Women on the island of Ireland, affected by mesh. Focused on improved access to public healthcare for mesh injured. [email protected]

Ireland
Joined August 2018
Irish politicians take note. This offer came to our shores first and was ignored: @sean_haughey @TommyBroughanTD @SimonHarrisTD @campaignforleo @MichealMartinTD @MaryLouMcDonald @bridsmithTD @RoisinShortall @rtenews @HSELive @ClareDalyTD @AnnBoni1 @senatornoone @SeanCroweTD
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Mesh Ireland retweeted
The UCLH surgeon has already admitted in a tweet they cannot remove all the mesh so it is a pointless exercise to remove mesh injured women from a support group with all the upset that entails
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Mesh Ireland retweeted
So sad when women are thrown off a support group when they need help. Especially when they are telling the truth @SusanMorgan19 @gina_knows @MeshiesU @TVTMum @Carolyn68250628 @BevHolt1 @IMMDSReview
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Mesh Ireland retweeted
A lot more people have been jettisoned from STM for saying that mesh does not shrink and that the UCLH surgeon only does a partial removal on an obturator mesh. I just don't understand that behaviour Why are they putting this surgeon on a pedestal and protecting them?
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As regards losing engagement from surgeons, @MeshCampaign has single handedly done more damage to mesh injured women than #mesh will ever do by doing what they did to @DrVeronikis by questioning his intentions. I have never met a more honourable human.
Unfortunately we have lost social media engagement from a lot of the surgeons that were participating in the Twitter mesh debate - there can be some quite vitriolic posts directed at individuals and whilst I understand the depth of feeling it is a shame and hinders progress.
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Mesh Ireland retweeted
Are there once again consent issues here? Women left with significant mesh in situ, when consent states full removal, only to find themselves facing further trauma and complex surgery. New guidelines need to reflect and change needs to come.
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Mesh Ireland retweeted
Strong #mesh advocate voices targeted. 'Discuss' threads to stir toxic comments behind 'closed' doors. Shares, likes, vile words. Mud slinging and publishing to 1000s. @electric_11 @IrisHen43893489 @AnnBoni @channing_stella @MBLacey @CazChisholm @noacy @moopudding @IMMDSReview
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Mesh Ireland retweeted
I am fairly new to viewing it ( I only sought support for mesh issues around June this year). I had to say something but now I see that proper dialogue is not really being had Iโ€™ll stop. I agree with you that no one should be blocked (either position) - it never helps!
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Mesh Ireland retweeted
Replying to @KathSansom
@KathSansom global #mesh community is asking whether you penned the offending tweet about @DrVeronikis? Twitter account is in your name? If not, can the author owe up - we would like to know @MBLacey @AnnBoni1 @miJemima @channing_stella @CazChisholm @TammyJa54001341
Mesh Ireland retweeted
@LaughAnil you are missing the point I think. @WaelAgur has a list of declared conflicts as long as your arm but @meshcampaign have no issue with that. Why is @DrVeronikis being targeted for his declared conflicts? No support from @meshcampaign in this matter. As simple as that.
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Mesh Ireland retweeted
#Mesh group politics aside. Solidarity needed for @IrelandMesh campaign to bring @DrVeronikis to patients. @electric_11 @IrisHen43893489 @AnnBoni1 @gina_knows @moopudding @MBLacey @KarenPreater @miJemima @meshsurvivorire @meshgirlni @MeshiesUnited @MeshUKCT @TVTMum
Since Aug @SimonHarrisTD and @hscpermsec sit on offer from top US full mesh removal surgeon @DrVeronikis to come to Ireland to train docs and perform pro bono surgeries or to perform backlog surgery akin to Wait List Initiative model. @mlchealth @Lisa_J_Smyth @rachelmoss_
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Transparency is key. We have gained hugely from @DrVeronikis presence on Twitter. Women are now better placed to make an informed decision about removal. We didn't previously have a surgeon willing to be so generous with time and knowledge, so we're deeply appreciative.
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IMO, any high volume #mesh removal surgeon who is removing the same brands of mesh on a daily basis should not tell a patient that due to shrinkage, 6cm is a full removal. That's a blatant lie. No question about it.
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Mesh Ireland retweeted
Surgeons who remove mesh should be pretty clear by now if the material stretches or shrinks. Surely if you are carrying out a full removal the removal surgeons should know roughly how much mesh they have to remove. In my case 5cms does not constitute a full removal now does it?
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Complete=Total=Entire=All. Partial removal of #mesh is none of these. Complete is all parts, not just removal from urethra. If a surgeon can remove it all, do it once and do it all, otherwise leave it alone @MaryRMcLaughlin @chrisharding123 @urohash @ElneilSuzy @JanUrban12
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Mesh Ireland retweeted
New Zealand sorting out accreditation for surgeons who perform mesh surgery. Come on @NHSEngland You need to put your house in order. odt.co.nz/news/dunedin/sdhb-โ€ฆ @chrisharding123 @urohash @ElneilSuzy @Natalia44723101 @torjur @MaryRMcLaughlin @electric_11 @gina_knows @MBLacey
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Subject of a very recent discussion with @DrVeronikis so input from other removal surgeons would be appreciated @urohash @chrisharding123 @ElneilSuzy @AnnBoni1 @MaryRMcLaughlin @Carolyn68250628 @BevHolt1 @gina_knows @torjur
New video shows ๐Ÿ’ฏ% removal of TVT laparoscopically including subdermal and rectus portions. youtu.be/-GUfT0Htcr8 (๐Ÿ‘ฉ๐Ÿผโ€โš•๏ธ@Natalia44723101 is the operating surgeon๐Ÿ‘ฉ๐Ÿผโ€โš•๏ธ )
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Mesh Ireland retweeted
Most of the MDT centres in the UK do not have the skills or the experience to treat mesh injured women. They urgently need training to execute full mesh removals so women do not continue to suffer for the rest of their lives.
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Mesh Ireland retweeted
Tamsin Greenwell of UCHL MDT stated "I have not removed a TVTO type tape in its entirety as this would be extremely destructive" What are women meant to do then! This is a joke! @ElneilSuzy @DrVeronikis @MaryRMcLaughlin @gina_knows @JuliaCumberlege @jamesosh @belinda89175024
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