Took a decade to get a diagnosis. Raising awareness on Mast Cell Activation Syndrome, symptoms, protocol & research to improve quality of life.
Joined April 2019
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'It was petrifying' - My baby was allergic to everything…. diagnosed with mast cell activation syndrome age 7 months… thatslife.com.au/real-life/m…
Mast cell activation syndrome: Current understanding and research needs: sciencedirect.com/science/ar…… via @sciencedirect @jacionline
Hope For Mast Cell Activation Syndrome… brainzmagazine.com/post/hope… via @BrainzMagazine
Insighful interview with @DrTaniaDempsey on Mast Cell Activation Syndrome…open.spotify.com/episode/3rw… via @deanmitchellmd
Research shows that Long Covid sufferers could find relief from symptoms by adopting the mast cell activation syndrome (MCAS) treatment plan… swlondoner.co.uk/life/150220… via @Jasmine_Laws01 MT @DrTinaPeers
Mast cell activation syndrome brings a wide range of chronic symptoms… metrowestdailynews.com/story… via @metrowestdaily
”Long Covid triggered our MCAS, but doctors didn't believe us…” bbc.com/news/uk-england-lond… via @LizJJackson1
Informative round-up on Mast Cell Activation Syndrome: When the immune system goes haywire… overview of MCAS, first person accounts, food, trigers, treatment options and more…lymedisease.org/members/lyme… via @Lymenews
The Physical Toll Of Mast Cell Activation Syndrome: @RaquelWWE shares her MCAS challenges… thesportster.com/wwe-raquel-… via @ShawnDVanHorn @WrestlingSheet MT @WWE
Mast Cells: Mast Cell Function, Origin and Related Conditions… Discover the secrets of mast cells and their role in the immune system… technologynetworks.com/immun…
Great awareness raising: @JimHarrisMD
shares about Mast Cell Activation Syndrome wndu.com/2024/01/23/ask-doct… via @JoshuaShortTV @LMossWNDU @16NewsNow
How changes in the weather can worsen mast cell activation syndrome…. lymedisease.org/severe-weath… via @LonnieRhea
Travel Tips for when you have Mast Cell Activation Syndrome or Histamine Intolerance…. mastcell360.com/can-you-safe…
Thank you @edyong209
Your article truly articulates what it's like to have deep, ongoing fatigue.
Many with Mast Cell Activation Syndrome experience chronic fatigue. theatlantic.com/health/archi…
A beautiful piece by @edyong209 that fully describes & communicates the complexity of fatigue & Post-Exertional Malaise in #LongCovid.
Ironically am crashy today so going to pull out amazing quotes:
"Now, at least, she can watch TV on the same day she takes a shower." 1/
Living with Chronic Illness: “ultimately diagnosed with Mast Cell Activation Syndrome…never give up. When doctors can’t figure it out, keep in mind that only you can know if something isn’t right with your body so keep pushing...” theroanoker.com/magazine/fea…
RT @Pogue Doug Lindsay was 21 when a rare disease seized him. During the 11 years he spent bedbound, he had a single-minded goal: Learn the science, develop a surgery, and cure HIMSELF. link.chtbl.com/oAThh0oS?sid=… “Unsung Science” episode MT @Doug_Lind_Say
Mast Cell Activation Syndrome is a condition that very few people know about… forbes.com/sites/drnancydoyl… via @NancyDoylePsych
MastCellChat retweeted
I met a young man whose Dx journey to mast cell activation syndr took many frustrating yrs, incl being dismissed by many. He said “I would’ve thought doctors would be interested&excited to help discover what was wrong. That was not the case.”
I think about this a lot #MedTwitter
“The number and severity of mast cell activation syndrome symptoms substantially increased in patients with long COVID compared with pre-COVID and control individuals…” nature.com/articles/s41579-0… via @ahandvanish @julialmv @LisaAMcCorkell
@EricTopol @NatureRevMicro
MastCellChat retweeted
Immunological dysfunction and mast cell activation syndrome in #longCOVID
journals.lww.com/apallergy/F…