@MainEvent24

MAIN is a research and knowledge exchange network focused on mental health and wellbeing for people impacted by serious life-limiting illness.

 University of Edinburgh
Joined December 2023
  • Tweets37
  • Following93
  • Followers83
New: estimates of population-level palliative care need in the UK 2017-2021 bmcpalliatcare.biomedcentral…

Estimates of population-level palliative care need in the UK: a descriptive analysis of mortality...

BMC Palliative Care - Existing estimates of palliative care need in the UK were produced before the COVID-19 pandemic. We sought to produce updated, population-level estimates of palliative care...

link.springer.com
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Review finds that most psychological interventions for people receiving palliative care are effective in reducing negative emotions including depression, anxiety and distress; & can improve hope, meaning and dignity. shorturl.at/csizm Need for implementation studies next!
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@JonathanKoffman @SimonNoahEtkind @libby_sallnow @larapivodic @a_samuels_ planning exciting study exploring how #religion & #spirituality help people when faced with #uncertainty from long-term or life-threatening illness. Go to tiny.cc/rgu5yz to share views. Thanks!
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This Mental Health Awareness Week, we're reflecting on the mental health needs of people living with a terminal illness and those that support them in a new blog. Our researchers talk about different therapeutic approaches, and what support is needed: bit.ly/3UYI37R
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This is such a great idea & central to whole person care for people with serious life-limiting illnesses @LeonieHerx @palliativeire @_IPMCA @annedohertypsy @IrishPsychiatry @HMChochinov @IraByock @mcgillwpc @kelleher_eric @stabrennan @Stanford_PC @CarolUHS @IASW_IRL 1/
MainEvent@MainEvent2431 Jan 2024
We are delighted to launch MAIN today! Check out our network position paper to find out more about the Mental health and wellbeing in Advanced Illness Network (MAIN) and how you can be involved. @EdinUniHealth Funded by @MarieCurieEOLC mariecurie.org.uk/globalasse…
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Our next webinar:Family centred approaches to improving wellbeing in advanced illness and end of life will take place on 14 May. Register here for this free event: events.teams.microsoft.com/e…
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Do you use the term "loved ones" as a general term? Ever wondered what it means or how it might be understood? @KateWoodyBath and I did: endoflifestudies.academicblo… Tl:dr Emphasising "love" misses the diversity of reasons people care for each other @EndofLifeStudy

Is Everyone a “Loved One”?

Photo by Andrew Seaman on Unsplash How many times have you used or seen the term “loved one” this week? If you work in healthcare or the service sector, there’s a good chance it is quite a few. Hav…

endoflifestudies.academicblogs.co.uk
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As oncologists we struggle with how we can have realistic conversations about the future while preserving hope. Dr @SchenkerYael and her colleagues show that having end of life conversations with patients did not compromise hope via the CONNECT study #pallonc #supponc
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Replying to @MainEvent24
@MainEvent24 webinar, 12.03.24, 12 noon GMT: "Mental health, the social determinants of dying and trauma-informed palliative care." With @DrNaomiRichards @DrEmmaCarduff @_RiniJones_ All welcome. Register for free here: events.teams.microsoft.com/e… Funded by @MarieCurieEOLC
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New paper on practitioners views of Acceptance & Commitment Therapy (ACT) for bereavement support. Led by @NikolausWilli & our excellent MSc students @EdinUniHealth. With funding from @MarieCurieEOLC
My Grief My Way (MGMW)@MyGriefMyWay28 Feb 2024
Check out our new paper on Acceptance and Commitment Therapy (ACT) for bereavement support. @NikolausWilli @davidgillander @MarieCurieEOLC bmcpalliatcare.biomedcentral…

Practitioner perspectives on the use of acceptance and commitment therapy for bereavement support:...

BMC Palliative Care - There is currently a high demand for bereavement support coupled with inconclusive findings as to the efficacy of existing approaches. Acceptance and Commitment Therapy (ACT)...

link.springer.com
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MAIN Webinar: Mental health, the social determinants of dying and trauma-informed palliative care. All welcome to our next free webinar (presentation, case studies & discussion). Tuesday 12th March @ 12 noon With @DrNaomiRichards. Register here: events.teams.microsoft.com/e…
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By reminding health care providers who their patient is as a person, families ensure their loved ones are truly seen, hence safeguarding and preserving their innate dignity. liebertpub.com/doi/epdf/10.1… @CicelySaunders1 @CAPCpalliative @AAHPM @EAPCvzw @IAHPC @CanadianHPCAssn @whpca
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Hope can be sustained while holding both realistic and unrealistic illness expectations. Communication about serious news should focus on clarifying the expectations as well as supporting people’s hope. #hpm #hapc buff.ly/3SL1YWK
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Excellent talk by @gary_rodin on psychological interventions for advanced #cancer So many overlapping themes with my PhD work developing psychological interventions for #MND Looking forward to more research and collaborations in this area @MarieCurieEOLC @MainEvent24
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Participants articulate gratitude in five ways: (1) appreciating others; (2) love; (3) need to reciprocate; (4) appreciating the little things; (5) solace amid serious illness #hpm #hapc buff.ly/42xRCfZ
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Join us for our spotlight on mental health and wellbeing at 1:30 today where we will hear from @gary_rodin and Prof Julia Verne. It will be a great session! You can still register for free via link below. @EdinUniMentalH @MainEvent24
Marie Curie EOLC
@MarieCurieEOLC8 Feb 2024
At 1:30 - joining us from Canada @gary_rodin will discuss psychological support for people with terminal illness. Prof Julia Verne will deep dive into palliative care needs of people with severe mental illness. And we'll hear about the newly launched @MainEvent24 #MCResearch2024
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The strongest evidence yet that Dignity Therapy works! liebertpub.com/doi/full/10.1… @VirtualHospice @UM_RadyFHS @CCMB_Research @CancerCareMB @umanitoba @CanadianHPCAssn @whpca @IPOSPsychoOncol @IAHPC @CSI_KCL @CicelySaunders1 @EAPCvzw @AAHPM @CAPO_ACOP @drkathrynmannix @WHO #DIGNITY

Engaging Mortality: Effective Implementation of Dignity Therapy - Diana J. Wilkie, George Fitchett,...

Background: Patients consider the life review intervention, Dignity Therapy (DT), beneficial to themselves and their families. However, DT has inconsistent effe...

journals.sagepub.com
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If you would like to be involved in future events, you can find us as @MainEvent24 or sign up here: app.onlinesurveys.jisc.ac.uk… 2/2
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'How can psychologists shape the future of end of life care research?' Brilliant blog from my @MarieCurieEOLC colleague @BrionyHudson on how psychologists can help improve research and end of life experience @BPSOfficial @PeolcPSP bps.org.uk/psychologist/how-…

How can psychologists shape the future of end of life care research? | BPS

Dr Briony Hudson, associate director for internal research at Marie Curie.

bps.org.uk
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