📣 Interested in learning more about the ALS Community’s Federal Advocacy Day on Parliament Hill? Dive into our latest blog post to discover why #ALS community members and ALS organizations from across Canada gathered in Ottawa – from jam-packed training sessions to a meaningful reception and formal meetings. To read the blog post, visit bit.ly/3L72uwP.

Simcoe County, are you ready to pull?! 💜 This Sunday, it's time to challenge our minds and bodies at the 2026 ALS Canada #PullToEndALS Simcoe County! Pulling a 42,000-lb transport truck seems difficult, but it is nothing compared to what the 4,000 Canadians and their family navigate every day. There’s still time to raise awareness and support this unique event. 🔗To donate today, visit bit.ly/4zCKheu.

Health challenges don't arrive at a convenient time. ALS, cancer, heart disease, diabetes, mental illness, dementia and arthritis can enter any life, any family and any workplace, at any time. The health charities people rely on need to be ready when that moment comes. That’s why our partnership with HealthPartners is so important. By raising funds for 20 leading health charities, HealthPartners helps organizations like ours focus more time on supporting people, improving care and advancing research. Together, we can help ensure support is there when it’s needed most. 💙 Learn more about HealthPartners: healthpartners.ca/.

🎤 Mic'd Up. 💪 Locked in. 🚛 Ready to pull. From the excitement at the starting line to the teamwork that powers every pull, ALS Canada’s Toronto Pull to End ALS was filled with unforgettable moments. We handed the mic to Dan from Team Canso, Matthew from Team Big Mike, and Roger from Team EQ Challengers to capture the energy, camaraderie, and friendly competition that makes the event so special. The momentum continues in Simcoe County on October 18, where participants will pull together at Georgian College to raise critical funds for ALS research, advocacy, and community support. 🔗 To donate and help us keep pulling toward #aWorldFreeOfALS, visit bit.ly/4y8gbyg. #PullToEndALS #ALSCanada

Before we get ready to pull at the ALS Canada #PullToEndALS event in Simcoe County this weekend, we’d like to thank our presenting sponsor, @BarrieFord Ltd., for their ongoing support. The Barrie Ford team knows firsthand the devastating impacts of ALS, and for the second year in a row, they are ready to rally with the ALS community to create change. “ALS doesn’t just affect one person: it impacts entire families and communities. When it affects the people you care about, standing on the sidelines isn’t an option. You get involved.” - Dominic Lazzaro, Managing Partner, Barrie Ford Ltd 💪 Thank you, Barrie Ford. We appreciate your commitment to #aWorldFreeOfALS.

🎥 What makes ALS Advance so unique? ALS Advance brings together four events in one, creating a unique opportunity for researchers, clinicians, industry partners, and people affected by ALS to connect, share knowledge, and drive progress forward. Hear from attendees about the connections and conversations that made this year's event so impactful. While we count down to ALS Advance 2027, revisit highlights and key takeaways from past events through our recap stories: bit.ly/4im6RkL.

📣 2027 CALI applications are now open! 📣 The ALS Canada Canadian ALS Learning Institute (CALI) is an online learning program for people affected by ALS. Become an informed champion and connect with the ALS community, experts in ALS research and advocacy, and ALS Canada staff. Learn more and apply today, visit bit.ly/4hESF7a. ⏰ The deadline to apply is Monday, November 16. There are limited spots available.

ALS Canada, alongside @BrainCanada, is proud to announce Dr. Laurence Rouleau at the University of Western Ontario and London Health Sciences Centre as the recipient of the 2026 ALS Canada-Brain Canada Clinical Research Fellowship. Dr. Rouleau will be receiving $100,000 over one year to support her project, exploring the experiences of people living with ALS who consider or pursue Medical Assistance in Dying (MAiD) and help inform more person-centred care. To learn more, visit bit.ly/3UaB4uO.

ALS Canada, en collaboration avec @BrainCanada, est fière d’annoncer que la Dre Laurence Rouleau, de l’Université de l’Ouest de l’Ontario et du Centre des sciences de la santé de Londres, est la lauréate de la bourse de recherche clinique ALS Canada-Brain Canada 2026. La Dre Rouleau recevra 100 000 dollars sur une année pour financer son projet, qui vise à explorer les expériences des personnes atteintes de SLA qui envisagent ou ont recours à l’aide médicale à mourir (AMM) et à contribuer à la mise en place de soins davantage centrés sur la personne. Pour en savoir plus, rendez-vous sur bit.ly/4yWJhSJ.

From potential biomarker discoveries to artificial intelligence and therapeutic pathways, ALS research continues to uncover important clues about the disease. In our latest Fundamental Research Update, explore some of the most notable laboratory findings from ALS scientists published recently. 🔬 Read the complete update now: bit.ly/4dKW5TF.

The Toronto Waterfront Marathon is Oct 17–18, 2026! Cheer on #TeamALS and help make every km count for the ALS community. Support the team here: bit.ly/3W6Xw8C.

Last week, ALS Canada and an ALS community member met with representatives from the pan-Canadian Pharmaceutical Alliance (pCPA) to encourage the timely completion of ongoing pricing negotiations for Qalsody. The meeting was an opportunity to share the realities of families affected by SOD1-ALS, and why equitable access to approved ALS treatments matters. ALS Canada will continue to engage with the pCPA, the manufacturer, and other stakeholders to help ensure community perspectives continue to inform the negotiation process. As negotiations continue, help maintain momentum toward timely and equitable access to Qalsody: bit.ly/3V9qEvq.

Before we hit the roads and ride for change tomorrow morning, we would like to thank the 2026 ALS Canada #RevolutionRide event sponsors: Scotia Wealth Management and Shionogi Canada. Your support helps us fuel #aWorldFreeOfALS – highlighting the power of a community united for change! At the Revolution Ride, recreational, intermediate, and avid cyclists challenge themselves to do more in support of the people we have loved and lost or who are facing ALS today.

🚴🚴‍♀️ Thank you to the 2026 ALS Canada #RevolutionRide presenting sponsor, Scotia Wealth Management, for your generous support as we gear up for change! This weekend, we’re coming together to move toward #aWorldFreeOfALS, demonstrating the ALS community’s commitment to go the extra mile to change what it means to live with ALS.

⏰ The countdown is on! The 2026 ALS Canada Revolution Ride is just around the corner, and there’s still time to show your support. Show your support for the participants hitting their routes for more than a ride – make a donation and be a part of a movement toward #aWorldFreeOfALS. Visit bit.ly/3ZxPhBv.

And that’s a wrap! ALS Canada was proud to sponsor and attend this year’s André Delambre ALS Research Symposium in Montreal. Congratulations to the organizers on a fantastic event. It was great to connect with ALS Canada-funded awardees and other members of the global ALS research community, hear about emerging discoveries, and discuss their research and latest findings. Events like this help bring the right people together. The ideas and collaborations sparked here can help turn promising research into real-world impact for people affected by ALS. With your generous support, you're helping make progress like this possible.

For people living with SOD1-ALS, Qalsody offers the hope of continuing to do what matters most. It also signals to the ALS community what may be possible as new ALS therapies continue to emerge. Now, that progress must be matched by timely and equitable access through public drug plans. As pricing negotiations continue, we are calling on provinces to prepare for swift reimbursement for Qalsody to help ensure Canadians like Tre can continue accessing a treatment that is making a meaningful difference in their lives. 🔗 Read Tre’s story and add your voice in support of equitable access to Qalsody: bit.ly/3V9qEvq.

BREAKING NEWS We are encouraged as we share today's announcement of positive Phase 3 trial results for ulefnersen, a therapy designed to target the underlying genetic cause of FUS-ALS, a rare, often aggressive genetic form of ALS. The early results announced suggest the therapy may slow disease progression, reporting a significant change in neurofilament light chain (NfL), a biomarker of nerve cell damage. While more detailed data are still to come, ALS Canada looks forward to what these early results could mean for people and families affected by FUS-ALS, and by the potential impact of what we may learn from them for the broader ALS community. We will continue following developments closely. Read more about the announcement today: bit.ly/46EpfzH .

“That love and support brings me joy every day.” After his ALS diagnosis in 2025, Scott felt that support at the ALS Canada #RevolutionRide. This year, he hopes others will ride, fundraise, or donate in support of Canadians living with ALS. 💜 bit.ly/3TjLpnJ.

If you're a veteran impacted by an ALS diagnosis, we want to hear from you. Your experience can help decision-makers understand what’s truly at stake. If you are interested in sharing your story, please reach out to us at [email protected] or send us a direct message.

Get ready to pull, Toronto! Today we're rolling up our sleeves to pull for change at the 2026 ALS Canada #PullToEndALS Toronto! Teams are coming together to pull a 42,000-lb transport truck and raise vital awareness and funds for 4,000 Canadians and their families affected by ALS.💜 There’s still time to support this unique event and help us move closer toward #aWorldFreeOfALS. To donate today, visit bit.ly/4reRTRo.