@HullInvolve

Welcome to our volunteer network for patients, carers and people interested in shaping health and care research at the University of Hull. Contact Helen Roberts

 Hull, UK
hull.ac.uk/InvolveHull
Joined January 2021
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  • Followers153
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Research changes lives, but can only happen thanks to those who volunteer for studies. Whether you are living with a condition or simply want to make a difference for others, you can help. Find out how here ➡️ bepartofresearch.nihr.ac.uk/…
Research saves lives

ALT Research saves lives

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Has your research transformed people's lives? Our Impact Prizes are open to those who have received NIHR funding or support across the range of areas NIHR funds, including health, public health, social care & global health research. ➡️ Enter now: nihr.ac.uk/about-us/our-impa…
Impact Prizes - applications now open! Enter by 13 November

ALT Impact Prizes - applications now open! Enter by 13 November

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"What one thing would you change about the NHS?" We asked our partners to share their ideas to help build a health service fit for the future. Add your voice: change.nhs.uk/?mtm_campaign=…
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You asked for a peer support service that feels like it's designed by Black men, for Black men. So we're looking for steering group members to provide guidance on the peer support needs of Black men to help shape this new service. ➡️ Find out more: bit.ly/3Abmfhw
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📢Calling Black-African, Indian, Pakistani Parents/Carers! Join our Patient & Public Involvement Group (PPI) 🧑🏾‍🤝‍🧑🏽 ℹ️ We need YOUR help to improve healthcare access for young people. Share/discuss ideas via monthly 1hr virtual meetups. You'll be reimbursed for your time! @ARC_EM
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The @BiBresearch Age of Wonder Sweep 1 is on the #CatalogueMHM! Age of Wonder follows the Born in Bradford cohort through adolescence into adulthood to understand what shapes their physical and mental health. Check it out here: cataloguementalhealth.ac.uk/… #peoplepoweredresearch
Born in Bradford's Age of Wonder Sweep 1 is on the catalogue of mental health measures

ALT Born in Bradford's Age of Wonder Sweep 1 is on the catalogue of mental health measures

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Pay us a visit at our Open Space Event to have an informal chat with staff from @BiBresearch and hear about what we are working on, key findings & how you can get involved. Everyone welcome
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Meet Rehana, a member of the charity’s Research Advisory Panel 👋 Rehana is one of 60+ members of the panel, helping to evaluate funding proposals and ensuring the research we fund will have the biggest impact on cancer. yorkshirecancerresearch.org.…
"As a team, we are able to share our different knowledge and expertise. This contributes to the development of research initiatives that will ultimately benefit the wider community." - Rehana Haq, Stakeholder

ALT "As a team, we are able to share our different knowledge and expertise. This contributes to the development of research initiatives that will ultimately benefit the wider community." - Rehana Haq, Stakeholder

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New #LunchAndLearn webinar with @CMSmith215 @NIHR_ARC_YH on "Why Do I Need to Think About Equalities Impact Assessments?" Christine will discuss increasing diversity in research and using Equality Impact Assessments. Register: YHARC@bthft.nhs.uk @BiBresearch @NIHRARCs
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Lung cancer often does not show any obvious symptoms until it reaches a later stage. That is why it is important to recognise the early signs if something is not right in your body. If you notice any of the below, speak to your GP. #LungCancerAwarenessMonth
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What are we doing to improve how we partner with patients, carers and the public? Find out more about our priorities for improvement and what we're currently doing to address them: nihr.ac.uk/about-us/what-we-…
Improving how we work with patients, carers and the public Equality, diversity & inclusion Digital engagement Standards, processes & incentives Capacity building Impact and learning

ALT Improving how we work with patients, carers and the public Equality, diversity & inclusion Digital engagement Standards, processes & incentives Capacity building Impact and learning

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What if #bowelcancer screening considered risk factors like sex, ethnicity, family history and lifestyle to enhance cancer detection? Research by @JoCairns86, funded by @yorkshirecancer, explores public and healthcare acceptance of this novel approach: hyms.ac.uk/research/stories/…
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Just 9 days left to request a new spit kit from us. Cat ate it? Not a problem! Get in touch with us at info@decodeme.org.uk to request a new kit. shorturl.at/abfgw #DecodeME #MECFS
DecodeME, The ME/CFS Study. Picture of a cat in a box and a speech bubble saying "My cat ate it". You have until 15th of nov to request a new spit kit. Email info@decodeme.org.uk.

ALT DecodeME, The ME/CFS Study. Picture of a cat in a box and a speech bubble saying "My cat ate it". You have until 15th of nov to request a new spit kit. Email info@decodeme.org.uk.

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We're so sorry to hear that our friend and colleague Dolapo (Della) Ogunleye has died. Dolapo was part of our public involvement network. She helped us to make sure that we involved the right people in our work in the right way. Read our full tribute: hra.nhs.uk/about-us/news-upd…
A photo of Dolapo (Della) Ogunleye. She is looking at a poster with her quote and photo. The quote says: "If I wasn't here, you wouldn't know my story. I don't want to be the only black person in the room this time next year."

ALT A photo of Dolapo (Della) Ogunleye. She is looking at a poster with her quote and photo. The quote says: "If I wasn't here, you wouldn't know my story. I don't want to be the only black person in the room this time next year."

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Calling all researchers📢 We're asking you, and others in the research community, to use our new principles and hallmarks of good people-centred research. Why❓ Because they'll help you make sure that people are put first in your research study. 🙌♥️ (1/2)
The nine hallmarks and principles of people-centred research. Treating people well and with respect: reliable and honest; caring and respectful, appreciative and thankful. Doing research that is meaningful: making a difference; working in partnership. Making it possible for people to take part: representative and fair; as simple as possible; giving choices. All underpinned by 'using great communication'.

ALT The nine hallmarks and principles of people-centred research. Treating people well and with respect: reliable and honest; caring and respectful, appreciative and thankful. Doing research that is meaningful: making a difference; working in partnership. Making it possible for people to take part: representative and fair; as simple as possible; giving choices. All underpinned by 'using great communication'.

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If as public servants & practitioners, we figure out how to be good guests (alongsiders) in the lives of the ppl we serve, it will show in our practice; in the depth of our relationships & in the actions those relationships precipitate. (to go deeper: nurturedevelopment.org/blog/…
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Do you want to make a difference in our research into early detection and prevention of cancer? Join our panel and help us make sure our decisions represent what matters to you. Learn more: cruk.ink/46vZpf9 💙
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Sharing your lived experience is a powerful way to make health and social care services better and more inclusive. If you aren’t sure where to start, @Solnetwork1 has launched a new guide & video to support you. xitter.cf/Solnetwork1/status/170…
Shaping Our Lives@Solnetwork129 Sep 2023
No one else can tell your story for you. Your voice matters – sharing your lived experience can make services better, and research more inclusive. Watch our video and find out more. #MyVoiceMatters #Inclusion #Involvement
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How can members of the public be involved in research? Our 'Briefing notes for researchers' explains the different ways! It will help you to plan, resource and support public involvement in research. Find out more: nihr.ac.uk/documents/briefin… #TuesdayTips
Find out how you can involve patients, carers and the public across the research cycle. Read our 'Briefing notes'. Image of the research cycle. Identifying and prioritising > Commissioning > Designing and managing > Undertaking > Disseminating > Implementing > Evaluating impact

ALT Find out how you can involve patients, carers and the public across the research cycle. Read our 'Briefing notes'. Image of the research cycle. Identifying and prioritising > Commissioning > Designing and managing > Undertaking > Disseminating > Implementing > Evaluating impact

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Research paper alert: Involving patients in healthcare research is well documented, but can it work in lab-based research? Researchers discuss the benefits PPI has made to their work and patients involved write about their experience & what they enjoyed: researchinvolvement.biomedce…
Image of a research paper

ALT Image of a research paper

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