Amazing! if you are able to support with a donation you can so here :- peoplesfundraising.com/fundr…

I was delighted to be interviewed by our friends over at @NfPatients after i was nominated as their "Heroine of the month". A fitting day (#IWD2024) for the interview to be published which was about my hearing loss journey since diagnosis. #NF2 #NF2SWN nf-patients.eu/magazine/hero…

We were delighted to announce our new trustees in February. We are now thrilled to share more details about them with you. You can find the details of all the trustees, Ambassadors and volunteers here on our website: nf2biosolutions.org/nf2-bios… #endNF2 #trustee #NF2Schwannomatosis

Rare Disease day! We want you to meet the real people affected by our rare disease NF2 related schwannomatosis and to read their story. If you need someone by your side to raise awareness & advocate for your rare disease community then Hermienke is that person! #ENDNF2

Facial Palsy Awareness Week takes place from 1-7 March and is a great opportunity to start conversations about Facial Palsy. Many NF2ers experience facial palsy both pre and post surgery with varying degrees and varying effects. Head over to our friends at @facialpalsyuk #endNF2

As we approach #RareDiseaseDay we want you to meet the real people affected by our rare disease NF2 related schwannomatosis and to read their story. #ENDNF2

This is a picture of all the nerves in your body, quite spooky? Imagine a disorder where tumours could grow on any of those nerves in the picture Thats NF2! - just let that sink in for a minute #rardiseaseday #endNF2 #NF2awareness #neurofibromatosistype2 #NF2SWN #NF2support #nf2

NF2 BioSolutions UK & Europe is in an exciting period of growth. It is important to move forward. We are delighted to welcome 5 new trustees to the charity from January 2024 Jo Ward, Andy White, Kim Whitlock, Dr Priya Sharma & Grace Gregory join us, each offering tremendous value

Delighted to announce the upcoming webinar "Understanding Genetics in NF2-SWN" Register now: buff.ly/3HwSqIh Save the date Tues Feb 20th 12pm EST/5pm GMT

Midweek knowledge Did you know tinnitus affects MANY of those with NF2 The Four Different Types of Tinnitus: Subjective tinnitus Neurological tinnitus Somatic tinnitus Objective tinnitus interesting read rnid.org.uk/information-and-… #endNF2 #NF2awareness #neurofibromatosistype2 #NF2

Today we celebrate all our volunteers & supporters and thank them for everything they do or have done this year. We are a very small charity and none of us get paid, no offices or overheads Every penny we raise is for NF2 research. Thankyou everyone! #strongertogether #endNF2

Tuesday on the blog & our special Side Effects Thankyou everyone who helped with this issue - those who shared their experiences, @NervetumoursUK for all their help and @j_buttimore (NF2 services @ Addenbrookes) Please repost. nf2biosolutions.org/2023/12/… #ENDNF2 #Avastin

We are promoting the NF2 Young Adults group today and we have a new flyer that will be sent from clinics shortly. The group is aimed at Young Adults from aged 18+ Chat, linger, feel connected or whatever, use the QR code in the flyer - or join here facebook.com/groups/98099014… #NF2

How NF2 affects me Meet the real life people affected by NF2.​ You can donate here: bit.ly/NF2BIGGIVE Today we meet Nicole who was diagnosed with NF2 at 16 years old. Although had been hard of hearing since 6 and always had bad balance issues. TOGETHER WE CAN #ENDNF2

The Movement for Good Awards are open for nomination. We would love you to nominate us. No Money on this just a nomination. The more nominations we get the better the chance of us winning £1000 for our research. you can nominate here bit.ly/NF2MOVEMENT Pls RT

How NF2 affects me Meeting the real life people affected by NF2.​ We are each affected differently but are linked together by our rare disorder NF2 related Schwannomatosis (NF2)​ Today we meet Oscar. His NF2 journey started aged 6. NF2 IS FOR LIFE​. #ENDNF2