We provide information, help and support to sufferers of Pernicious Anaemia (PA), and strive to improve current and future diagnosis and treatment of PA.
Bridgend
Joined March 2010
- Tweets525
- Following1.5K
- Followers2.6K
- Likes84
Pernicious Anaemia Society retweeted
Today is England’s first ever #HelplinesAwarenessDay by @HelplinesUK
Martyn Hooper's Pernicious Anaemia Society helpline is an amazing resource for those struggling with the condition to talk to experienced professionals for advice
bit.ly/3lwgEdX
Pernicious Anaemia Society retweeted
Do you live with a long-term health condition and pay for your prescriptions?
Can you spare 10 minutes to complete our survey and share your experience with us?
Open until 26 Feb 👉🏻 prksn.uk/3GOHF4y
Pernicious Anaemia Society retweeted
New from @Nutristasis and collaborators: Age- and ethnicity-related reference intervals for serum vitamin B12 sciencedirect.com/science/ar… @Synnovis @SYNLAB_UK #B12D @PASOC
Pernicious Anaemia Society retweeted
SPEAKERS CONFIRMED! 🗣️
We are pleased to announce that Mr P. Julian Owen @CUH_NHS and Martyn Hooper MBE @PASOC will be presenting at our upcoming NHS Patient Safety Conference on November 1st at 15 Hatfields, London!
Get your tickets here... 👇
ow.ly/NOpG50L9eta
Pernicious Anaemia Society retweeted
Scientists from around the world with expertise in #food, #nutrition, medicine, and health have formed a vitamin B12 research discussion group called cluB-12 to raise awareness of B12 deficiency and how it can be addressed.
#Veganuary @VitaminB12Lab
buff.ly/3FIfvVR
Pernicious Anaemia Society retweeted
Martyn Hooper MBE is Executive Chair of @PASOC - C4PC's newest partner. He told us his story of living with Pernicious Anaemia, which he describes as a largely 'forgotten disease' with significant problems in diagnosis and treatment. #livedexperience coalitionforpersonalisedcare…
Pernicious Anaemia Society retweeted
Pernicious Anaemia: The Hardest Part Comes After Diagnosis psychreg.org/pernicious-anae… @BWRTInstitute @JulieBurkeWatts
Pernicious Anaemia Society retweeted
Pernicious Anaemia and the Pain from the Misunderstandings of Others psychreg.org/pernicious-anae… @BWRTInstitute @JulieBurkeWatts
Pernicious Anaemia Society retweeted
What questions do you have about Pernicious Anaemia? #HaveYourSayOnPA survey with @LindAlliance @PASOC Take part at: bit.ly/PA-JLA-Survey
Pernicious Anaemia Society retweeted
Are you a healthcare provider for people with #PerniciousAnaemia? Have your say in shaping the future of Pernicious Anaemia research. Take part at: bit.ly/PA-JLA-Survey
Pernicious Anaemia Society retweeted
Join us! Become part of a society that is actively campaigning to change how #PerniciousAnaemia is diagnosed and treated. The more of us there are, the stronger our voice is! bit.ly/3r2yuCn
Pernicious Anaemia Society retweeted
Help us help you to change the diagnosis and treatment of Pernicious Anaemia.
bit.ly/37N7gZK
Pernicious Anaemia Society retweeted
This paper is now available online and is open access . I'm glad that we have been able to highlight the experiences of PA patients during the pandemic @PASOC journals.sagepub.com/doi/10.…
Pernicious Anaemia Society retweeted
Medical Hypotheses:
sciencedirect.com/science/ar…
"Considerable morbidity attributed to ‘long-COVID’ #LongCovid an increasingly recognized complication of infection. Its diverse symptoms reminiscent of vitamin B12 deficiency, a condition in which methylation status is compromised."
1/3
Pernicious Anaemia Society retweeted
My recently published paper outlines how so many people with vitamin B12 deficiency #B12d feel invisible, stigmatised, and not listened to in health professional interactions. Paper and link to the full gallery here: tinyurl.com/yxcglkxj tinyurl.com/yxrtkfdg
@B12info @PASOC
Pernicious Anaemia Society retweeted
We're now 4 weeks into our #Walkathon challenge for @PASOC, our charity of the year. 3 of our team are walking the equivalent Ebbw Vale to York - from our office to our furthest UK client (231 miles)
Check out how they're doing and show your support 👇
roseblade.media/community#wa…
Pernicious Anaemia Society retweeted
Our team takes on a 500,000 walkathon challenge in under a week, to help raise funds for @PASOC.
Find out more, track our team's progress and show your support on our new community page
#Community #Charity #Fundraising #Support #CharityOfTheYear
roseblade.media/community?ut…
Pernicious Anaemia Society retweeted
Wales to roll out once-a-month injection for recovering heroin addicts to help protect NHS staff wrexham.com/news/wales-to-ro…. Yet patients are struggling to get B12 injections. ?
Pernicious Anaemia Society retweeted
Pleased to help facilitate a meeting today between our local @PASOC members and clinicians with @WelshGovernment & Chief Medical Officer to put the case for better diagnosis and treatment for #perniciousanaemia right across the UK.