NIHR funded Data-driven machinE-learning aided stratification and management of multiple long-term COnditions in adults with intellectual disabilitiEs @AIM_RSF
Joined May 2022
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DECODE project retweeted
🎤We’re thrilled to announce our final keynote for #RCSLTConf2025: Prof Jois Stansfield
🌟Celebrating 80 Years of RCSLT: A Journey Through Our Profession’s History
Prof Jois Stansfield explores milestones from 1945 to today #RCSLTat80
Buy your tickets👉rcslt.org/events/rcslt-confe…
ALT Eighty years of change: Celebrating the history of our profession. Explore 80 years of speech and language therapy through the images, materials and stories that shaped out profession. Wednesday 26 November, 9am. With Jois Stansfield Emeritus Professor and PHD student of history
đź’ˇIcon of the Week: Airway Diseases
On World COPD Day, we’re highlighting that people with a learning disability are more likely to experience airway diseases, including COPD. Early diagnosis and support matter.
🔗 decode-project.org/research/…
#WorldCOPDDay #COPD #IconOfTheWeek
DECODE project retweeted
📢 Makaton Members! 🎄Join our next MakaChat LIVE! For Christmas & Festive Songs! 🎄
Get ready for a magical sing & sign evening where you can build skills & connect with our community 🎶
Register here: bit.ly/466J4jH
#WeTalkMakaton #UseItDontLoseIt #MakatonCommunity
Introducing DECODE’s Icon of the Week!💡
Did you know 9 in 10 people with a learning disability have 2+ long-term health conditions - compared with 3 in 10 in the general population?💬Let’s raise awareness!
đź”—View here lnkd.in/eaWi75Ku
#IconOfTheWeek #HealthInequalities
We’re now on LinkedIn!🎉
Follow us for updates on our work to make health research more inclusive for people with learning disabilities - including news, resources, and events from the team at @lborouniversity
👉linkedin.com/company/decodep…
#DECODEProject #LearningDisabilities
DECODE project retweeted
Closing the day with words from Dr Satheesh Gangadharan đź’¬
“Most people see involving people with learning disabilities in research as a problem – but we have turned that around.”
A powerful way to end today’s event.
#InclusiveResearch #LearningDisability #PPI
@lborouniversity
DECODE project retweeted
Loughborough’s DECODE project works with people with learning disabilities and their carers to understand what does & doesn’t work in healthcare – and involve them in designing solutions.
@BBCEMT visited campus to hear from those involved 👇
tinyurl.com/y4454jp3 (see 11:07)
That’s a wrap on our conference: “Meaningfully involving people with learning disabilities in research”💜
Huge thanks to our speakers, PPI members & everyone who joined us today.
Your insights and lived experiences are what make DECODE possible.🙏
#InclusiveResearch
Closing the day with words from Dr Satheesh Gangadharan đź’¬
“Most people see involving people with learning disabilities in research as a problem – but we have turned that around.”
A powerful way to end today’s event.
#InclusiveResearch #LearningDisability #PPI
@lborouniversity
Our final session is an open panel with today’s speakers🎤
The room is full of great questions & reflections - an inspiring way to wrap up the day and hear insights from the audience and speakers.
#InclusiveResearch #LearningDisability #PPI
@lborouniversity
Neil from @UniofNottingham on the ethics of inclusive research🧩
A great talk highlighting why it’s vital to involve people with learning disabilities at every stage of research - ensuring their voices and input are truly central.
#InclusiveResearch #Ethics #LearningDisability
A brilliant end to Amy, Sarah & Heidi’s talk 👏
They shared a practical PPI toolkit for involving people with learning disabilities in health research.
Such an important resource for making research more inclusive.
#PPI #InclusiveResearch #LearningDisability
Great to hear from PPI co-leads Amy & Sarah & PPI member Heidi📢
They spoke about the challenges & opportunities in PPI health research, highlighting the importance of breaking down information, using pictures & making research truly inclusive.
#PPI #InclusiveResearch
Brilliant to see @alidrewett presenting the 7 Design Rules✨They highlight good practice for research with people with learning disabilities.
Co-created with our PPI team, the rules are fully inclusive & designed to be easily understood.
#InclusiveResearch #AccessibleComms #PPI
The wonderful @AnnieBannister sharing her story as part of DECODE’s Family Carers Group💜
As a mum of 2 sons with learning disabilities, she is a crucial part of the DECODE team - her lived experience is invaluable in shaping research.
Powerful to hear her perspective.
#PPI
Ana, the graphic designer behind our infographics🎨, shared how visual style can reflect specific illnesses and why it must be tailored to the people it’s designed for.
Her work revealed gaps in understanding & showed the importance of adapting processes.
#InclusiveDesign
Ellie on the power of infographics in health researchđź“Š
Too often they’re cluttered & hard to understand.
DECODE design infographics that carers & people with learning disabilities can use to better understand their health.
#AccessibleComms #InclusiveResearch #LD #DECODE
Brilliant to hear from Nikki Harrison - paramedicđźš‘ & Makaton trainer, she spoke on the power of using Makaton - a communication programme combining speech, signs & symbols.
Together, we developed a Makaton version of Maria’s Story to make it as inclusive as possible.
#Makaton
In conversation with Orla Borsey (@lborouniversity alumni), the graphic designer behind Maria’s Story✨
It’s amazing to hear how she worked with the team - including our PPI members to develop graphics that are simple, clear & consistent.
#InclusiveDesign #CoProduction
DECODE researcher @alidrewett on developing visual literacy: introducing the 7 Rules, co-created with our PPI team, giving practical considerations such as using pictures and simple terms.
As Ali said: “Lived experience is crucial to research”💡
#CoProduction #AccessibleComms
