Autosomale Dominante Opticus Atrofie - De Cure ADOA Foundation is opgericht voor en door patiënten. Onderzoek, bekendheid, patiëntenorganisatie en focal point.

Joined February 2020
Dutch patient organisation, but we are here for patients all over the world! In English: adoa.eu/en
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Cure ADOA Foundation retweeted
Christina Eckmann-Hansen, Toke Bek, Birgit Sander & Michael Larsen @Rigshospitalet investigate visual function and inner retinal structure in relation to birth factors in autosomal dominant optic atrophy. doi.org/10.1167/iovs.64.10.3…
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Cure ADOA Foundation retweeted
Neurophth Therapeutics announced the Australian Therapeutic Goods Administration (TGA) has registered and approved its candidate drug, NFS-05, for clinical trials targeting autosomal dominant optic atrophy (ADOA). Read more: ow.ly/Ryiu50PJhFO
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Cure ADOA Foundation retweeted
Aanstaande zaterdag 18 november ben ik te gast bij de jubileumdag van de @CureADOA Foundation in Doorn en signeer ik Juice in samenwerking met de Readshop.
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Cure ADOA Foundation retweeted
To commemorate the 5th Anniversary of the Cure ADOA Foundation, we joined the ADOA community to discuss research & listen to perspectives about living with the disease. #ADOA is a rare disease that causes progressive and irreversible vision loss in both eyes. @cureADOA
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Op de dag van de liefde vragen we een liefdevolle donatie! 🙏💙 Dit kan via dit tikkie "Hart voor ADOA 2023" tikkie.me/pay/CureADOA/to4Mw…
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Cure ADOA Foundation retweeted
🔬 Researchers alongside Dr. Jeffrey L. Goldberg of @Stanford, developed a rapid protocol for directly induced retinal ganglion cell differentiation from human stem cells, leveraging overexpression of Neurogenin-2. Learn more: 📖 bit.ly/3hQ8JGC
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Dominant Optic Atrophy is an autosomal dominant disease of the mitochondria causing slowly progressive mild to severe vision loss during childhood. courtesy @EyeFlyMD #V_ophthalmology #VOPHA #Ophthalmology #AAO #Optometry #eyehealth #eyeacuity
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Dr. Tracy Nguyen gave a 🤩 talk on our new🐒 of autosomal dominant optic atrophy at the #acvo annual meeting! Thank you to @ucdavisvetmed STAR program for supporting her work! #veterinary #Ophthalmology
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Onze eerste lotgenotendag van 2023 staat al gepland! adoa.eu/nieuws/lotgenotendag
Cure ADOA Foundation retweeted
Ophthalmology Eponym of the Week: Kjer Type (Dominant) Optic Atrophy is an autosomal dominant disease of the mitochondria causing slowly progressive mild to severe vision loss during childhood. #ophthalmology #ophthotwitter #medtwitter
Prachtig artikel over Kirsten en hoe ze omgaat met ADOA.
Stadjer Kirsten Smit (22) vertelt over de oogziekte ADOA in de documentaire WAZIG van influencer @ninawarink. "Ik ervaar nu een stukje begrip en respect waar ik niet per se om vroeg, maar wat wel heel fijn is om te merken.” @CureADOA sikkom.nl/stadjer-kirsten-22…
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Bijna niet te bevatten zoveel aandacht en positieve reacties we de afgelopen paar dagen hebben gekregen. Overweldigend! En de nodige donaties ook! Fantastisch! Alle info en de linkjes om te doneren staan in dit artikel op onze website. 🙏💙 adoa.eu/nieuws/de-premiere-v…
Nina Warink maakt indrukwekkende documentaire ‘Wazig – Leven met ADOA’ adoa.eu/nieuws/wazig-leven-m…
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Cure ADOA Foundation retweeted
$STOK Stoke Therapeutics Enrolls First Patient in a Natural History Study of People Living with Autosomal Dominant Optic Atrophy (ADOA) finance.yahoo.com/news/stoke… – at Los Angeles, CA
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Cure ADOA Foundation retweeted
80% of people with Autosomal Dominant Optic Atrophy (ADOA) are symptomatic by age 10. Learn more about this disease that runs in families here: stoketherapeutics.com/wp-con…. For additional resources, check out @CureADOA and @adoaa_lindsey. #ChildrensEyeHealthAndSafetyMonth
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