🏳️🌈 • he/him • Global Patient Engagement Leader & Med Communications Specialist • Chair, @eular_org PARE Committee
Manchester, UK
Joined June 2009
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- Following8.1K
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Dr Simon Stones retweeted
Day 1 of #PxP25 is about what's happening and what's possible in patient engagement in #healthresearch. Excited to learn from this fantastic line-up of speakers today 💜
@JoabWako @nikhil_jayswal_ @JBBC @SimonRStones @joelvsarthritis @breastlessAfrik @patientispard
ALT PxP 2025 Grid of photos for Day 1 conference speakers. Day 1: What's happening and what's possible.
Dr Simon Stones retweeted
“You have power, you have expertise, it’s valued by lots of people. If that situation isn’t right, you can walk away and you will be valued somewhere else.” - Simon Stones #PxP25
ALT “You have power, you have expertise, it’s valued by lots of people. If that situation isn’t right, you can walk away and you will be valued somewhere else.” - Simon Stones
Dr Simon Stones retweeted
In Munich 🇩🇪 today with the @eular_org #PARE committee, working already on topics like the November Conference or 2026 EULAR Congress!
Dr Simon Stones retweeted
@SimonRStones delivering the keynote lecture “From Patients to Partners: Shaping the Future of Rheumatology Together” #patientvoices
Dr Simon Stones retweeted
📢Sign up now for #PxP25!
September 9-12, depending where you are based in the world. Our conference is virtual and free to attend.
#PPI #ConsumerInvolvement #ForPatientsByPatients
ALT PxP. For Patients, By Patients. Register now! PxP 2025 is a free, virtual conference for anyone with an interest in health research. September 9-12, 2025.
Dr Simon Stones retweeted
Look forward to chairing with you this exciting final of #RheumaVision! Our 6 finalists will present their topics to a prestigious jury: @DrPoddubnyy Jette Primdahl Caroline Ospelt @SimonRStones. Audience vote will be essential so join us! 🎉
We’re proud to reveal the #RheumaVision 2025 FINALISTS! 🎉
Brilliant early career rheumatologists sharing science through storytelling 🎥✨
Catch them at the Grand Finale during #EULAR2025 in Barcelona 🇪🇸
@JGLetarouilly @EMEUNET
Dr Simon Stones retweeted
Power in patient partnerships.
Do you have it? Do you share it?
Don’t underestimate the power of power.
Our preprint is live.
doi.org/10.31219/osf.io/xkp8…
@JanelleBowden @PGee51 @alexhaagaard @anitarena @anetto @CodiePrimeau @ATricco @KT_trainee @LLi_1 @HettyMulhall
Dr Simon Stones retweeted
💡 How can you effectively integrate patient research partners into your research projects?
👉🏻Watch our recent EULAR research webinar that brought together experts to discuss the updated EULAR recos and their application
👏🏻@MartinusPTdeWit @MurielElhai @SimonRStones
@eular_org
Dr Simon Stones retweeted
📣 Join us today for this important EULAR session on how to integrate patients (PRPs) into your research projects!
👉🏻 Gain insights into the recently updated EULAR recommendations on PRP involvement.
@MartinusPTdeWit @MurielElhai @SimonRStones Heidi Bertheussen
🚀Join us tomorrow for our "How to integrate the patients' perspective in research? The value of the updated EULAR recommendations for collaborative research" webinar!
💻Wednesday, 05 February, 2025, 18:00 -18:45 CET
Register here👉 pulse.ly/6xzogz3cwn
#EULAR #Rheumatology
Dr Simon Stones retweeted
🚀 We’re excited to launch the EMEUNET x PARE Podcast Series!
Patient representatives will interview young experts on key rheumatology topics.
Help us make it relevant by sharing our questionnaire with your patients. 🙏
#EMEUNET #PARE
@milena_bond @krystelaouad @SimonRStones
Dr Simon Stones retweeted
🚀 We’re excited to launch the EMEUNET x PARE Podcast Series! 🎙️ Patient representatives will interview young experts on key rheumatology topics. Help us make it relevant by sharing our questionnaire with your patients. 🙏
#EMEUNET#PARE
@milena_bond @krystelaouad @SimonRStones
Dr Simon Stones retweeted
🚀Join us for our "How to integrate the patients' perspective in research? The value of the updated EULAR recommendations for collaborative research" webinar!
💻Wednesday, 05 February, 2025, 18:00 -18:45 CET
Register here👉 pulse.ly/fa0zmvogio
#EULAR #Rheumatology
Dr Simon Stones retweeted
What's a new year without new ICMJE recommendations? Not too many changes, but always worth another read. icmje.org/news-and-editorial…
Dr Simon Stones retweeted
📢 A @eular_org study group project!
Are you a person living with a #rheumatic and musculoskeletal disease? Share your thoughts on #cardiovascular prevention in this 15-min survey.
s2survey.net/rmd_cardio/
Languages: 🇬🇧🇮🇹🇪🇸🇫🇷🇩🇪🇵🇹🇭🇺 🇩🇰🇳🇱
Thank you!
Dr Simon Stones retweeted
"Giving patients a voice at scientific congresses" - what are the opportunities for improving accessibility? Great discussion with @SimonRStones @networkpharma @eDawnlobban To watch a recording of the full discussion go to: networkpharma.tv/2024/12/04/…
Dr Simon Stones retweeted
♥Interested in #cardiovascular risk in #rheumatology? Experience in #inflammatory diseases?
Help us by participating in an international survey on awareness of @eular_org guidelines (10 min)
🔗bit.ly/4gjx01C
🔄RT and share with your colleagues
Dr Simon Stones retweeted
The second Workshop round feedback during the #EULAR2024 #PARE conference:
@SimonRStones feedbacks the main synthesis of our 3 tables discussions on co-authoring publications #PRPs
Great insights
Reflections
Action plans for the future 🎢
Discussions could have continued😊
Dr Simon Stones retweeted
🌍 #PARE2024 continued with #WorldCafe on #PatientResearchPartners in research
🏃🏻♀️➡️ We’ve come a long way but still have a far to go
💡 We identified many challenges but also solutions- hopefully through continued discussion, we can make PRP involvement the norm
Dr Simon Stones retweeted
📢 Are you a person living with a #rheumatic disease?
Share your thoughts on #cardiovascular #disease and prevention in this 15-min survey.
s2survey.net/rmd_cardio/ 🇩🇪🇵🇹🇭🇺🇪🇸🇬🇧🇫🇷
@eularYoungPARE @MartinusPTdeWit @rheumpatient @ElsaFMateus @SimonRStones @SjogrenpowerAna