@LongCovidScot

Long Covid Scotland is a charity & action group led by & advocating for people living with Long Covid.

 Scotland
longcovid.scot/
Joined September 2020
  • Tweets9.9K
  • Following1.1K
  • Followers4.9K
479Media
An update for our members as Long Covid Support today changes to Long Covid UK. we hope this answers any questions our shared members might have.
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When does local flexibility become unacceptable variation? People with Long Covid should not face different standards of care simply because of where they live. Access to appropriate care should not become a postcode lottery. #LongCovid #LongCovidScotland #HealthInequalities
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change.org/p/make-me-cfs-lea…

Sign the Petition

Make ME/CFS learning mandatory for NHS staff

change.org
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jamanetwork.com/journals/jam…

Long COVID: The Problem Society Wants to Forget

Long COVID, including the difficulty in defining it and caring for patients experiencing it, is discussed by JAMA Senior Editor Derek C. Angus, MD, MPH, and E. Wesley Ely, MD, MPH, professor of...

jamanetwork.com
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Long Covid Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 retweeted
Adam@ABrokenBattery
Sep 26
Symptoms are “horrible” and severe cases are a “living nightmare.” George Monbiot speaks to Natasha Devon on LBC about ME/CFS, it’s long history of being dismissed and psychologised, and the role of governments and insurers.
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Long Covid Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 retweeted
Adam@ABrokenBattery
Sep 26
Full interview (9 mins): youtu.be/H2rRf_f2hJs George’s recent article theguardian.com/commentisfre…

LBC | Natasha Devon interview with George Monbiot

George Monbiot speaks to Natasha Devon on LBC about the decades of ...

youtube.com
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Long Covid Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 retweeted
Long Covid Advocacy 💙
@LongCovidAdvoc
Sep 24
Excellent news. The coverage on the ME scandal is continuing! George Monbiot will be on Natasha Devon's LBC show this Saturday 6-9pm 📻 #pwME
A repost from Natasha Devon stating: "George will be coming on my show this weekend to discuss this very important article." She attached a post from George Monbiot that reads: "Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2"

ALT A repost from Natasha Devon stating: "George will be coming on my show this weekend to discuss this very important article." She attached a post from George Monbiot that reads: "Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2"

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theguardian.com/commentisfre… A powerful piece by George Monbiot on neglect & dismissal experienced by people with ME/CFS — one that explicitly recognises the connection with Long Covid. The same failures of recognition, appropriate care & clinical understanding. We must do better.

Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed...

Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot

theguardian.com
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Health boards were given £4.5 million to set up services for #LongCovid, MECFS and other conditions, yet this is not seen in practice. We need to hold Health Boards accountable to how this money is spent, and whether they are incorporating lived experience into these new services
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thesicktimes.org/2026/09/21/…

COVID-19 — not TikTok — is disabling young women - The Sick Times

The Telegraph published an article titled, “How having a disability became cool." This article shores up the government narrative that rising rates of disability are being driven, not by the ongoing...

thesicktimes.org
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Long Covid Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 retweeted
Adam@ABrokenBattery
Sep 21
Update: George has now received enough responses, so please don’t send any more emails. I will delete my original post.
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Save the date! Long Covid Scotland’s 2026 AGM will take place online on Tuesday 3 November at 6 pm. We’ll also be joined by guest speakers, with more details to be announced soon. Keep an eye on our socials for registration details!
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Save the date! Long Covid Scotland’s 2026 AGM will take place online on Tuesday 3 November at 6 pm. We’d love to see you there. More details, including registration and our guest speaker, coming soon! #longcovidscotland #longcovid
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What does prevention mean for people already living with Long Covid? Prevention must include preventing deterioration and ensuring people are not left without appropriate care. We’ll keep asking what this means in practice across Scotland. #longcovidscotland #longcovid
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Met with your MSP? Follow up on any actions agreed and keep the conversation going. If you’re happy to, let us know how it went. FOI guide & briefings: drive.google.com/drive/folde… #longcovidscotland #longcovid
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Thinking about meeting with your MSP about Long Covid? Preparation can help you raise the issues that matter. Make the meeting work for your health and ask for support if needed. Find your local Health Board briefing & FOI guide: drive.google.com/drive/folde… #longcovidscotland
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Long Covid Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 retweeted
Long Covid Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿@LongCovidScot
Sep 16
Will we see today’s commitments from Ministers delivered through the new Long Term Conditions Framework? We need condition-specific care, backed by clear clinical leadership and accountability. The test will be translation into real, accessible care for Long Covid and ME.
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This week we’re asking you to write to your MSPs, share the health board briefings, and ask to meet. Let’s hold services accountable! Find your MSPs here parliament.scot/msps/current… Further info here drive.google.com/drive/folde… #LongCovid #LongCovidScotland
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Will we see today’s commitments from Ministers delivered through the new Long Term Conditions Framework? We need condition-specific care, backed by clear clinical leadership and accountability. The test will be translation into real, accessible care for Long Covid and ME.
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@JohnSwinney @scotgovhealth @AConstance23 @MareeToddMSP @jackiebmsp @agcolehamilton @Gillian_Mackay1 @Malcolm_Offord @RussellFindlay1
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We need to hold services accountable. Write to your MSP, share the health board briefing and ask to meet. Let’s work together to lobby for the services that we desperately need Further info saved here drive.google.com/drive/folde… #LongCovid #LongCovidScotland
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