@nf2biosolution1

Volunteer, patient led charity. Dedicated to NF2 Research. Raising awareness through advocacy, support & hope. Fundraising for new treatments or a cure to NF2.

 UK & Europe
curenf2.org/uk-europe/
Joined March 2021
  • Tweets3K
  • Following448
  • Followers479
1.4KMedia
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves — and it can be truly life changing. Learn more at curenf2.org. #endNF2 #NF2
1
2
25
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves — and it can be truly life changing. Learn more at curenf2.org. #endNF2 #NF
27
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves — and it can be truly life changing. Learn more at curenf2.org. #endNF2 #NF2
1
2
44
Sunday on the blog and today we are looking at patient stories. Sarah kindly shared her story for our blog & you can read that here. curenf2.org/sarahs-story/ You can read other patient storied on our website > curenf2.org/patient-stories/ share your story email [email protected]
1
1
54
We are really excited to tell you about our brand new "Tap to Donate" enamel badges from SMARTPINZ SMARTPINZ® combines premium enamel craftsmanship with NFC technology, turning physical collectibles into instant digital gateways for content, donations, *Available soon! #endNF2
1
1
67
Our team Kim Whitlock, Abigail Owen and Jessica Wiseman had an amazing time at the Cambridge Rare Disease Network (CamRARE) RareSummit26 at the Wellcome Genome Campus on 7th October. They had a packed day of telling everyone about our sponsored NF2 research #NF2 #NF2Awareness
1
2
46
👋👋👋👋
BBC Breakfast
@BBCBreakfastOct 14
Andy Burnham has announced plans for a national brain cancer clinical lead – a key plea from swimmer Archie Goodburn when he made an emotional appeal on #BBCBreakfast earlier this year. Archie met the PM in Downing Street and welcomed a package of measures including a review of brain cancer progress since 2018 and action to get patients new treatments sooner bbc.co.uk/news/topics/c036r2…
3
53
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves — and it can be truly life changing. Learn more at curenf2.org. #endNF2 #NF2
1
2
46
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves — and it can be truly life changing. Learn more at curenf2.org. #endNF2
1
1
4
79
If you live with NF2, your voice matters. We’d love you to add your perspective & help raise awareness. Share your story, write a blog post for us, you can read our blog here: curenf2.org/uk-europe/cure-n… 💬 What does NF2 look like to you? 💛 What do you wish others understood?
1
3
127
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves — and it can be truly life changing. Learn more at curenf2.org. NF2 is for LIFE
1
2
30
Today 10th October is World Mental Health Day. We have been talking a lot recently about awareness of our mental health with a rare & NF2 Diagnosis. A day to talk about mental health. To show everyone that mental health matters. And let people know that it’s okay to ask for help.
3
5
87
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves — and it can be truly life changing. Learn more at curenf2.org. #endNF2
1
1
41
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves — and it can be truly life changing. Learn more at curenf2.org. #endNF2 #NF2
1
1
40
Response of Vestibular Schwannomas in NF2-Related Schwannomatosis (NF2-SWN) to Losartan: A Case Series pubmed.ncbi.nlm.nih.gov/4282…
1
4
83
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves — and it can be truly life changing. Learn more at curenf2.org. #endNF2
1
1
25
Something exciting is coming in 2027! There is no better time to support our charity and our mission! Fix the Gene Change lives! We are putting the FUN into fundraising with an opportunity for you to join us in raising funds where-ever you are in the country. Pls report #NF2
1
1
1
39
* DISCLAIMER: By attending this event, participants acknowledge that they do so at their own risk. Cure NF2 Foundation UK & Europe, its volunteers, and partners accept no responsibility for any injury, loss, or damage incurred during the event. * minimum fundraising target
18
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves — and it can be truly life changing. Learn more at curenf2.org. #endNF2 #NF2
1
1
37
NF2 related schwannomatosis affects everyone differently. It’s a genetic condition that causes tumours to grow on nerves in the brain, inner ear, spinal cord, or peripheral nerves — and it can be truly life changing. Learn more at curenf2.org. #endNF2 #NF2
1
2
42
Load more