@MdsIreland

This support group was established to help people living with MDS and their Families. Myelodysplastic syndromes (MDS) is a group of diseases where the bone ma

 Dublin City, Ireland
Joined November 2017
  • Tweets270
  • Following177
  • Followers73
6Media
MDSIreland retweeted
BMTx3@HelpforMDS1 Oct 2018
Sunny morning, big smiles. To everyone dealing with #cancer today I hope the weather is not too bad where you are #MDS
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Yesterday’s #MDS UK Oxford group meeting had it all really: lots of laughter, a few tears, mutual sharing and encouragement, and plenty of information from an expert myeloid nurse - a good way to #MakeBloodCancerVisible as #Bloodcancerawarenessmonth draws to a close #BloodCancer – at Beaconsfield, South East
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This September #SpotLeukaemia has reached over 5 million people on Twitter alone! Thank you to everyone who helped raise awareness @LeukaemiaCareUK @christheeagle1 @damekellyholmes @adrianwarnock @rcgp @WorcesterHour @ntfc @BriggsNicholas @bethanyjanet @NYLCandCLL @scicommchar – at United Kingdom
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MDSIreland retweeted
BMTx3@HelpforMDS1 Oct 2018
Last Month was #BloodCancerAwarenessMonth and the #MakeBloodCancerVisible art installation. Thank you to everyone involved, thank you too to the 20,000 people we reached on Facebook - a record I’m sure. Next stop @cabbage_10 !!!
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There's still time to book your free place for our #fatigue information day in #Sheffield on 13th October. On the day, you’ll hear talks from our fatigue expert, Dr Anne Johnson on the realities of fatigue and how to manage it. Book your free place here > bit.ly/SheffieldFatigueInfoD…
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Chronic Lymphocytic Leukaemia (CLL) Ireland, a patient led voluntary group is hosting an Evening of Support with a talk by Louise O'Driscoll, Clinical Psychologist, on 19 Oct 2018, Mullingar Park Hotel. It's free to attend but registration is required. clli.ie/news-and-events/upco…
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MDSIreland retweeted
AA&MDSIF
@aamdsif3 Oct 2018
People often ask me, “How did you do it?” When given a challenge, never underestimate your power to overcome, says Paige Cranwell. Discover her journey from diagnosis to survival over severe aplastic anemia here: ow.ly/yadq30m165s
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MDSIreland retweeted
Kes Grant 🌈@revkes3 Oct 2018
Where angels fear to tread: Revenge of the PEG: revrebel.blogspot.com/2018/1… @DKMS_uk @RABCnow @HelpforMDS @MDS_UK @LeukaemiaCareUK @AnthonyNolan @bloodwise_uk @mdsukoxford @HeretoHelpMDS @aamdsif @NHSMillion @KuhleBergit @MDSFoundation @BBCRADIOKENT @GiveBloodNHS @CR_UK @leukaemiauk – at Camberwell, London
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Our friend Paul Keane has made national headlines by sharing his story of his journey for the treatment of his #CLL. It's a compelling read which gives hope to our community and we are so grateful to him and his family for helping @CllIreland to #MakeBloodCancerVisible
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@MdsIreland @Giveblood_ie #ibts #giveblood #raisingawareness #worldblooddonorsday2018 #Beahero
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MDSIreland retweeted
BMTx3@HelpforMDS21 Mar 2018
Blood cancer survivor meets ‘genetic twin’ stem cell donor ardrossanherald.com/news/161…
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New combination drug trial aims to eradicate B-cell malignancies in Leukaemia The approach combines an experimental monoclonal antibody-based drug called cirmtuzumab with #ibrutinib ow.ly/5e9f30j2yTK
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@MdsIreland @TheEchoOnline #raiseawareness #mds #support #bloodcancer #RareDisease #fundraiser xitter.cf/TheEchoOnline/status/9…
The Echo Newspaper 🗞@TheEchoOnline19 Mar 2018
Creche in #Ballyfermot kickstarts fundraiser for teen diagnosed with rare condition. echo.ie/news/article/creche-…
Hi @Noirin0Neill can you please RT to help get full #Justiceforclaire and #Justiceforallchildren in the #Hyponatremiaenquiry xitter.cf/GarethR08754256/status…
Gareth Roberts @GarethRoberts04 Feb 2018
My beautiful sister Claire was cruely taken from us 21 years ago. She enjoyed every day @TorBankSchool ❤️❤️the #Hyponatremiareport confirmed her death was a cover up. @sharon_utv and @utv are doing a programme this Thursday 10:40. Please RT for support @PaulClark_UTV
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Delighted to welcome @cancertrials_ie to the Department of Health @roinnslainte today. Good discussion about how to progress two key recommendations in our new National Cancer Strategy relating to trials and research. Huge potential for Ireland, for patients & the health service
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WE'RE RECRUITING! We're looking for dedicated professionals to fill the roles of: PA/Department Administrator (Services / Advocacy) Dispatch Assistant (Retail) Patient Travel Administrator More info available @ cancer.ie/about-us/jobs #irishjobfairy #jobfairy
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The Irish Nutrition & Dietetic Institute @trust_indi has a new fact sheet on what to eat/drink to help cope with cancer treatment side-effects inc. loss of appetite, fatigue, nausea & vomiting, taste changes, sore or dry mouth, diarrhoea, constipation ow.ly/lHm930ica4F
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Today is #WorldCancerDay. Collectively, blood cancers are the 3rd biggest cancer killer in the UK. We fund groundbreaking research to find treatments for patients w blood cancer & provide info & support to those affected. Show your support & share this post #WeCanICan
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