We are a nonprofit 501(c)(3) Hidradenitis Suppurativa Org. Learn More-About Us: https://xitter.cf/t.co/acMiSQK2kj Our https://xitter.cf/t.co/VS9wqk2rjq: https://xitter.cf/t.co/Vs7RFuVeUM
Joined July 2019
- Tweets1K
- Following881
- Followers1.4K
- Likes453
HSconnect.org - HS Connect retweeted
🎉 Exciting news! In collaboration, @HSConnectOrg, @hsforg, and #PeDRA are pleased to launch the 2026 Pediatric #HidradenitisSuppurativa Challenge Grant.
✨ Learn more and apply: pedraresearch.org/pediatric-…
#pedraresearch #dermatology #pedsderm #pediatricdermatology #HS
HSconnect.org - HS Connect retweeted
A shout out to Brindley Brooks from @hsconnectorg, the @AJMC_Journal and @DrMaritaY for
their HS awareness raising efforts! 💜
#hidradenitissuppurativa #HS #BeAGP #MedTwitter #DermTwitter #thegreathsawarenesscampaign #AJMCjournal #managedcare #medical
HSconnect.org - HS Connect retweeted
Brindley Brooks, founder of @HSConnectOrg, a patient advocacy group for those affected with hidradenitis suppurativa (HS), discusses step edits and other barriers to treatment caused by insurance requirements in the management of #HS.
Watch the interview: ow.ly/6Em550Kk36k
HSconnect.org - HS Connect retweeted
Today's #FollowFriday spotlights a Member from the #Netherlands - @HidradenitisNL (HPV) is committed to early diagnosis and proper treatment of #hidradenitis.
To learn more about this organization, please visit: hidradenitis.nl/
#dermtwitter
HSconnect.org - HS Connect retweeted
I have HS and I used to be super insecure about it so I’m loving the representation 🥹 everyone looks so beautiful 💜
HSconnect.org - HS Connect retweeted
Wow 💜🤍 Retweet & share! This can save someone’s life 🥹✨✨✨
SHINE LIGHT ON #HidradenitisSuppurativia 🤍
HSconnect.org - HS Connect retweeted
#hidradenitissuppurativa SURVEY OPPORTUNITIES!
HS Connect teamed up with @rarepatientvoic - Both rare and NON rare illnesses (like HS).
We're honored to help them successfully complete HS surveys!
Sign up here
👇 [rarepatientvoice.com/hsconne…](rarepatientvoice.com/hsconne…)
HSconnect.org - HS Connect retweeted
A little poem for us.💜
HSconnect.org
#hsconnectorg
#HSConnectorgMemesandQuotes #hidradenitissuppurativa #hidradenitissuppurativaawareness
HSconnect.org - HS Connect retweeted
HS Connect LinkTree
⬇️
linktr.ee/HSconnect
•Our Website
•Social Media Platforms
•Special HS Events
•HS Articles
•HS Clinical Trials/Studies/Surveys
•Research
And more!
HSconnect.org
HS Connect
#hsconnectorg #HidradenitisSuppurativa #HSresources
HSconnect.org - HS Connect retweeted
Shout out to @pedsdermMD and all the medical professionals who are helping to raise awareness of hidradenitis suppurativa and improve treatments for HS warriors.
#HSwarriors #HS #hidradenitissuppurativa #MedTwitter #DermTwitter
HSconnect.org - HS Connect retweeted
HSCONNECTORG Facebook Support Group - Caregivers and loved ones welcome too 💜
facebook.com/groups/23025686…
#HSconnectorg #HidradenitisSuppurativa
HSconnect.org - HS Connect retweeted
#HidradenitisSuppurativa (HS) awareness week is over, but #LiVDerm and our partner @HSConnectOrg remains steadfast in our goal of championing better patient care
👉Join us at #SBS2022 and join our What's New in Treating Hidradenitis Suppurativa session: go.livderm.org/3QluA5F
HSconnect.org - HS Connect retweeted
Don't forget we have an entire section dedicated to kids & adolescence with #hidradenitis on our website; hsconnect.org.
We also have information to help with school. Like the 504 plan here 👇 hsconnect.org/post/504-plan-… and a letter template for children.
#hsconnectorg
HSconnect.org - HS Connect retweeted
Don't forget we have various different resources for you all!
Take advantage!
Check out our 'helpful life link' section here
👇
hsconnect.org/helpful-life-l…
HSconnect.org
#hsconnectorg #HidradenitisSuppurativa #chronicillnessresources
HSconnect.org - HS Connect retweeted
On Saturday, June 4th @HSconnectorg in the US is running several Healing for HS Walks in:
🚶♂️Michigan
🚶♀️Washington
🚶♂️Ohio
🚶♀️Illinois
#Michigan #Washington #Ohio #Illinois
#hidradenitissuppurativa #HS #thegreathsawarenesscampaign #HSAwarenessWeek2022
ALT HS Awarness walking events June 4th 2022 in Michigan, Washington, Ohio, Illinois in the United States
HSconnect.org - HS Connect retweeted
Important Continued Data Needed.
Global #HidradenitisSuppurativa #Covid19 Registry
UCSF
@hscovid
Please see link to registry here
👇
hsconnect.org/covid19-regist…
If you have tested positive for COVID-19 and have HS please complete.
HSconnect.org
HSconnect.org - HS Connect retweeted
#HidradenitisSuppurativa Survey - @MUSChealth
See link for all IRB details & to participate
⬇️
hsconnect.org/usmc-peds-hs-s…
WHO CAN PARTICIPATE? Anyone with HS symptom onset and/or diagnosed at age 18 or younger. Parents/Caregivers; you can take the study on behalf of your child.
HSconnect.org - HS Connect retweeted
@hsforg is leading the inaugural HS Summit - a patient and family centered virtual meeting about #hidradenitis #hidradenitissuppurativa #HS. All Star speaker and moderator line up @Curseen @DrIntegrativeMD @mygoldliningdoc @drresnik @HSConnectOrg #dermtwitter
HSconnect.org - HS Connect retweeted
Please consider donating to HS Connect for #GivingTuesday2021
Donation link Here:
linktr.ee/hsconnectorgdonati…
We're currently fully funded by the co- founders (volunteers). Any and all donations helps us help others! 💜
#hsconnectorg #hidradenitissuppurativa
