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MayRo

@MRoseRoberts

Chief Operating Officer @RareBeacon 🔥 | Diet Coke Addict🥤 | West Wing Aficionado📺 | Eurovision Fanatic🎤 | Keele Grad 2014🎓 | Views Are Mine 🗣

 Cambridge, England
Joined June 2016
  • Tweets2K
  • Following249
  • Followers309
580Media
Photo by MayRo (@MRoseRoberts)Photo by MayRo (@MRoseRoberts)Photo by MayRo (@MRoseRoberts)Photo by MayRo (@MRoseRoberts)Photo by MayRo (@MRoseRoberts)Photo by MayRo (@MRoseRoberts)Photo by MayRo (@MRoseRoberts)Photo by MayRo (@MRoseRoberts)Photo by MayRo (@MRoseRoberts)Photo by MayRo (@MRoseRoberts)
Excited to be in #Newcastle today with the @RareBeacon team, hosting the Final Conference on behalf of MCDS Therapy! Really interesting to hear from everyone who has been involved in delivering this project and clinical trial over the past 5 years. 💊
MCDS-Therapy (@MCDS_Therapy) profile pictureMCDS-Therapy@MCDS_Therapy30 May 2024
It’s almost time for the MCDS-Therapy Final Conference!! Lights, camera…almost action 😜 Get here safely! #McdsTherapy
Image from MCDS-Therapy (@MCDS_Therapy)
Image from MCDS-Therapy (@MCDS_Therapy)
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ONE WEEK TO GO #eurovision
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Calling patient group leaders! 📢 Beacon is looking to team up with @GeneticAll_UK to design specialised training for rare disease patient groups. With a general election coming up, would you be interested in free policy, advocacy and campaign training?
100%Yes
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6 votes • Final results
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Already seen over 170 turn up for todays #RareShowcase23! Our biggest in-person turnout ever!! Looking forward to what promises to be an amazing day 😁
Beacon for Rare Diseases (@RareBeacon) profile pictureBeacon for Rare Diseases@RareBeacon27 Nov 2023
Our COO, Mary Rose and CEO, Rick Thompson are kicking off what’s set to be an incredible day! 🥳
Image from Beacon for Rare Diseases (@RareBeacon)
Image from Beacon for Rare Diseases (@RareBeacon)
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Our COO, Mary Rose and CEO, Rick Thompson are kicking off what’s set to be an incredible day! 🥳
Image from Beacon for Rare Diseases (@RareBeacon)
Image from Beacon for Rare Diseases (@RareBeacon)
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Absolutely loved meeting Christine! 😄
Beacon for Rare Diseases (@RareBeacon) profile pictureBeacon for Rare Diseases@RareBeacon2 Nov 2023
One of the best parts of this year’s #WODC has been meeting @cmutena in person! 🧡 Christine runs Rare Disorders Kenya and has been part of our Patient Group Engagement Committee for the last 2 years - so pleased we could finally meet outside of a computer screen!
Image from Beacon for Rare Diseases (@RareBeacon)
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Say hello to our supporting partner, @rarebeacon booth 123! #WODC
Image from World Orphan Drug Congress (@orphan_drugs)
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Come say hello to me and my team! 👋
Beacon for Rare Diseases (@RareBeacon) profile pictureBeacon for Rare Diseases@RareBeacon1 Nov 2023
Come find us on stand 123 at #WODC! We’ve been told we’ve got some of the best swag of the conference! 👀🌟
Image from Beacon for Rare Diseases (@RareBeacon)
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Heading to London bright and early for @RareBeacon’s #RareWorkshop on #DigitalFundraising! 💸 Looking forward to seeing some real life faces today!😄 #Tired #5amAlarm
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Heavy is the rump that wears the crown. Introducing your Fat Bear Week 2023 champion, 128 GRAZER!!
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If you have no experience in the charity world and want to expand your knowledge on areas that matter most to rare disease patient groups, create a FREE account on The Resources Hub! 📚 💡Discover what you can achieve today! Sign up: ow.ly/aOq550PJkIH
Image from Beacon for Rare Diseases (@RareBeacon)
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Replying to @RareBeacon
@rarebeacon are looking for an experienced fundraising manager to join their team! View the full job description here and apply or share today: buff.ly/46GfMGI
An asset from Beacon: "Beacon is hiring. Join Beacon, a small and ambitious rare disease charity, as their next Fundraising Manager. Visit their website to find out more and apply by 26th July". A group picture of the Beacon team takes up the rest of the image, all smiling at the camera.

ALT An asset from Beacon: "Beacon is hiring. Join Beacon, a small and ambitious rare disease charity, as their next Fundraising Manager. Visit their website to find out more and apply by 26th July". A group picture of the Beacon team takes up the rest of the image, all smiling at the camera.

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309 days to go
Eurovision Song Contest (@Eurovision) profile pictureEurovision Song Contest
@Eurovision7 Jul 2023
Welcome back to Malmö! 🇸🇪 Malmö will host #Eurovision for the third time on 7, 9, and 11 May 2024 🥳 All the details here ➡️ eurovision.tv/story/malmo-wi…

Host City Reveal - Malmö 2024

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Beacon for Rare Diseases (@RareBeacon) profile pictureBeacon for Rare Diseases@RareBeacon14 Jun 2023
What a showcase! Thank you so much for such a memorable night 🧡 #RareShowcase23
Image from Beacon for Rare Diseases (@RareBeacon)
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*innocently* hey people who watched eurovision at the weekend, remind me what this character is called
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#DidYouKnow Our COO @MRoseRoberts is a HUGE @Eurovision fan? She made it to the live final AND was on TV!! MayRo is officially famous 🤩
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Only went and lived my life dream of attending a grand final of #Eurovision LIVE at the weekend didn’t I 😱😱😱 Oh, and what’s more? I WAS ON THE TV!!! 👀👀 What. A. Night. CHA CHA CHA CHA CHA CHA CHA 💚💚💚
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HAPPY #EUROVISION DAY TO ALL WHO CELEBRATE 🫶
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Who voted Albania through to the #eurovision final, c’mon own up.
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Australia has me LIVING 🙌🏼🙌🏼🙌🏼 100% qualifying and I CANNOT WAIT to see it live on Saturday night. That is all.
Eurovision Song Contest (@Eurovision) profile pictureEurovision Song Contest
@Eurovision11 May 2023
Promise me it's gonna be all-ROIIIIGGHHHT 🇦🇺 #Eurovision

🇦🇺 Australia | Voyager - Promise

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