@LLuxner

Veteran journalist covers global politics & rare diseases, with focus on Mideast, Asia, Africa & Latin America. Loves hiking, saltwater fish and license plates.

 Tel Aviv
luxner.com
Joined June 2010
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61Media
My feature in today's @RareDisease_Adv. #SOARAct02. #WorldOxygenDay @PHAssociation @PFFORG #CHEST2024 @LungAssociation @PennMedPH @PFWarrior #COPD @TheCQRC @ahajaricase @RareDiseases @aarc_tweets @atscommunity @COPDFoundation @accpchest rarediseaseadvisor.com/featu…

Patients Seek Reforms to Supplemental Oxygen Access and Regulations

The SOAR Act would ensure people requiring supplemental oxygen can live full lives outside of their homes.

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My story on @RareDisease groups lobbying Congress to save the #pediatricdrug voucher program before it expires. @MDAUSA @CureDuchenne @ParentProjectMD @CureSMA #NORD @CureFA_org @US_HAEA @PWSAUSA @RareDisease_Adv @LEMSFamily @CF_Foundation @hemophiliafed rarediseaseadvisor.com/featu…

Rare Disease Groups Lobbying Congress to Save Pediatric Drug Voucher Program

The Rare Pediatric Disease Priority Review Voucher program allows FDA review of an application to be completed in 6 months instead of 10.

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My story in @RareDisease_Adv on #MIT math whiz Ben Lou, who maintains a perfect 5.0 GPA despite his #spinalmuscularatrophy, and his caregiver mom Jenny Huang. @mdaorg @RareDiseases @SMA_UK_ @huang_huihua #SMA #RareDisease @CureSMA rarediseaseadvisor.com/featu…

With Mom's Help, MIT Math Whiz Makes His Mark Despite Lifelong SMA Challenges

Benjamin Lou, 21, leads a team of engineers who are developing a self-feeding device for people in situations similar to his.

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Read my story, #LicensePlates trace history of world in chaos" then take the quiz! @perry_dan @licenseplatetok #Israel #Palestine #Kosovo #Serbia #Armenia #Karabakh #Gaza #jewishplates danperry.substack.com/p/lice…
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My story in @JTAnews on how #Albania saved #Jews during the #Shoah. @AlEmbassyIsrael @USAmbAlbania @AlEmbassyUSA @perry_dan @diana_mjeshtri @olgas_table @uni_Elbasanit @Univ_Elbasan @ushmm #neveragain #IsraelAlbania @Isaac_Herzog @AJCGlobal #Holocaust jta.org/2024/09/12/global/in…

In Albania, which saved Jews from the Nazis, educators teach the Holocaust to a new generation -...

Thousands of foreign Jews found refuge in Albania during World War II. Yet youths in this once-Marxist nation of 2.6 million know nearly nothing of that unique legacy.

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jta.org/2024/07/19/global/an… @JTAnews #Andorra #Jews. #Pyrenees @eurojewcong @EUJS @EuropeanJews @ANDORRA_UN @ANDORRA_EU @AJCGlobal @Spain4Israel @IsraelEconSpain #Catalan #Antisemitism #MoroccanJews

Andorra’s 73 Jews are proud of their tiny community. Just don't call their home base a synagogue. -...

The tiny microstate nestled between France and Spain is officially Catholic — and friendly with Israel.

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My feature on #French singer #CharlesAznavour in @JTAnews #Armenia #Israel @perry_dan #Jewish @usembarmenia @DGArmenia @Lara @MFAofArmenia @AznavourFound @DiasporaGovAm @armembusa @AJCGlobal @TheJDC @ArmenianJewish @ilyadorfman @artiomhay @JewishArmenian bit.ly/3v3sMrX

French crooner Charles Aznavour loved Jews. A new museum in Armenia will tell that story. - Jewish...

Delayed by war in Nagorno-Karabakh and other obstacles, the Aznavour museum will document how his family saved Jews in Paris during WWII.

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#Albania protected #Jews from the Nazis during WW2. Will it #StandWithIsrael now? My story in @JTAnews. @diana_mjeshtri @perry_dan #Besa #Jews #Kosovo @IsraelinAlbania @luljetakrasniq5 @Gacaferri #Hamas @The_AADF @YadVashemUSA @princeleka @DiplomatTirana bit.ly/49c77gL
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New approaches to #GeneTherapy: @EdgewiseTx and @locanabio target #RNA mechanisms for treating #Duchenne. Read my story in @RareDisease_Adv! #snRNA @CureDuchenne @MDAorg @TeamJosephInfo @Sarepta #Elevidys @ParentProjectMD @RareDiseases @JettFoundation bit.ly/44BrLnN

Edgewise and Locanabio Target New Mechanisms for Treating DMD

Edgewise Therapeutics focuses on small-molecule therapies to preserve muscle in patients with DMD, while Locanabio is working on snRNA technology.

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Experts urge #GeneticScreening for all prospective couples, not just #pregnantwomen. Read my story! @RareDisease_Adv. @AusGenomics @HyettJon @acog @MDAorg @CureDuchenne @CF_Foundation @eurordis @TaySachs @GeneticAlliance @jewishgenetics @ranzcog #Australia bit.ly/43GWZZ7
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#Cambodia's 23 July elections will be anything but fair. Read what Ambassador Keo Chhea has to say about 'democracy' in this traumatized nation. @diplomatnews @USEmbPhnomPenh @cambodiadaily @SAHR_Watch @AIUK_SEA @USMission2ASEAN @JoshKurlantzick @TheWJP bit.ly/3DhQP7j
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#Azerbaijan's envoy to the US @KhazarIbrahim talks to Washington Diplomat about current #Caucasus #Iran tensions. @AzerbaijanMFA @diplomatnews #Baku #Armenia @hazar_Khazar @JTalibzade @AzEmbTelAviv @Azismission @USEmbassyBaku @azembassyus @VugarMammadov20 bit.ly/3XYb57d
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