The leading patient organisation for inherited metabolic disorders supporting thousands of patients worldwide to live well today, tomorrow
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ALT People taking part in a group discussion around a table, with text announcing the UK government’s national conversation on SEND.
ALT Lesley, Beki and Peter Greene, founders of Metabolic Support UK smiling. Beki is holding a medal and wearing an MSUK branded running vest. The text highlights the SMC approval for a cystinosis treatment.
ALT Purple graphic with text reading: You are not alone, click the link below for an A-Z of mental health organisations. A graphic of a head representing mental health is shown.
ALT Community member smiling stood next to our large A0 poster sharing the results of our hyperammonaemia survey.
ALT Man and two boys smiling while doing arts and crafts at a table.
ALT Two trustees, Carl & Paul smiling for a posed photo.
ALT Small handmade playdough zebra figure decorated with googly eyes and colourful playdough
ALT Young man standing on grass wearing a navy hoodie and light trousers. Text on the image reads: “MCADD cannot hold you back, only you can do that.” Below it says: “James Ford who lives with MCADD.” The Metabolic Support UK logo appears in the top right corner.
ALT Ellen and Kirsty stood in a hospital corridor smiling at the camera.
ALT Large screen in a lecture theatre with a slide on encephalopathy.
ALT Yellow graphic promoting the Beacon for Rare Diseases Event titled "Let's Get Down to Business".
ALT Image description: Graphic with a purple background. Bold text reads "Think Ammonia. Test Earlier. Save lives." Underneath is white text reading: "One year ago, Metabolic Support UK launched the “Think Ammonia!” campaign aiming to save lives through earlier and accurate ammonia testing. This campaign now spans nine countries, eight languages and is driving change to improve outcomes around the world." Further bold text asks people to read more in the report with a QR code linking to the report. A young girl smiling and holding get well soon cards is pictured.
ALT Image Description: Graphic with purple background. Bold text reads "This is Rohan". Underneath is white text reading "Rohan lived undiagnosed with a Urea Cycle Disorder, a rare condition where the body cannot properly remove the ammonia produced when protein is broken down. Rohan Godhania sadly died aged 16 in 2020 after developing dangerously high levels of ammonia, triggered by a protein shake. This only came to light when the recipient of his donated liver became seriously ill, as the disorder had been passed on through the transplant. His story, and too many others are the guiding light for the campaign." An image of Rohan is shown. He is smiling.
ALT Graphic from Metabolic Support UK with a purple and pink background. Top left shows the charity’s logo with the tagline: ‘Your rare condition. Our common fight.’ On the right, illustrations of three people in an online video call. Main text reads: ‘The NHS 10 Year Plan: What does it mean for the IMD community?’ At the bottom, a link icon followed by the text: ‘Read about it now, link in caption.
ALT Purple and raspberry graphic promoting the "Think Ammonia: Year One Report" which is set for release on the 15th September 2025. An image of the front cover of the report is shown.