Pediatrician and @FamilyHeartFdn Board member with a Fhxof Lp(a). I spend my days translating medical jargon for kids; just trying to do the same for Lp(a)!
Joined March 2022
- Tweets129
- Following21
- Followers40
- Likes194
Pinned Tweet
I hope today helps more people #KnowLpa. There is an urgency here. In honor of my sister Catherine I will continue to shout about #LpaAwareness from the mountain tops! Thanks for the platform #FamilyHeartFoundation
When Dr. Sperling, new CMO of @FamilyHeartFdn called @KAWilemon his “hero” all I could think was… same!
Thank you for carrying the torch for patient with FH and high Lp(a) with such grace and strength. If you keep shining your light so brightly we all may find our way home ❤️
Well there it is! #knowFH
Courtney Riley MD retweeted
A3: Lowering LDL-C has a big impact on reducing cardiovascular disease risk over the life course. For every 40 mg/dL reduction in LDL that is maintained for about 5 years, a person’s risk of heart disease or events falls by 20% #KnowFH
youtu.be/co76EejedSY
Courtney Riley MD retweeted
A5 Too many believe the fallacy that lowering plasma cholesterol too much impairs its delivery to tissues which require it for many reasons. The truth is all cells in all tissues (including the brain) synthesize all of the cholesterol they require in a multistep process do not depend on lipoprotein (LDL)-mediated delivery. The cellular biochemical steps of cholesterol are depicted and noted is that cells have TWO synthesis pathways which ensure cholesterol synthesis is never deficient. . #KnowFH @nationallipid @society_Eas @escardio @atherosociety @fhpatienteu
The LEAD Pediatric Cholesterol Screening group is bringing general pediatricians and pediatric cardiologists together TODAY to help try to answer this very question. The AAP guidelines are clear and not new… let’s make it easy to follow them. #knowFH
Time is such an important variable in prevention of genetic heart disease! With LDL management it’s not only how low, but how long! #KnowFH early because #FHCantWait
A3: Individuals with FH who find and treat the disorder early can reduce their risk of heart disease by about 80%. Adults should begin therapy immediately. #KnowFH #FHCantWait #Prevention
nejm.org/doi/full/10.1056/NE…
Courtney Riley MD retweeted
Happy #FHAwarenessDay!!
Looking forward to participating in the @FamilyHeartFdn Tweet-a-thon at 10am ET today! Join us!!
#KnowFH
#FHCantWait
familyheart.org/fh-awareness…
@SethJBaumMD @joshuawknowles @AllisonJamison2 @CourtRileyMD @SuzyKaye @Drlipid @lipiddoc
Aditi was told she was too young and fit to worry about her high cholesterol. And then she had a stroke. Watch her whole story to finding out she has FH: youtu.be/hTumlWXENx8
#KnowFH #StrokeMonth
Crazy to think this article was written in 2014! The time is past due to #KnowLpa
Thankful for your decades of work, @Drlipid
Courtney Riley MD retweeted
Do you know your Lp(a) level? In honor of Lp(a) Awareness Day on March 24, we are offering Lp(a) and LDL tests while supplies last! Get yours now:
Courtney Riley MD retweeted
There is great hope that new therapies in late stage clinical trials will be HIGHLY affective in reducing Lp(a) AND the risk of heart disease. If you have high Lp(a) and heart disease there may be a clinical trial for you! #KnowLpa
This event was so inspiring! I an excited about the work ahead
❤️💪 #knowlpa
At our #FamilyHeartSummit23 we convened 250+ people to “look through a wider lens” & discuss practical ways to bridging the gaps of a broken healthcare system.
Thank you to our sponsors @Amgen, @Novartis, @Regeneron, @VerveTX, @AmrytPharma, Kaneka, and Family Heart Partners!
I’m here to help spread exactly this message!
Pretty important read especially for the cholesterol deniers and double especially for those deniers with children. @TheFHFoundation @nationallipid @society_eas @fhpatienteurope
Courtney Riley MD retweeted
👏👏👏
@kcferdmd @grsoffer @CBallantyneMD @EugeniaGianos @AllisonJamison2 @CourtRileyMD @staceylane101 @KAWilemon @DrMarthaGulati @ErinMichos @dan_soffer @Drlipid @NLAWIL @lipiddoc @NHLBI_Translate @khurramn1 @ycommodore @dramitkhera @MHealthTeam @SethJBaumMD @DrMichaelShapir
#SaveTheDate
The @TheFHFoundation 2024 Global Summit will be in Dallas, Sept 22-24, 2024. Mark your 📆!!
And 🙏🏻🙏🏻 to all of our supporters for the 2023 Summit - @Regeneron @Amgen @Novartis @VerveTx @AmrytPharma & Kaneka!
@KAWilemon @joshuawknowles @FamilyHeartCMO @dramitkhera
Congratulations @KAWilemon and @TheFHFoundation on a successful #FamilyHeartSummit23 !!
What an honor to be among both international leaders AND advocates all working to control the narrative and drive change! #knowfh #knowlpa
Courtney Riley MD retweeted
#FamilyHeartSummit23
Leadership Roundtable kicking off! The @TheFHFoundation is thrilled to welcome @Amgen CEO Bob Bradway and @RonAdner to the panel.
“This is a national tragedy” - the current under treatment of high risk patients.
#KnowFH
#KnowLpa
Courtney Riley MD retweeted
Thank you @TheFHFoundation for the opportunity to advocate for change. All for the love of Catherine. #FamilyHeartSummit23
This was such a powerful moment to have all of these global leaders in one line! We can make a change. We ARE making a change! #knowlpa #knowfh
#FamilyHeartSummit23
@grsoffer kicking off Global Roundtable:
What has worked?
🇨🇦Guidelines
🇨🇦 🇯🇵 Universal screening for Lp(a)
🇪🇺Risk calculator incorporating Lp(a)
🇯🇵 National registry
🇮🇶Awareness and lipid clinics
@TheFHFoundation
@KAWilemon
#KnowFH
#KnowLpa
Courtney Riley MD retweeted
#FamilyHeartSummit23
🙏🏻🙏🏻 @AllisonJamison2 and @CourtRileyMD for moderating the @TheFHFoundation Community in Action session.
Incredibly powerful stories on the devastating impact of FH and Lp(a) on families.
@KAWilemon @mackenzieames
#KnowFH
#KnowLpa
Children with a family history of early heart disease should have their lipids screened at age 2 per the AAP so they can #knowFH ASAP
#FHAwarenessDay
High LDL- C from birth = FH and the need for life-long proactive care. Great representation of the holistic approach needed to address familial hypercholesterolemia from @GeisingerRsrch @LaneyJonesRx #KnowFH #SaveLives @TheFHFoundation
