@LRH33

Campaigning for better testing & treatment of recurrent & chronic UTIs.

Joined January 2017
  • Tweets2.1K
  • Following539
  • Followers728
62Media
1. Update from me & @black_treacle - THANKYOU for letters from cUTI sufferers, its paid off. @NHSDigital published full section on Chronic UTIs on UTI page with ADDITIONAL changes, now recognise difference between symptoms with recurrent & chronic UTI, cUTI symptoms don’t go away
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So powerful. Thanks channel 4 for taking chronic UTIs seriously. Hope @NHSEngland & @DHSCgovuk finally listen channel4.com/news/chronic-ut…

Chronic UTI: The difficulties of life for 1.6 million sufferers

UTIs, or Urinary Tract Infections, are common for many people - and for most of them it's easily managed with routine NHS treatment. But for around 5 million women in the UK, the infection keeps...

channel4.com
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In 2022 NHS ENGLAND (fka NHS DIGITAL) acknowledged Chronic UTI & amended the IC page to include cUTI. NOW I’ve found that reference to cUTI has gone. Zero consultation with patients, doctors or charities that campaigned for the change. We must fight back to ensure its reinstated.
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@ChronicUTI @cUTIrUTIAusNZ @ChronicUTIAus @cuticuk @BIIG_UCL @BladderHealthUK @ConfusedBladder @RKhasriya @_kirengill @JoanneMckinlay4 @cUTIawareness @NHSuk @NHSEngland @NHS @chrisharding123 @sachmalde @DrAFocusMedical @GlobalUti Please repost & get text in red box reinstated
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UK delivers again! Huge accomplishment for Chronic UTI!!! ⤵️⤵️⤵️⤵️⤵️ There will be a debate in Parliament next Wednesday 21st May between 9.30am and 11.00 am on Chronic UTI! Bravo 👏🏼👏🏼👏🏼
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Great to see the @ALTAR_Trial changing guidelines and clinical practice - so proud of the whole team @NewcastleHosps and @UniofNewcastle and all the sites across the UK. Thank you. nice.org.uk/guidance/ng112
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We need action on Chronic UTI too which is ruining thousands of womens lives & is being entirely neglected in funding, research & treatment - cUTI community please tell the committee your stories!
Women & Equalities Committee
@CommonsWEC11 Dec 2024
'Medical misogyny' is leaving women in unnecessary pain and undiagnosed for years. Read our report on women's reproductive health conditions. publications.parliament.uk/p…
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@cuticuk @JoanneMckinlay4 @BladderHealthUK @BIIG_UCL @ChronicUTI @RKhasriya @_kirengill @ChronicUTIAus @cUTIrUTIAusNZ
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@connie_dimsdale
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Eventbrite event on 5th December with Dr Raj Khasriya and a panel of experts discussing urinary tract infections. An interesting and informative discussion. Urinary Tract Infections: The burning problem. eventbrite.co.uk

Eventbrite

Eventbrite - Discover the Best Local Events & Things to Do

eventbrite.co.uk
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Prof Jenny Rohn at the Bladder and Kidney Health Symposium in Melbourne this morning. Multispecies infections are common in human UTI and are dismissed in lab reports as 'contamination'! 🧫🦠🔬🧐 #chronicUTI #TranslationalMedicine #UTIs
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Multi species infections - common in UTI - Dismissed as “Contamination!” ⬇️‼️⬇️‼️⬇️
Chronic UTI Australia Inc.
@ChronicUTIAus15 Nov 2024
Prof Jenny Rohn at the Bladder and Kidney Health Symposium in Melbourne this morning. Multispecies infections are common in human UTI and are dismissed in lab reports as 'contamination'! 🧫🦠🔬🧐 #chronicUTI #TranslationalMedicine #UTIs
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Such a huge a huge response to this yesterday. So great to have @JoanneMckinlay4 join @TVNaga01 and @DrEkechi & @DrNighatArif for a special on chronic UTIs. Listen here 👇🏻 bbc.co.uk/programmes/p0k49n8…
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'Game-changing' 🌟🌟🌟 ⁦@AmerUrological⁩ - Knock Knock - Hello?! WAKE UP!! On 12 December, the National Institute for Health and Care Excellence (Nice) will recommend methenamine hippurate – also known as Hiprex – for preventing recurrent UTIs. inews.co.uk/news/health/chro…

Drug costing chronic and recurrent UTI patients £500 a year set for NHS rollout

'Game-changer' drug Hiprex is set to be approved for NHS use - but there is still no official guidance for treating chronic UTIs 

inews.co.uk
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Huge step forwards for primary care treatment. Thank you Connie Dimsdale from the iNews for this article. UK sufferers should be able to have Hiprex prescribed by their GP from December. inews.co.uk/news/health/chro… @theipaper @connie_dimsdale #chronicUTI #cUTI #recurrentUTI

Drug costing chronic and recurrent UTI patients £500 a year set for NHS rollout

'Game-changer' drug Hiprex is set to be approved for NHS use - but there is still no official guidance for treating chronic UTIs 

inews.co.uk
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Congratulations to Verity de Cala for her winning podcast CUTI. Thanks to all who participated in this. open.spotify.com/show/3n6ZuI… #ChronicUTI #cUTI
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stylist.co.uk/health/chronic…?

Living with a chronic UTI: one woman on the mental health impact

One woman shares her story of living with chronic UTI symptoms, including extreme pain and gut dysbiosis.

stylist.co.uk
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Replying to @thismorning
@thismorning - 🤬🤬 Based on extensive science over the last 1-2 decades, *everything Dr. Jean McDonald said on your show was not only based on 75+ years of assumption, but has now been DEBUNKED. #CystitisUnmasked Here’s the segment ⬇️⬇️⬇️ youtu.be/AXSsgwH2AnU?si=fBm6… via @YouTube
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Job alert - just a reminder about this short postdoc in my lab to work on catheter-associated urinary tract infection models - closes 7 April. Do apply, or contact me informally for more info! Interesting science, friendly team, industry links. #UTI jobs.ac.uk/job/DGO743/resear…
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Late to listen to the final epi of CUTI, a powerful episode, giving people a window into the horrors of Chronic UTI. Lower back & bladder burning while I listened & wondering whether @NICEComms @rcgp & @BAUSurology will ever properly act? Try listening podcasts.apple.com/gb/podcas…

S1 Ep3: Community, Chronic pain, and UTIs in Children

Podcast Episode · CUTI · S1 E3 · 19min

podcasts.apple.com
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