@Patch1Purple

Living with ITP & Fibromyalgia. Author of My Purple Patch - Living with ITP. Lover of sport, music, threads, gardening, nature, reading & writing.

 England, United Kingdom
substack.com/@anthonyph
Joined August 2016
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  • Followers412
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My take on the woe is me faux Royal Tour to Australia by Harry and Meghanhttps://open.substack.com/pub/anthonyph/p/a-spoonful-of-sugar-doesnt-always?utm_campaign=post-expanded-share&utm_medium=web
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Anthony Heard@AnthonyH7Apr 15
37 years ago 97 people were killed unlawfully at Hillsborough. Warning signs were there in 1981 as I witnessed terrible overcrowding & chaos. Here’s my tribute to those 97 people who lost there lives. May they rest in peace. open.substack.com/pub/anthon… @LFC @NFFC @SpursOfficial
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BBC Breakfast
@BBCBreakfastApr 14
'The demand for it is huge... There isn't anything like this in the North East' Former England and Newcastle United striker Alan Shearer told #BBCBreakfast about the next ambition for the Centre he created 20 years ago to help people with complex disabilities and their families bbc.co.uk/news/articles/clyq…
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Princess, The Tower@APainPrincessApr 13
“The idea that ‘you will never recover’ is foreign to most people. When illness or pain wrecks you, you know that it will pass. This knowledge grants you some strength and comfort. But #chronicpain has no beginning or end.” buff.ly/3PmfkDQ @AChVoice #chronicillness
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SOUND AND VISION - My favourite music, books and TV from Q1 2026 including the new RAYE album just released - open.substack.com/pub/anthon…
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Dr Rangan Chatterjee
@drchatterjeeukApr 2
Do you snore… or live with someone who does? It’s not something most of us think about but it could be quietly impacting how we feel during the day. Energy, focus, mood and even how stressed we feel. In this weeks new episode of my 'Feel Better, Live More' podcast, James Nestor (@MrJamesNestor) shares why nighttime breathing might be one of the most overlooked pieces of our health, with over 60% of adults breathing through their mouths at night. Sometimes, the signs are subtle. Feeling tired despite a full night in bed. Waking up groggy or being told you snore (even if you don’t quite believe it!). This conversation is a powerful reminder that small, foundational habits can have a much bigger impact than we realise. You can listen to our full conversation on how to change the way you breathe in episode 644 of my 'Feel Better, Live More' podcast.
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Dale Rockell@DaleRockellApr 1
In this wks #blog post, #photography from a rare #sunny February day after a very wet start to 2026, and the dichotomy of #psychological wellbeing vs how #Fibromyalgia makes you feel.🤔 #fibrolife #menwithfibro #photographer #spoonie #chronicillness fibroandphotos.wordpress.com…
A white Scottish Terrier peaks his head out of his owners blue barge on the Grand Union Canal. Photography by Dale Rockell.

ALT A white Scottish Terrier peaks his head out of his owners blue barge on the Grand Union Canal. Photography by Dale Rockell.

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My take on the new blockbuster book by Tom Bower - REVENGE WAS VERY GOOD, BETRAYAL IS EVEN BETTER open.substack.com/pub/anthon… #TomBower #Betrayal #Revenge
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Dale Rockell@DaleRockellMar 4
In this week's post I share that despite knowing how to manage our #Fibro & #centralsensitivity symptoms, the unexpected will push you into a flare up. #fibromyalgia #spoonie #fibrolife #chronicillness #menwithfibro fibroandphotos.wordpress.com…
A set of old, worn our jump leads well past their useful life. Photography by Dale Rockell

ALT A set of old, worn our jump leads well past their useful life. Photography by Dale Rockell

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My take on why Rare Disease Day is so important - open.substack.com/pub/anthon… @GeneticAll_UK @rarediseaseapps @RareRevolutionM @RareDiseases @eurordis @rarediseaseday @rarepatientvoic @ITPSupportAssoc #RareDiseaseDay #ITPAware
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AN IMPORTANT RARE PLATFORM ANNOUNCEMENT - A FREE NEW SUITE of APPs for anyone rare or caring for rare check out the story of how it came about open.substack.com/pub/anthon… @GeneticAll_UK @rarediseaseapps @rarediseaseday @NoInvisibles @RareRevolutionM @ITPSupportAssoc #RareDiseaseDay
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Great and proud to attend the #RareDiseaseDay Parliamentary reception in #CardiffBay, last night #Networking, #Ataxia awareness and meeting #RareDisease colleagues and friends #Equity for #Rare #health conditions
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Princess, The Tower@APainPrincessFeb 25
“You don't always have to pretend to be strong, there is no need to prove all the time that everything is going well, you shouldn't be concerned about what other people are thinking. Cry if you need to, it's good to cry out all your tears…” ~ Paulo Coelho #MentalHealthMatters
A background of white feathers and a tear or sphere of water, with the words: “You don't always have to pretend to be strong. There is no need to prove all the time that everything is going well, you shouldn't be concerned about what other people are thinking. Cry if you need to, it's good to cry out all your tears, because only then you will be, able to smile again…” ~ Paulo Coelho

ALT A background of white feathers and a tear or sphere of water, with the words: “You don't always have to pretend to be strong. There is no need to prove all the time that everything is going well, you shouldn't be concerned about what other people are thinking. Cry if you need to, it's good to cry out all your tears, because only then you will be, able to smile again…” ~ Paulo Coelho

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Genetic Alliance UK@GeneticAll_UKFeb 26
Last night the community united in Wales for #RDD2026 to celebrate progress, listen to powerful and inspiring voices, and champion equity for rare conditions. Find our new RDD2026 publications on our RDD 2026 web page 👉 ow.ly/FtOy50YmsOP #Rarequity #RareDiseaseDay2026
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Genetic Alliance UK@GeneticAll_UKFeb 27
For #RareDiseaseDay2026, the University of Edinburgh's Institute of Genetics and Cancer is hosting 'AI and Rare Disease: Discovering the Missing Pieces' hybrid (online/in person) event from 17:30 on Wednesday 4 March 2026. Register your place: ow.ly/O6G850Ymvyx
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Ros@ros_tinklerFeb 25
💜 #Fibromyalgia #MECFS #PTSD #LongCovid #Spoonies #ChronicPain #MentalHealth #Disability #InvisibleIllness
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rarediseaseapps@rarediseaseappsFeb 25
Two sneak peeks at switching between multiple related genes, live now for testing but not unlocked yet in public UI SGCA/B/D/G exoneditor.com?gene=sgca%2Cs… OCA1/2/3/4 exoneditor.com?gene=oca1%2Co… #raredisease #RareDiseaseDay #exon
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Dale Rockell@DaleRockellFeb 27
Just added my #inlinkz link: http://fibroandphotos.wordpress.com… here: fibrobloggerdirectory.com/ via @inlinkz #Fibromyalgia #photography #spoonie #menwithfibro #fibrolife

Anything Can Be A Photograph

Atter six years of Fibro life I need to look at ways of keeping motivated with my photography.

fibroandphotos.wordpress.com
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Genetic Alliance UK@GeneticAll_UKFeb 26
LAUNCHING TODAY: Our new information sheets help to explain inequity in the context of rare conditions. Download and share them today: ow.ly/lSyI50YmtLu #RareDiseaseDay2026 #RDD2026 #Rarequity
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Genetic Alliance UK@GeneticAll_UKFeb 26
In the lead up to #RareDiseaseDay2026 we’re proud to share a powerful guest blog from Dr Huw Miles, as he reflects on what it means to receive a rare diagnosis, the emotional impact on families, and why fairness and equity in rare condition care matters: ow.ly/M5ml50YmlJP
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