ME/CFS San Diego are patients and/or caregivers sharing information, support for each other, and education about Myalgic Encephalitis/ Chronic Fatigue Syndrome
San Diego, CA
Joined July 2020
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CDC 2028 Survey Could Drop ME/CFS/LC Questions: Proposed changes to NHI risk ongoing prevalence tracking. Public comments needed by 10/20 solvecfs.org/cdc-me-cfs-long…
Popular UK Medical Textbook has ME/CFS misinformation: Kumar & Clark's Clinical Medicine new @ElsevierConnect edition still misframes ME/CFS as psychological not biomedical illness despite advocacy. mecfs.substack.com/p/the-med…
2026 PRIME Symposium Recordings available: for 9/28-29/26 meetings, organized by @actionforme youtube.com/playlist?list=PL…
ME/CFS Representation: Beth Dobbin, British Olympic Sprinter bbc.com/sport/athletics/arti…
Felipe Correa da Silva wins ZonMw grant: to study hippocampal synapses in brain tissue from ME/CFS patients, seeking biological explanations for memory & cognitive symptoms. zonmw.nl/en/news/road-grant-…
Myth vs. Fact Series @PlzSolveCFS : Myths #1 bsky.app/profile/solveme.bsk… and #2 bsky.app/profile/solveme.bsk… challenge ME/CFS misconceptions.
Friends Online Forum @actionforme : UK adults living with ME can find peer support, friendly discussions and connection. actionforme.org.uk/sign-up/
Bateman Horne Center Approach to ME/CFS/LC Care: @BatemanHorne Executive Director Tahlia Ruschioni discusses clinician education, patient-centered care, research & practical resources. youtube.com/watch?v=OcmOQL9-…
Supporting Friends With ME/CFS/LC Guide: @EmergeAus guide offers practical ways to stay connected while respecting energy limits, sensory sensitivities & PEM risk. emerge.org.au/how-to-support…
September @MassMECFS 2026 recording: Insights from ME/CFS support group leaders. massmecfs.org/events/sunday-… youtu.be/1H8chnKirvw
NEW @MECFSSD News Archive: Browse or search posts here (also posted on social media in different formats) or subscribe by email/RSS. mecfssandiego.com/mecfsNews
ME/CFS Journalism Awards: Austria’s first Eduard Spörk Awards recognised four outstanding reports on ME/CFS, including coverage of patients’ fight for support, the realities of severe illness and the urgent need for care. cs.at/presse/news-und-aktuel…
ME/CFS Awareness Undermined: Just as France’s Ameli updates ME/CFS information, a new journal article pushes back, risking further misinformation among healthcare workers and researchers. xitter.cf/mecfsskeptic/status/21…
NIH Scientific Censorship Lawsuit: ACLU alleges politically motivated grant terminations and restrictions on scientific research across biomedicine. Urge Congress to act: action.aclu.org/send-message…
Protect Medicaid Disability Services: Share your ME/CFS story with legislators and urge Congress to protect Medicaid-funded disability services that help people live at home and stay connected to their communities: easterseals.quorum.us/campai…
Best Practice Wins Two Awards: The Danish ME short film by Oscar-winning director Martin Strange-Hansen won Best Foreign Short Film at the 2026 New York Indie Shorts Awards. Hjalte Ilsøe Gustavussen won Best Actor. filmfreeway.com/BestPractice…
US Delays Prescription Drug Import Rule: postal customs rules to start 1/20/27 reuters.com/legal/government…
Halloween Art @MEActNet Workshop: Build figure-drawing skills with artist and ME/CFS advocate Orion Romero in this free online workshop on October 29 at noon ET. Just bring pencil and paper! meaction.net/event-details/o…
Condensation and Cannonballs: Noah McCreadie’s one-man show about his friend who had ME runs at London’s Union Theatre, 4-6 Nov, 7:30pm. Tickets £18. Noah is generously donating part of the proceeds to the @MEAssociation uniontheatre.biz/show/conden…
Austria ME/CFS Research & Care: Vienna, WWTF & @weandmecfs funding 2 major research projects totaling €2 million. Specialist PAIS center planned, w/ services starting 2027 & full operation by mid-2028. presse.wien.gv.at/presse/202…