Founded 2014 & Inspired by Nicci Gerrard's father, John. For the right of people with dementia to be supported by their family carers [email protected]
Joined December 2014
- Tweets21.9K
- Following11.3K
- Followers11.3K
- Likes21.6K
John's Campaign retweeted
Thank you to the Inquiry Core Participants who signed with us: @CovidJusticeUK @JohnCampaign @LongCOVIDPhysio @LongCovidSOS @long_covid, Covid Bereaved Families for Justice Cymru, Scottish Covid Bereaved and David Osborn.
John's Campaign retweeted
After what was supposed to be a straightforward hip replacement at St James’s Hospital, Sinead Ryan’s once vibrant 88-year-old mother suffered a severe cognitive decline during a agonizing 11-week stay. Contracted infections and a denial of vital rehabilitation were compounded by placement on a chaotic mixed-gender ward, stripping the elderly woman of basic dignity and peace. Systemic inflexibility stonewalled the family’s frantic efforts to advocate for proper care, with staff prioritizing private insurance forms over transparent communication or access to her medical team. When confronted, hospital management hid behind infrastructure limitations and bureaucratic jargon, offering zero accountability or even a simple apology for the trauma caused. Today, safely settled in a nursing home, her mother is spared any memory of the ordeal, but the painful reality remains: an uncaring, inflexible healthcare system utterly failed a vulnerable woman when she needed it most.
#StJamesHospital #SineadRyan #SubstandardCare #Trauma #HumanRightsDoNotGrowOld #HSE @roinnslainte @kodonnellLK
@CarrollJennifer
Good care starts with psychological safety - but the reality for dementia patients is too often fear, says JC Ambassador Sonia Blake johnscampaign.org.uk/post/go… via @JohnCampaign
John's Campaign retweeted
Journo request
Men’s Experiences with Care Home & Home Care Routines
A journalist is looking to speak with a man receiving care (in a nursing home or via home carers) about how care schedules impact daily life, such as being put to bed early due to carer shift times or losing control over your routine.
Please send a message to be put in contact.
John's Campaign retweeted
The Dementia Team at #broomfieldhospital walking for #memorywalk @alzheimerssoc #alzheimerssocietymemorywalk #chelmsford #DementiaAwareness @NHS #worldalzheimersmonth #awareness @NHSEngland @JohnCampaign #MemoryWalk #Essex #EndDementia
John's Campaign retweeted
Hi @MotherMRuss PLEASE can you RT👇and help us start a much needed national debate on our overstretched and under resourced mental health services, we would really appreciate it
John's Campaign retweeted
Another inspiring #blog on the @JohnCampaign website and another great Trust recognising the important part that family/care supporters/partners play in the care of someone, especially with #dementia when in hospital - thank you all #RightsForResidents
johnscampaign.org.uk/post/wh…
John's Campaign retweeted
What would happen to your loved one if you couldn't care for them? Crossroads Direct’s Emergency Care Plan provides support if the unexpected happens. With a personalised plan, help is there when you need it. From £10 a week. ow.ly/5AFk50ZMB1a #Carers #EmergencyCare #Surrey
John's Campaign retweeted
"When Mike didn't qualify for the funding, it was one of the most distressing moments of our dementia journey." - Trish.
NHS continuing healthcare (CHC) funding can be a lifeline for people affected by #dementia, but too many families are missing out because the assessment process is flawed.
Join Trish and over 22,500 others calling for a fairer CHC system by signing our petition today: action.dementiauk.org/fix-nh…
John's Campaign retweeted
@BDCFT @OlwenThomas @sallyrb74 @ShapeStudy @JemHaydonMoore @MindHEY @jreynoldsMP @SimonJGuilfoyle @AshyMarc @aideence @JohnCampaign @gazlamph @OL_McK @JAGpr @Home_Safari @mhldforum @mindtreeDBT @Mensmovementcom please retweet
'how little our voice mattered to the medical profession' Susan’s Story: The Experience of Caring for My Mum with Autoimmune Encephalitis, Epilepsy and Mental Illness johnscampaign.org.uk/post/su… via @JohnCampaign
John's Campaign retweeted
Dementia HUB at Broomfield Hospital #broomfieldhospital #carersfirst #livitylife #essexrespiteandcareassociation #alzheimerssociety #dementiacare #dementia #MSE #NHS @alzheimerssoc @JohnCampaign @NHSEngland @NHSuk @SocialistNHS
“If You Can’t Help Your Own, Who Can You Help” asks OT student Jessica Hayes johnscampaign.org.uk/post/if… via @JohnCampaign
"We must move beyond the idea that visiting is a set time, a controlled event, or a privilege to be granted." TY @RWT_NHS Hearing Patient and Carer Voices, Part 1 — From Visiting to Presence: Why “Partners in Care” Must Be the Future johnscampaign.org.uk/post/he… via @JohnCampaign
John's Campaign retweeted
Registering as a #carer with your GP may give you access to additional support for your physical and mental health, and help you find local support groups or respite services.
Find out more: dementiauk.org/information-a…
#CarersWeek
ALT Infographic explaining the benefits of registering with your GP: flexibility when booking doctor's appointments, support with mental health, free annual health checks, and prescriptions delivered to your home. The graphic includes icons of a heart, a clock, a location pin, and a stethoscope, all in a pink and blue colour scheme.
Too true in England as well. Future generations will look back in horror - as we used to look back to the Victorian hospitals before Florence Nightingale. It's shameful
Regrettably, this is not an isolated incident within our emergency departments. the conditions are profoundly inhumane. Despite senior leadership within the HSE and government being fully aware of these systemic issues, vulnerable patients are still required to navigate this environment for medical assistance. The situation has deteriorated to the point where some individuals feel too ill to even risk attending an A&E.
@CarrollJennifer @roinnslainte
#Lunchtimelive #EDs #emergencyDept #Inhumane #HSE
John's Campaign retweeted
Ahead of #CarersWeek next week, we'd love to hear from you. What's one thing that's made a big difference to you as a carer?
Share your answer in the comments to help inspire and support other carers. 👇
ALT Speech bubble with the text: What’s one thing that's made a big difference to you as a carer?
John's Campaign retweeted
Carers UK Chief Executive, @Helen_M_Walker, responds to the Second Reading of the Health Bill, calling for further clarity on whether the Single Patient Record will be made available in its entirety to unpaid carers.
Read the full response here: bit.pulse.ly/rbvfnvm97n
ALT Red background with a white text quote from Helen Walker, Chief Executive of Carers UK. It discusses the inclusion of unpaid carers in the Health Bill and the potential impact of the Single Patient Record. The Carers UK logo appears at the bottom left.
Why does Johns Campaign matter? Thanks @SparkleLgbt and @RWT_NHS for spelling it out youtu.be/7jQ6G4xy858?si=pFqU…
John's Campaign retweeted
If you’re interested in ‘Supporting People Living with Dementia in Extra Care Housing’ have a look at our web page to find booklets, films and an infographic adsdementiablog.wordpress.co…
ALT image showing a photo of the booklets, the infographic, and a still from one of the films, together with a QR code to take you to the web page