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Day off to a good start at #ISMPPEurope - presenting our work on using LLMs for sentiment analysis relating to drugs in scientific literature
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Great discussions this morning as we explored 'Empowering Patient Voices in Authorship' in two parallel sessions at #ISMPPEurope. It was interesting to reflect on what enables #patient #involvement in #medical #authorship alongside @TheWoollard, @emmajdoble & Rachel Kendrick.
Some things that we spoke about...
🔹 Setting clear expectations from the start
🔹 Recognising the time commitment and providing support and choice
🔹 Helping patient authors navigate the process (including handling rejections / revisions, enabling access to papers beyond the paywall etc)
It was also fascinating to hear perspectives from journals and industry about what they are doing to support patient authorship.
A huge Thank You to Stuart Donald @KrystelisLtd for great chairing! And also to everyone who attended our sessions and asked thoughtful questions!!
#MedComms #MedPubs @ISMPP
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A great day at #ISMPPEurope with insightful discussions on authorship, #patient #involvement, AI adoption, and compliance! 🔍💡 I took part in my first-ever #hackathon 🚀 contributing to the future revisions of the Good Publication Practice (GPP) Guidelines.
If you’re here, don’t miss my parallel session tomorrow on “#Empowering Patient Voices in #Authorship: Navigating Barriers and Enhancing Support” 🎤📢
#MedPubs #PatientVoices #MedComms #Collaboration @ISMPP
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Another fantastic #ISMPPAnnual2024 with my @EnvisionPharma colleagues, clients, and wider @ISMPP family. It has been a privilege to represent our @EnvisionPatient team, supported by the incredible @KWProScribe who I finally got to meet in person! 💜
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Snapshot summary for FOMO folks - we are:
- (truthful!) story tellers
- busting (most) AI myths
- learning (lots) from pioneering patient partners
- (getting) metrics savvy
- energised (& exhausted)
- @ISMPP groupies 👏
#ISMPPAnnual2024
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“Good science and good storytelling go together”. @TaraMoroz
Mic drop.
Just remember another memorable quote too “story tellers are truth tellers”
#ISMPPAnnual2024
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Jim Streeter on Day 3. Big data = big decisions (metrics, ethics). Real need for real time adjustments - AI will help simplify the complex for daily use.
#ISMPPAnnual2024 @EnvisionPharma
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@conorgrennan High energy + live demo = GenAI power proven. Fun watching so many minds blown in situ 👏👏
#ChatGPT - just try it, be nice to it, don’t stop at the first answer - keep asking until you get what YOU want)
#ISMPPAnnual2024
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How times have changed (for the better)… still a long way to go to ensure people are informed, empowered, and involved in all aspects of health care and research #ISMPPAnnual2024
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So happy to see @TrishnaBharadia live in the room at #ISMPPAnnual2024, reminding everyone that patients must be considered as key stakeholders when developing product information.
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Great storytelling “…something that AI will never, never, never be able to do.” Angus Fletcher, Opening Plenary. He knows stuff. Didn’t take long for what might be the most controversial statement of the mtg. Told you @ISMPP is exciting! #ISMPPAnnual2024
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Jill Feldman reminds the @ISMPP audience that patients’ lives are complicated, and that ‘behind every data point is a person’ #ismppannual2024
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Oliver Brant highlighting the need for ‘cultural competence’ (eg, awareness, sensitivity) in design. Highly relevant for @ISMPP in #AsiaPacific #Diversity #ISMPPAnnual2024 @EnvisionPharma
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Get Your Company’s Research Published! Gain the knowledge to successfully publish your company’s medical research at the new interactive conference, ISMPP Academy, in Philadelphia Sept 28-29, 2023. hubs.li/Q01-zR8V0
What is @ISMPP? Find out at hubs.li/Q01-zSlM0.
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We're looking for volunteers who are currently writing up consensus studies to help pilot the ACCORD checklist! Further information and contact details here: ismpp.org/accord#Involved (and we're particularly interested in hearing about studies using methods other than Delphi)
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Join Caroline Halford, @a_e_rosenberg, @SciComm_Jo, and me to interactively investigate the real-world evidence supporting digital features and discover why they are Really Worth the Effort. Register now👉lnkd.in/gQ5a9XSU @ISMPP @tandfmedicine
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Fabulous to see Rachel Daley @TPositivitree talking at #ISMPPAnnual2023, including mention of @LiverpoolGenR1 supporting young people and families to be involved in research!
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Breakthrough!
“For the first time patient and public panelists, as well as contributors such as journal editors, were engaged…”
Updated clinical trial reporting guidelines include patient voices to improve trial utility and transparency sickkids.ca/en/news/archive/… @ISMPP