To improve the lives of all people affected by ME/CFS and Fibromyalgia through advancing awareness, care, treatment and research.
Massachusetts
Joined February 2018
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Massachusetts ME/CFS & FM Association retweeted
Athletic's Weekly: Beth Dobbin: ‘I feel like I’ve lost everything’
Beth Dobbin, who ran for Great Britain at the Tokyo Olympic Games in 2021, now spends more than 22 hours a day in bed as she battles myalgic encephalomyelitis (ME), BBC Sport has reported
athleticsweekly.com/news/bet…
Massachusetts ME/CFS & FM Association retweeted
Please join us on November 15th at 4 pm ET for a special talk with Kim Moy of Caregiver Wisdom - "Being on the Same Team: Strengthening Relationships Through Chronic Illness." It is for BOTH the #caregiver & the #pwME/ #pwLC/ etc. . meaction.net/event-details/b…
#FamilyCaregiver
ALT Virtual workshop on strengthening relationships through chronic illness with Kim Moy, November 15 at 3 pm ET, honoring National Family Caregivers Month. Photo of Kim Moy (Asian-American woman with medium length graying hair wearing a floral scarf and long sleeve top with a great big smile) Text: Virtual workshop Being on the Same Team: Strengthening relationships through chronic illness
Massachusetts ME/CFS & FM Association retweeted
September @MassMECFS 2026 recording: Insights from ME/CFS support group leaders. massmecfs.org/events/sunday-… youtu.be/1H8chnKirvw
Massachusetts ME/CFS & FM Association retweeted
CDC 2028 Survey Could Drop ME/CFS/LC Questions: Proposed changes to NHI risk ongoing prevalence tracking. Public comments needed by 10/20 solvecfs.org/cdc-me-cfs-long…
1/4. Annual Mtg - this weekend
This Sunday! Please join us for our Annual Meeting "Being Seen", October 18 at 1pm ET
Full details and register here:
massmecfs.org/events/annual-…
3/4. Lynn Smith, U.S. Regional Director of Hidden Disabilities Sunflower @sunflowerlanyardscheme on discretely signaling for disability accommodations in public
4/4. All are welcome, we saved you a seat!
This Zoom presentation will be recorded for later viewing.
#massmecfs #chronicfatigue #fibromyalgia #longcovid #chronicfatiguesyndome #invisibleillness #chronicillness #invisabledisability
Massachusetts ME/CFS & FM Association retweeted
Annual @MassMECFS Meeting: 10/18, 1–3 PM ET Zoom, Medicaid medical-frailty exemptions & Hidden Disabilities Sunflower. Recorded. form.jotform.com/26270592687…
Massachusetts ME/CFS & FM Association retweeted
@fidjissimo @Forbes & @ChronicleBioAI : AI startup for ME/CFS, POTS & LC aiming to identify subtypes & match patients to potential treatments. forbes.com/sites/amyfeldman/… (paywalled)
2/2. This Zoom presentation will be recorded for later viewing.
Full details here: massmecfs.org/events/annual-…
#massmecfs #chronicfatigue #fibromyalgia #longcovid #chronicfatiguesyndome #invisibleillness #chronicillness #invisabledisability
Massachusetts ME/CFS & FM Association retweeted
The 2026 Stanford Community Symposium recordings are now on YouTube.
Every talk is now online, including Danielle Meadows, PhD, OMF's VP of Research Programs and Operations, on the clinical trial landscape in ME/CFS and Long COVID.
▶️ ow.ly/I7qV50ZSFYx
ALT Announcement for 2026 Stanford Community Symposium recordings available on YouTube featuring Ronald W. Davis, PhD, and Danielle Meadows, PhD.
The weather was perfect, the team was awesome! This is the 3rd year MassME participated in this event, & for the 3rd time was one of the strongest fundraisers.
Thanks to all team members & all who donated to support MassME.
Together, we are stronger!
youtube.com/shorts/RYWBu7DF1…
Massachusetts ME/CFS & FM Association retweeted
1/4 Das Narrativ von den "aggressiven", "vorwürflichen" oder sonst schwierigen #MECFS-Betroffenen ist besonders toxisch, weil es eine subtile Legitimierungsfunktion für fortdauernde Nichtversorgung und sogar für Schädigungen durch Fehlbehandlungen dieser Patientengruppe erfüllt.
76-mal Danke!
Inzwischen tragen 76 Mitzeichner die gemeinsame Stellungnahme aus Versorgung und Wissenschaft mit:
Ein starkes fachliches Signal für einen respektvollen und sachlich angemessenen Umgang mit Menschen mit #MECFS.
Mitzeichnung weiterhin möglich.
psychotherapie-mecfs.de/stel…
Massachusetts ME/CFS & FM Association retweeted
PRIME International ME/CFS Research Symposium (Free Hybrid), Edinburgh: Sept. 28–29, with online attendance. Includes launch of the International Genetic Epidemiology of ME/CFS Consortium and presentations from early-career researchers and PPI Hub. tickettailor.com/events/univ…
Massachusetts ME/CFS & FM Association retweeted
The Guardian: 'Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed'
By George Monbiot
theguardian.com/commentisfre…
There is a lot going on, read the latest:
massmecfs.org/resources/news…
#massmecfs #chronicfatigue #longcovid #fibromyalgia #MECFS
1/2 Sunday Conversations "Insights and Inspiration from Support Group Leaders"
September 20, 2026, 4:00pm ET on Zoom
How can a support group help you and what can you expect if you join one?
2/2 We'll hear experienced support group leaders/facilitators about experiences they have had & why they are enthusiastic about what they do. Please join us All welcome to this free program.
massmecfs.org/events/sunday-…
#massmecfs #MyalgicEncephalomyelitis #MECFS #fibromyalgia