Huge news! @US_FDA approved #Takeda's ORZEYFUL (oveporexton) today, making it the first #orexin agonist approved for adults living w/ #narcolepsy type 1 in the US. The approval marks a significant advancement in neuroscience and #sleep medicine project-sleep.com/orzeyful-f…
☕️ Join us THIS Sunday, July 12 at 3 p.m. ET for our next Coffee with Emma! This FREE monthly Zoom call is a relaxed space to share what’s on your mind, hear from others living with #sleepapnea, and feel a little less alone on the journey. Register today: projectsleep.salsalabs.org/c…
🎸 Wow, JACK BLACK @jackblack is rocking #sleepapnea awareness by joining our #SleepApneaLetsFaceIt campaign today! Thank you, Jack Black for elevating our efforts to new heights! Learn more and join us in flipping the script on sleep apnea stigma: project-sleep.com/sleep-apne…
Can inaccurate TV portrayals actually delay diagnosis? Our community’s story just hit national news. @FastCompany published a major piece on @NBC's portrayal of #narcolepsy in #Stumble: fastcompany.com/91446176/stu…
9 signers away from reaching our goal of 2000! Please take a second to sign our petition, it’s only the second time in 15 years I’ve felt a situation needed this tactic. Join us because stories matter. Accuracy matters. Thank you for sharing! c.org/NcZ5Lwwwps
What if your medical condition was the punchline? 📣Today, #narcolepsy advocate & writer Lindsay Scola shares in a Los Angeles Times @latimes Letter to the Editor regarding #Stumble @nbc review: latimes.com/opinion/letters-…
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Attention to all #SleepPeeps
Mockumentary mocks disability community? Last night, #Stumble premiered on NBC & Peacock with a prominent, inaccurate portrayal of #narcolepsy. URGENT: please sign our petition asking NBC to reduce misunderstanding instead of reinforcing tired stereotypes: c.org/P64B9D55H6
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Can we reach 1000 signers in 48 hours? Please sign this petition to show Hollywood that the #narcolepsy community is strong and deeply concerned about inaccurate portrayals of this serious neurological condition. Thank you for your support.
SIGN AND SHARE: c.org/P64B9D55H6
Mockumentary mocks disability community? Last night, #Stumble premiered on NBC & Peacock with a prominent, inaccurate portrayal of #narcolepsy. URGENT: please sign our petition asking NBC to reduce misunderstanding instead of reinforcing tired stereotypes: c.org/P64B9D55H6
September 22, 2025, marks the 7th annual #WorldNarcolepsyDay, a day dedicated to raising awareness about narcolepsy on a global scale.
🏅 Today, we honor the incredible #narcolepsy community. Learn more: project-sleep.com/world-narc…
Thank you for sharing your experience, Lauryn. You are an amazing person, community leaders, speaker, and advocate. We are so grateful to have you in our world.
HAPPY #WorldNarcolepsyDay ! 🥳
I'm diagnosed with sleepy bitch disease, Idiopathic Hypersomnia! It causes me to sleep around 10+ hours daily. Combined with sleep inertia, memory issues, etc. it makes for a fun condition 😂😭
#sleep #SleepPeeps #hypersomnia #sleepdisorders
This is amazing, thank you for all you do for people with #narcolepsy and this community, @NarcolepsyNtwrk!! #WorldNarcolepsyDay
🌍🖤 On #WorldNarcolepsyDay, we’re thrilled to share another piece of our Virtual Quilt Project!
Quilts are a way to weave together collective experiences. This virtual version continues our in-person tradition, where attendees create quilt squares sharing a thought or image.
Thank you for supporting your daughter and your sister's experiences with #narcolepsy. Supporters like you mean the WORLD to us! #WorldNarcolepsyDay
Happy #worldnarcolepsyday everyone! My daughter & my sister both live with Narcolepsy with Cataplexy. Organizations like @project_sleep are helping raise awareness for this debilitating sleep disorder. Learn more on their website or reach out to me!
Thank you for your incredible support!! We are so grateful for the Harmony DREAM TEAM!
Each year on #WorldNarcolepsyDay, our team supports the international #narcolepsy community in inspiring action, increasing public knowledge, and elevating the voices of the 3 million people living with this #raredisease worldwide.
This year, we celebrated the narcolepsy community by wearing @project_sleep World Narcolepsy Day t-shirts!
Learn more about our commitment to Sleep/Wake disorders here: bit.ly/428O0SS
#WorldNarcolepsyDay
#NarcolepsyAwareness
#SleepDisorders
#SleepDisorder
#RareDiseases
#EmpathyAndInnovation
#PatientAdvocacy
Happy #WorldNarcolepsyDay today 9/22! We are so grateful for an amazing community of people living with #narcolepsy, supporters, scientists, doctors, and industry partners—we can break down barriers together! Get involved: project-sleep.com/world-narc…
Reflecting on an amazing #WorldSleep2025 in Singapore! 🌏 Over 4,000 researchers & clinicians gathered — and we were thrilled to share patient voices + witness historic #narcolepsy orexin agonist trial results from @TakedaPharma & @Alkermes. The future of sleep is bright!💙
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🌍 World Narcolepsy Day is one week away! Find out how you can get involved with @project_sleep to create positive change for those affected by #narcolepsy.
#WorldNarcolepsyDay
Project Sleep retweeted
🌍 World Narcolepsy Day is one month away. Find out how you can get involved with @project_sleep and help make a difference for those impacted by the condition! #WorldNarcolepsyDay
Project Sleep retweeted
🇸🇬 Singapore!! #WorldSleep2025 @worldsleepsociety kicked off Saturday. Grateful to share my OG #narcolepsy presentation during a fantastic course and to represent @project_sleep. See our involvement: project-sleep.com/world-slee…
Project Sleep retweeted
Beyond honored to present at #sleep2025 about brain fog and cognitive issues in people with #narcolepsy and #idiopathichypersomnia! Thank you Dr. Kiran Maski for the opportunity to! Thank you @AASMorg & @ResearchSleep for including patient voices and patient advocacy orgs!































