AngelaGenge (@genge_angela) header
AngelaGenge (@genge_angela) profile picture

Neurologist. Director ALS Centre of Excellence and Phase 1 Unit @TheNeuro_MNI. Leading the way in clinical trials for ALS/MND. Opinions my own

The Neuro, Montreal, Canada
Joined March 2021
Photo by AngelaGenge (@genge_angela)Photo by AngelaGenge (@genge_angela)Photo by AngelaGenge (@genge_angela)Photo by AngelaGenge (@genge_angela)Photo by AngelaGenge (@genge_angela)
AngelaGenge retweeted
The Saguenay region of Quebec has the highest prevalence of #MyotonicDystrophy in the world (1 in 400). Several new #clinicaltrials on #DM1 at the CRU are testing #ASO-based therapies that, if successful, would offer the first disease modifying treatment. cru.mcgill.ca/nm
1
4
1
10
1,168
Grateful to have had the chance to discuss how new technologies, a better understanding of the underlying drivers of motor neuron cell death and the development of a #biomarker driven approach is leading to real progress in treatments of #ALS at #adpd2024 .
2
5
1
34
1,345
AngelaGenge retweeted
All #rarediseases should be treatable. Working towards effective therapies is essential. Each year, NeuroCRU adds new conditions to its list of trials, like #MOGAD, #FSHD, #Huntingtons and #CJD. Patients deserve the option of accessing investigational treatments. #RareDiseaseDay
4
1
9
814
I’m thrilled to share that I have received a full professorship in the Department of Neurology and Neurosurgery at McGill University! @mcgillu @McGillMed #neurology #mcgill
12
4
3
74
14,704
The #ALS Centre of Excellence @TheNeuro_MNI offers multidisciplinary care and early access to leading clinical trials. Thank you to all our supporters who help foster novel approaches to treatment + initiatives to support quality of life. @ALSCanada @BrainCanada @SLA_ALS_Quebec
1
1
1
15
1,119
Grateful for the opportunity to speak on personalized medicine and innovations in clinical trial design at the International Symposium on ALS/MND in Basel last week. #ALS #MND #PersonalizedMedicine #ClinicalTrials #Neurology #RareDisease
4
1
25
1,667
AngelaGenge retweeted
Replying to @genge_angela
@genge_angela, director of ALS Centre of Excellence at The Neuro will be speaking @TheGlobeEvents' AI in Medicine panel tomorrow at 12:30 on the promise of AI to transform speed and accuracy in detecting rare disorders. Free to register: tgam.ca/3t3b1YU #GlobeMedicine
1
151
I’ll be speaking at @TheGlobeEvents’ AI in Medicine Tuesday at 12:30. This free event will cover opportunities and considerations related to the use of AI in medicine, and what it means for health care providers and patients. To sign up: tgam.ca/3t3b1YU#GlobeMedicin…
3
5
469
AngelaGenge retweeted
Our deepest gratitude to @Genge_angela who stepped down as CRU director after 19 years. Her dedication to patients transformed a small unit into a leading intl centre. Her unique vision and energy will always be part of our DNA. She remains director of The Neuro's ALS clinic.
6
1
17
1,232
AngelaGenge retweeted
Fiers d'avoir participé à #RCQ : un nouveau pôle d'info en #rechercheclinique développé par le Réseau @CATALISquebec en partenariat avec le gouv du Qc. RCQ offre un Registre des #essaiscliniques, un accompagnement personnalisé pour patients, et plus.📲 bit.ly/49qb4yk
1
1
1
255
#CTQ is a terrific initiative to help patients access #clinicaltrials more easily. And Catalis continues to propel the #lifesciences ecosystem in Quebec.
This quoted post is unavailable.
1
308
AngelaGenge retweeted
Dr. Pandolfo from The Neuro now speaking at #wcn2023 about Friedreich #ataxia, a rare neurological disorder. Only one treatment is approved and that one only by FDA. Others are in different stages of clinical trial.
3
9
1,135
AngelaGenge retweeted
Dr. Angela Genge from @NeuroCRU now part of panel at #wcn2023 discussing how doctors and health professionals can best deliver news of an #ALS diagnosis.
1
1
8
941
I am honoured to have been invited by @EU_Brain to speak on this important topic. Individuals with MND need us to work together globally to speed up access to new treatments.
Last week, @Genge_Angela was invited to address #UNGA78 at the Science Summit in NYC. She spoke of the urgent need for a global approach to #approval and access for new therapeutics, and how the work done in #ALS can be a model for other #neurodegenerative diseases.
1
5
473
AngelaGenge retweeted
Dr. Angela Genge spoke at @CPathInstitute's #RareDisease Conference in DC this week, highlighting the need for novel #biomarker development to determine early evidence of target engagement in #ALS and the need for improved clinical outcome measures. #cpath
1
4
388
AngelaGenge retweeted
📢Participants urgently needed for study of imaging biomarkers for Friedrich’s Ataxia. These are critical to assessing novel treatments in future clinical trials. Only 3 required visits in MTL. Participants from 🇨🇦 or 🇺🇸 welcome; travel costs covered. cru.mcgill.ca.
2
3
337
I'm very proud of what we've been able to accomplish - bringing care to patients at this level from where we were when I started working in ALS. It's been probably the most rewarding aspect of my career.
The Neuro's #ALS clinic has been a trailblazer in developing multidisciplinary care and #genetic counseling in Canada. It helped to shape the CRU's focus on ALS trials including a first-of-its-kind Phase 1 unit for ALS. Congrats to the team! Read more: bit.ly/neuroals25
1
10
490
ALS is progressing all the time. It is unrelenting. But so are we. We embody hope together so that we can strike out ALS. #ALSMNDWithoutBorders #embodyhopetogether #ALSawareness
It's Global ALS/MND Awareness Day and we are pleased to share our meaningful and hopeful manifest featuring members of our community. Please share it now so that our voices are amplified! Together, we embody hope. #ALSMNDWithoutBorders #EmbodyHopeTogether #ALSAwareness
6
21
1,264