@JournalofCF

Posting content from the Journal of Cystic Fibrosis, European Cystic Fibrosis Society and Cystic Fibrosis Research News. Follows do not indicate endorsement.

cysticfibrosisjournal.com/
Joined April 2016
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Cystic fibrosis bone disease treatment: Current knowledge and future directions Journal of #CysticFibrosis @JournalofCF cysticfibrosisjournal.com/ar…
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Dr. Scott Blackman ⁦⁦@hopkinscf⁩ ⁦@HopkinsKids⁩ pediatric endocrinologist presents his research on #cysticfibrosis related diabetes at #NACFC and shows off the recent ⁦@JournalofCF⁩ issue on #Endocrinology in #CF.
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Lisa Saiman infection control guru is addressing the CF Conference now. Live streaming on cysticfibrosis.org.au go to the Consumer Connect tab. Her presentation will be hosted on Consumer Connect for all to see.… instagram.com/p/B0sAUf2ACsi/…
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Help CF Research in under 20 minutes 🌹 Contact Irushi on 03 9903 0570 to help Monash University and the Cystic Fibrosis Data Registry and get a free gift voucher :)
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Journal of CF retweeted
Question CF@questionCF1 Aug 2019
surveymonkey.co.uk/r/cfmeds a little while ago we surveyed GPs and community pharmacists about access to meds for people with CF. We’ve loads of info from that but it means we’ve got a couple of questions to ask carers of and people with CF, please let us know what you think!
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Journal of CF retweeted
DE CARLI Paola@paodecarli1 Aug 2019
Retour sur la conférence Européenne #ECFS2019 #cysticfibrosis #mucoviscidose La @FiliereMucoCFTR publie la synthèse de 11 symposia et 4 workshops : de la lecture pour le reste de l'été #CFTR #pseudomonas #activitephysique #nouvellestherapies #resistance #infection @vaincrelamuco
Filiere Muco-CFTR@FiliereMucoCFTR1 Aug 2019
[ECFSC2019] Retrouvez la synthèse de certains symposiums et workshops de la conférence européenne de Liverpool sur notre site ! muco-cftr.fr/index.php/la-fi… #mucoviscidose #ECFS2019 #cysticfibrosis
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The following is a Media Alert from the Office of the Hon. Greg Hunt MP
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Find out about starting a family while living with cystic fibrosis in our Family Planning pack: cysticfibrosis.org.uk/fertil…
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Minden amit az európai országok (köztük a sajátunk is természetesen) #CF betegstatisztikákról tudni lehet. Az @ECFSRegistry által publikálva :) #ECFSRegistry #ECFS #cysticfibrosis #cisztásfibrózis #CFHun
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Une mine d'information, le registre européen de la mucoviscidose
Journal of CF@JournalofCF16 Jul 2019
The #ECFS Patient Registry Annual Data Report 2017 is available with demographic and clinical data from people with #cysticfibrosis throughout Europe and neighbouring countries who agree to participate in the Registry. - ecfs.eu/projects/ecfs-patien…
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[#MucoRecherche] 🔬Un nouvel article scientifique est en ligne. « Le monoxyde d’azote contre les infections pulmonaires à Mycobacterium. » ➡️ vaincrelamuco.org/mediathequ… #VendrediLecture #Recherche #mucoviscidose
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Study highlights that physical functioning symptoms lag in recovery from a #cysticfibrosis pulm exacerbation. Have you heard, "I dont feel back to my baseline" even when FEV1 and cough are better? Need to cure all the symptoms and encourage exercise! @CCF_PCCM @gretchemaben
Journal of CF@JournalofCF10 Jul 2019
#CFResearchNews: How does quality of life change at different stages of a #cysticfibrosis pulmonary exacerbation (before, during, and after)? ow.ly/Afe750uUNQq
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Replying to @JournalofCF
Fantastic resource 👏
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Check an IgE with blood work done at time of #cysticfibrosis or #bronchiectasis exacerbation. @CCF_PCCM Dx of ABPA changes managment.
Journal of CF@JournalofCF7 Jul 2019
ow.ly/U8Lx50uUNrb
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Fantastic resource
Journal of CF@JournalofCF5 Jul 2019
The ECFS Book - The early #cysticfibrosis years. Editors are Kris De Boeck and Kevin W. Southern. Available in free access on ecfs.eu/content/ecfs-book
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Journal of CF retweeted
Tamarah Katz@KatzTamarah3 Jul 2019
So interesting. The CF public have spoken. We clearly need more gastroenterologists engaged in CF research. @KeithCYOoi
Journal of CF@JournalofCF3 Jul 2019
Do current clinical trials in #cysticfibrosis match the priorities of patients and clinicans? A systematic review is the latest #JournalCF short communication. ow.ly/1y1450uPUlz
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Journal of CF retweeted
Tracey Daniels@thecfphysio5 Jul 2019
Highly recommend this bedtime reading @acpcf @TheACPRC @ApcpResp
Journal of CF@JournalofCF5 Jul 2019
The ECFS Book - The early #cysticfibrosis years. Editors are Kris De Boeck and Kevin W. Southern. Available in free access on ecfs.eu/content/ecfs-book
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I had the honor of writing the foreword
Journal of CF@JournalofCF5 Jul 2019
The ECFS Book - The early #cysticfibrosis years. Editors are Kris De Boeck and Kevin W. Southern. Available in free access on ecfs.eu/content/ecfs-book
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Replying to @CF_Foundation
@CF_Foundation registry study: 1) Most #CysticFibrosis pulmonary exacerbations are treated with oral antibiotics 2) ~1/3 were not seen in clinic in the next 90 days Comment: #QI Processes for exacerbations targeting f/u in 2-4 weeks improves outcomes. @gretchemaben
Journal of CF@JournalofCF4 Jul 2019
Study of predictors of pulmonary exacerbation treatment in #cysticfibrosis finds markers of disease severity are associated with antibiotic treatment choice. #JournalCF ow.ly/AyVC50uPUNk
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We need your 20 minutes! Contact Irushi on 03 9903 0570 to help Monash University and the Cystic Fibrosis Data Registry and get a free gift voucher :)
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