New NHP Account 2022. A network providing strategic leadership, oversight & clinical decision-making for haemoglobinopathy patients. Chair: @PdbInusa
Joined May 2022
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Hello Twitterverse... This is our new home (no longer @PanelNational). Still the same NHP. Still championing the cause of haemoglobinopathy care. Let's talk, work and make things better! #NHP #NHS #NationalHaemoglobinopathyPanel #SickleCellDisease #Thallasaemia #RareAnaemias
UK National Haemoglobinopathy Panel retweeted
Today is #WorldSickleCellDay 🌍🩸
Let's #ShineTheLightOnSickleCell to increase public awareness and improve the lives of patients and their caregivers.
Explore our dedicated #SickleCellDisease channel for the latest updates:
👉 ow.ly/vhmZ50VZ0rk 👈
#Hematology #SickleCell
The NHP is grateful to all our clinical & science colleagues, SCD Champions, patient groups, family/guardians, carers, HCCs, SHTs, LHTs, and other stakeholders who work to make this community stronger. #worldsicklecellday #SCDDay2026 #sicklecelldisorder #sicklcelldisease #nhp
It’s world sickle day 2026 and we continue looking at haemoglobinopathies through the lens of transfusions-vital in management of sickle cell disorder (SCD).
#worldsicklecellday #SCDDay2026 #sicklecelldisorder #sicklcelldisease #nhp
This lifeline is not without complications.
We need more blood donations from the Afro-Caribbean population to facilitate diverse matches.
We are grateful for the blood group genotyping work being carried out by NHSBT with NHS England.
#worldsicklecellday #sicklecelldisorder #SCD
It’s world sickle day 2026 and we continue looking at haemoglobinopathies through the lens of transfusions-vital in management of sickle cell disorder (SCD).
#worldsicklecellday #SCDDay2026 #sicklecelldisorder #sicklcelldisease #nhp
It’s world sickle day 2026 and we continue looking at haemoglobinopathies through the lens of transfusions-vital in management of sickle cell disorder (SCD).
#worldsicklecellday #SCDDay2026 #sicklecelldisorder #sicklcelldisease #nhp
UK National Haemoglobinopathy Panel retweeted
Cervical cancer deaths fall to zero in young women given vaccine bbc.in/4ovjOLq
UK National Haemoglobinopathy Panel retweeted
A new study shows HPV vaccination in England has led to the number of deaths from cervical cancer falling to zero in vaccinated women under 25.
Please encourage all eligible children to get vaccinated.
thelancet.com/journals/lance…
UK National Haemoglobinopathy Panel retweeted
Today is #WorldSickleCellDay.
Over 400,000 babies are born with #SickleCellDisease in sub-Saharan #Africa every year.
Greater awareness, genetic counselling, early diagnosis and access to comprehensive care are essential to reducing the burden of sickle cell disease and improving health outcomes across the Region.
Learn more about sickle cell disease; who.int/news-room/fact-sheet…
UK National Haemoglobinopathy Panel retweeted
Tomorrow is #WorldSickleCellDay.
More than 73% of the 7.74 million people living with sickle cell disease worldwide live in Africa.
Increased awareness, early diagnosis and access to quality care are essential to reducing the burden of #SickleCellDisease and improving health outcomes across the Region.
Learn more about sickle cell disease; who.int/news-room/fact-sheet…
UK National Haemoglobinopathy Panel retweeted
Closely matched blood provides the best treatment for people with sickle cell.
As the condition predominately affects people of Black African & Black Caribbean heritage, every new donor from these communities could transform care.
➡️ ow.ly/Xwar50Z6eeo
#WorldSickleCellDay
ALT Map of the UK formed by multiple grey silhouettes representing people, with a few highlighted red. Text reads: 'Sickle cell is the UK's fastest growing genetic disorder. Around 17,500 people in the UK have the condition.'
ALT Illustration of four adults of Black heritage, with text saying: 'Sickle cell is more common in people of Black heritage and blood from donors of the same ethnicity provides the best treatment.'
UK National Haemoglobinopathy Panel retweeted
Today is World Sickle Cell Day. Let’s come together to drive Awareness, Action, and Access for everyone affected by sickle cell disease. Together, we can build a sickle cell-free future. #WorldSickleCellDay #WSCD2026 #SickleCellAwareness @MinofHealthUG
UK National Haemoglobinopathy Panel retweeted
Today is #WorldSickleCellDay 💛
It affects our communities deeply. The professionals working in this space deserve recognition.
Nominate before 26 June 🔗 bamehscawards.org/nominate
#SickleCellAwareness #HealthInequalities #BAMEHSCawards2026 #NominateNow #HealthcareHeroesUK
UK National Haemoglobinopathy Panel retweeted
It’s International Thalassaemia Day!
We value the amazing individuals that live with this condition every day & the wonderful healthcare workers/specialists supporting them.
As always, think; ‘How can I make a difference?’
#internationalthalassaemiaday #ITD2026 #Hiddennomore
UK National Haemoglobinopathy Panel retweeted
It's #WorldThalassaemiaDay
Thalassaemia is a blood disorder causing severe anaemia. Most people need regular transfusions from closely ethnicity-matched donors.
Your donation could save a life 🩸
UK National Haemoglobinopathy Panel retweeted
It's only 1 week to go until #COMy2026 – the 12th World Congress on Controversies in #MultipleMyeloma! 🇫🇷
From 14-17 May in Paris, France, we will be interviewing top experts to gain insights into the latest in #Myeloma.
Stay tuned on VJHemOnc.com! 👀
#MMSM #HemOnc @COMyCongress
UK National Haemoglobinopathy Panel retweeted
Happy #ITD2026 to all our patients, families and friends!
We are promoting diagnosis, awareness and understanding today across our network
#hiddennomore #VisabilityVoiceValue
UK National Haemoglobinopathy Panel retweeted
Today is International Thalassaemia Day. How are you raising awareness today? We have lots of activities happening within our network. Photos to follow.
youtu.be/pdS1eC-KkrY?si=cbPQ…
It’s International Thalassaemia Day!
We value the amazing individuals that live with this condition every day & the wonderful healthcare workers/specialists supporting them.
As always, think; ‘How can I make a difference?’
#internationalthalassaemiaday #ITD2026 #Hiddennomore
UK National Haemoglobinopathy Panel retweeted
For every patient.
For every family.
For every caregiver, healthcare professional, and advocate.
This #ITD2026, we raise our voices in hope, solidarity, and purpose — making the unseen visible and the unheard heard.
Together, we are #HiddenNoMore.
#8May #VisibilityVoiceValue
UK National Haemoglobinopathy Panel retweeted
Congratulations to @SubarnaChak for the very well deserved award for research and academia @BAPIOUK national conference @NatHaemPanel @Shivan_TT @gmenon1423 @redcellemma @BAPIOUK – at Stockport, England
UK National Haemoglobinopathy Panel retweeted
Amazing weekend with @MFTnhs Haematology leading globally with our real world experience in treating #TDT at international masterclass. An achievement for the service. Sickle cell to follow.@FarhanAliAnjum1 @MFT_MRI @NatHaemPanel @teamukts @thalassaemiaTIF – at Stockport, England
