@MainEvent24

MAIN is a research and knowledge exchange network focused on mental health and wellbeing for people impacted by serious life-limiting illness.

 University of Edinburgh
Joined December 2023
  • Tweets37
  • Following93
  • Followers83
Next MAIN Event Webinar: Friday 17th Jan @ 12:30 to 2pm "Crisis Prevention not Crisis Management: the health and wellbeing of parents and children with life-limiting conditions" With @lornafraser10 and @victoriaefisher Register here for free: events.teams.microsoft.com/e…
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New: estimates of population-level palliative care need in the UK 2017-2021 bmcpalliatcare.biomedcentral…

Estimates of population-level palliative care need in the UK: a descriptive analysis of mortality...

BMC Palliative Care - Existing estimates of palliative care need in the UK were produced before the COVID-19 pandemic. We sought to produce updated, population-level estimates of palliative care...

link.springer.com
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Next MAIN webinar: 24 Sept 2024 at 12.30-2pm BST Acceptance and Commitment Therapy (ACT) for people with Motor Neurone Disease With Prof Rebecca Gould (UCL) Funded by @MarieCurieEOLC All Welcome Register for free here: events.teams.microsoft.com/e…
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Still time to register to join our webinar on Monday 17th June! With Prof Gary Rodin…
MainEvent@MainEvent2429 May 2024
Next MAIN Webinar: 17.06.24 @ 1pm BST Managing Cancer and Living Meaningfully (CALM): A Psychotherapeutic Approach to Life-Threatening and Advanced Disease. With Prof. Gary Rodin (@gary_rodin). Funded by @MarieCurieEOLC All welcome. Register here: events.teams.microsoft.com/e…
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Review finds that most psychological interventions for people receiving palliative care are effective in reducing negative emotions including depression, anxiety and distress; & can improve hope, meaning and dignity. shorturl.at/csizm Need for implementation studies next!
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Next MAIN Webinar: 17.06.24 @ 1pm BST Managing Cancer and Living Meaningfully (CALM): A Psychotherapeutic Approach to Life-Threatening and Advanced Disease. With Prof. Gary Rodin (@gary_rodin). Funded by @MarieCurieEOLC All welcome. Register here: events.teams.microsoft.com/e…
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@JonathanKoffman @SimonNoahEtkind @libby_sallnow @larapivodic @a_samuels_ planning exciting study exploring how #religion & #spirituality help people when faced with #uncertainty from long-term or life-threatening illness. Go to tiny.cc/rgu5yz to share views. Thanks!
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Lancet editorial on the COMMEND trial: ACT improves quality of life in people with MND: thelancet.com/journals/lance… And the COMMEND trial paper itself: thelancet.com/journals/lance…

Motor neuron disease: improving quality of life for patients

This week, The Lancet published the findings from COMMEND, the largest clinical trial to date of a psychological intervention for people with motor neuron disease (MND). This devastating, incurable...

thelancet.com
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This Mental Health Awareness Week, we're reflecting on the mental health needs of people living with a terminal illness and those that support them in a new blog. Our researchers talk about different therapeutic approaches, and what support is needed: bit.ly/3UYI37R
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BBC Breakfast this morning - forward to 1hr 35 - psychological support for people with MND - new research (only available for 24 hours) bbc.co.uk/iplayer/episode/m0…

BBC One - Breakfast, 10/05/2024

The latest news, sport, business and weather from the BBC's Breakfast team.

bbc.co.uk
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This is such a great idea & central to whole person care for people with serious life-limiting illnesses @LeonieHerx @palliativeire @_IPMCA @annedohertypsy @IrishPsychiatry @HMChochinov @IraByock @mcgillwpc @kelleher_eric @stabrennan @Stanford_PC @CarolUHS @IASW_IRL 1/
MainEvent@MainEvent2431 Jan 2024
We are delighted to launch MAIN today! Check out our network position paper to find out more about the Mental health and wellbeing in Advanced Illness Network (MAIN) and how you can be involved. @EdinUniHealth Funded by @MarieCurieEOLC mariecurie.org.uk/globalasse…
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We are delighted to launch MAIN today! Check out our network position paper to find out more about the Mental health and wellbeing in Advanced Illness Network (MAIN) and how you can be involved. @EdinUniHealth Funded by @MarieCurieEOLC mariecurie.org.uk/globalasse…
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Register for free here: events.teams.microsoft.com/e…
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Join us for our next MAIN event "Family centered approaches to improving wellbeing in advanced illness and at end of life". With @LizForbat @LissetteAvilesR & Louise Allen. Tues 14th May at 12 noon (BST). All welcome! Hosted by @EdinUniHealth. Funded by @mariecurieuk.
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Our next webinar:Family centred approaches to improving wellbeing in advanced illness and end of life will take place on 14 May. Register here for this free event: events.teams.microsoft.com/e…
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Do you use the term "loved ones" as a general term? Ever wondered what it means or how it might be understood? @KateWoodyBath and I did: endoflifestudies.academicblo… Tl:dr Emphasising "love" misses the diversity of reasons people care for each other @EndofLifeStudy

Is Everyone a “Loved One”?

Photo by Andrew Seaman on Unsplash How many times have you used or seen the term “loved one” this week? If you work in healthcare or the service sector, there’s a good chance it is quite a few. Hav…

endoflifestudies.academicblogs.co.uk
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As oncologists we struggle with how we can have realistic conversations about the future while preserving hope. Dr @SchenkerYael and her colleagues show that having end of life conversations with patients did not compromise hope via the CONNECT study #pallonc #supponc
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Replying to @MainEvent24
@MainEvent24 webinar, 12.03.24, 12 noon GMT: "Mental health, the social determinants of dying and trauma-informed palliative care." With @DrNaomiRichards @DrEmmaCarduff @_RiniJones_ All welcome. Register for free here: events.teams.microsoft.com/e… Funded by @MarieCurieEOLC
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New paper on practitioners views of Acceptance & Commitment Therapy (ACT) for bereavement support. Led by @NikolausWilli & our excellent MSc students @EdinUniHealth. With funding from @MarieCurieEOLC
My Grief My Way (MGMW)@MyGriefMyWay28 Feb 2024
Check out our new paper on Acceptance and Commitment Therapy (ACT) for bereavement support. @NikolausWilli @davidgillander @MarieCurieEOLC bmcpalliatcare.biomedcentral…

Practitioner perspectives on the use of acceptance and commitment therapy for bereavement support:...

BMC Palliative Care - There is currently a high demand for bereavement support coupled with inconclusive findings as to the efficacy of existing approaches. Acceptance and Commitment Therapy (ACT)...

link.springer.com
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MAIN Webinar: Mental health, the social determinants of dying and trauma-informed palliative care. All welcome to our next free webinar (presentation, case studies & discussion). Tuesday 12th March @ 12 noon With @DrNaomiRichards. Register here: events.teams.microsoft.com/e…
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MAIN Webinar: Mental health, the social determinants of dying and trauma-informed palliative care. All welcome to our next free webinar (presentation, case studies & discussion). Tuesday 12th March @ 12 noon With @DrNaomiRichards. Register here: events.teams.microsoft.com/e…
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