Fire Chief’s Council, told #BBCBreakfast why they wanted a national government alert warning people not to light anything that could spark a wildfire bbc.co.uk/news/live/crjejgz5…
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During, this week, we support the #RareDisease #Dazzle4Rare community, at @Ataxia_aware #Ataxia #charity Wales We are a #Patient focused #charity based in #Wales with a #Global impact #Patients helping patients #StrongerTogether ataxia-aware.org
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Thank you very much to Kate for sharing your story. It is truly important to talk about the mental health side of having ataxia 💙 You can read Kate's story here: ataxia-and-me.org/stories-at… #Ataxia #Awareness #RareDisease #StrongerTogether #PatientsHelpingPatients
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Patricia Riggs retweeted
The latest satellite and radar shows the showery outbreaks of rain that are moving in across the UK from the north and west 🌧️
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Never forget just how brave you are, because you are extraordinary on this #Motivational_Monday 💙 #Ataxia #Awareness #RareDisease #StrongerTogether #PatientsHelpingPatients #Disabled
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Patricia Riggs retweeted
Prince George, Princess Charlotte and Prince Louis of Wales today 🤍
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Patricia Riggs retweeted
Please be aware of a significant wildfire that started on Dunwich Heath. Local residents are advised to follow advice from @SuffolkFire to keep all doors & windows closed. Please avoid the area to allow emergency services to carry out their essential work safely & effectively
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Diary marker 2nd week of August We will be supporting the #RareDisease #Dazzle4Rare community at @Ataxia_aware #Ataxia #charity Wales Are you aware ? that #DNA is the code for #Life #StrongerTogether @Dazzle4Rare
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