Trustee MDS UK. Raising awareness of #MDS - a malignant blood disorder. 3 Bone Marrow Transplants - I don't have views, I have a vision #mdsbloodcancer

UK
Joined November 2014
13 years ago I ran my 1st Marathon. It was 2 1/2 years post my final #stemcell transplant and I ran for @AnthonyNolan because my first 2 transplants came from a donor they found. My 3rd transplant was a ‘last chance saloon’ #Haplo. The man who saved my life was my son
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Today I’m at the Excel Center. Picking up my bib number and raising funds for @MDS_UK and @BrainTumourOrg Not bad for a 66 yr old, 3x BMT and a brain tumour
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And thank you Eddie @BBCRadioLondon for an opportunity to tell my story and raise awareness of Myelodysplastic Synromes, stem cell transplants and brain tumours. Fundraising link and story below: justgiving.com/team/firstyou…
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This Sunday I am running the @LondonMarathon raising funds @MDS_UK AND @BrainTumourOrg. I went through 3 Stem Cell Transplants and topped it off with a brain tumour the size of fist You can help raise money by donating online #JustGiving justgiving.com/team/firstyou…
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Can you help Marshall by sharing this post and helping to find him a donor? Wouldn’t it be amazing if you were that one in a million special person who could save Marshall’s life. Go on go for it. If you can’t donate then please share to encourage others.
🔁 PLEASE SHARE #MarshallsMatch 🔁 Marshall, aged 21, is searching for a stem cell donor – but right now there’s not a single match worldwide for him. Aged 16-30? Sign up today – you could be a lifesaver: anthonynolan.org/marshallsma…
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Have a great Christmas and thank you for you support in 2024. My head is looking much better than this now!!
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Please share this to see if we can create a Christmas miracle. Good luck to Lilian and her family. I’m holding you in the light.
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Morning all, it’s now some 5 weeks on from my surgery to remove a massive brain tumour. I am doing very well and I am a bit ahead of where I thought I’d be. Thanks for all the kind messages. I just hope I never have to go through the emotional trauma again
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Hi all, having survived a horrid #MDS some 15 yrs ago, it now has become clear I have a brain tumour. I am not panicking, it’s hopefully benign, but it has brought business to an end a bit quicker. None the less I am still here and I still need to get supporters for @MDS_UK
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My friend Flo Copp is fundraising for MDS UK. Check out their @JustGiving page and please donate if you can. Thank you! #JustGiving justgiving.com/page/flo-birt…
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There’s another MDS CLIENT MEETING - so please register to find out more mdspatientsupport.org.uk/eve…
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Where angels fear to tread: Blood cancer awareness month 2024 (2)): revrebel.blogspot.com/2024/0… #thisisbloodcancer #bloodcancerawarenessmonth Short series of blogs showing the ups and downs of blood cancer. There’s 2 in this post @CLLAdvocates @AAMAC1989 @tbailey1976 @HelpforMDS
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Myelodysplasic Syndromes are pretty rare in the UK. Just 2500 people diagnosed each year. As cancers go the curative options are slim too… What celebrities do you know of that got diagnosed with #MDS??
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