Empowering families to start a convo about family health history; Sharing news, wellness tips, support, and positivity for those at risk for hereditary cancer

Joined March 2018
Proactive Genes retweeted
Join us Thursday for an exclusive event at @AnaOnoIntimates headquarters in Philadelphia, which includes a panel of experts discussing sexual health & intimacy after surgery, plus a shop & fit event supporting young investigators at the Basser Center. alumni.upenn.edu/s/1587/gid2…
Excellent interview of @EllenMatloff by @GreyGenetics discussing ACMG's lack of support for #HR3235 . Listen below! #GCChat #GeneticCounselors #GeneticCounseling #Genetics #Podcast @elo81
Happy Monday! We have a brand new episode on Genotypecast today with @EllenMatloff discussing the @TheACMG's lack of support for #HR3235. You can listen to the new episode now: anchor.fm/genotypecast/episo… #gcchat #geneticcounselor #genetics #podcast
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And yet 95% of people carrying a Lynch mutation are unaware! ☹️
Lynch Syndrome is more common than hereditary breast cancer 😳 Sara Pirzadeh-Miller speaking at #WhatsNewinGI2020 @UTSWNews
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Proactive Genes retweeted
Let's ban together to get #HR3235 passed. There is power in a large, uniform presence. I created this graphic & together w/ @katiesagaser @EllenMatloff + other GCs, made HR3235.com. Please poke around, comment, share, retweet, etc #ISupportHr3235 #gcchat
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When an individual becomes a patient to a genetic counselor, so does their entire family. NSGC President @gillianhoo discusses with @MarketWatch how or if you should deliver difficult findings to family members: on.mktw.net/2QkaH1C #GCChat
"When parents share their children’s DNA on these sites, they are effectively sharing it with the world, including with the government and law enforcement investigators," writes @nilabala3 nyti.ms/2QHEyjB
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Your family members share with you more than just the same color eyes or the same kind of hair. When it comes to #BreastCancer, you’ll want to be aware of your family history. #bcsm bit.ly/37v0ipK
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#BreastCancer survivor Shannen Doherty is on a mission to encourage women to get their screening #Mammograms. #bcsm bit.ly/2PyktvI
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"Along the way, the experience taught Emma and Cora empathy. My daughters, without knowing it, had become little advocates for people with the illness." #bcsm bit.ly/36pm9hW
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Proactive Genes retweeted
Are you preparing to discuss a family BRCA mutation with your child or #children?  With support & guidance from #parents who have been there,  this resource will help make the conversation as comfortable as possible. #HBOC #HereditaryCancer #GeneticTesting ow.ly/XmUe50xqw5K
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"Today's news marks a significant advancement in how we can treat BRCA-mutated ovarian cancer in Scotland". Marie-Claire Platt, our Head of Research and Public Affairs, describing the Olaparib news today > bbc.co.uk/news/uk-scotland-5…
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Proactive Genes retweeted
“But much of this realm of consumer DNA testing, as the [U.S. Government Accountability Office (GAO)] report showed, can uncharitably be described as complete bulls**t.” Speaking w/ a #geneticcounselor can help you to understand your genetic #risk ow.ly/q9Y950xrNMx
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Proactive Genes retweeted
🦋🦋NEW BLOG ALERT 🦋🦋 When a Nightmare Becomes Reality  If you had more knowledge about certain circumstance you would prepare yourself or even avoid those things before anything happens. 2019 has been a long year… instagram.com/p/B5ps7fSAhms/…
Proactive Genes retweeted
#Repost @proactivegenes (with report.for.insta) ... We are on a mission to encourage families to start a conversation with their children about #familyhealthhistory so that they can become proactive about their… instagram.com/p/B5Xy4VHAF5x/…
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Proactive Genes retweeted
Did you know having your #familyhistory evaluated for #Lynchsyndrome could alter medical management and potentially save your life? Check out our #FactFriday to learn more! #hereditarycancer #colorectalcancer #ovariancancer #cancerprevention #stomachcancer #endometrialcancer
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Join #BRCAStrong (@Tracy67462263) TONIGHT at 8:00 PM EST for a webinar on #Facebook with Certified Genetic Counselor Ellen Matloff, CEO @MyGeneCounsel! facebook.com/BRCAStrongNonPr… #BRCA #previvor #survivor
Proactive Genes retweeted
Are you preparing to discuss a family BRCA mutation with your child or children?  With support and guidance from parents who have been there,  this resource will help make the conversation as comfortable as possible. #HBOC #HereditaryCancer #Genetics ow.ly/20FT50wWwoW
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I was very surprised to hear that when @npealicia tried to update her #familyhealthhistory with her doctor - he refused to accept that her paternal #familyhistory was different than she had reported in the past. 🤷🏻‍♀️ #GCChat @GCBrianne #DNASurprise #notparentexpected
For #NationalFamilyHistoryMonth our episode today delves into the complicated nature of family history. @npealicia shares how her #notparentexpected status has changed her life. greygenetics.com/not-parent-… #DNAnpe #DNAsurprise #DNAtest #paternity #geneticgenealogy
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Proactive Genes retweeted
#FactFriday–It's November and Family Health History Month! How well do you know your family health history? Check out this week's facts to find out why your family health history is so important! #familyhealthhistory #november
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