Sharing news & views of the #FND community. Carer for FND, (Fibro, CP, POTS, CRPS) sufferer, wanting to help share info & experience. Non medical professional.

England, United Kingdom
Joined April 2021
FNDConnect retweeted
A functional seizure is still a seizure. Seizures in Epilepsy involve abnormal electrical activity in the brain. Seizures in #FND involve changes in how brain networks function together. Different mechanisms. Same reality. Both are real seizures.
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FNDConnect retweeted
Scamvougeras and Castle express the view that FND should be framed ONLY in psychiatric terms in a new article @CogNPsychiatry zurl.co/pSx1u My reply explains why I think this historical - and dualistic - approach is wrong: zurl.co/OAcPN
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New NHS England Neurology Service specification. ✅FND is one of seven core subspecialties ✅FND services MUST be provided in each specialised neurology centre. This is huge recognition of how common FND is in neurology - and unthinkable 20 yrs ago. 1/ england.nhs.uk/publication/s…
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A conceptual framework for Functional neurological disorder (FND), highlighting factors like predisposing vulnerabilities, precipitating events, comorbidities, and perpetuating mechanisms centered around brain function and prediction errors. thelancet.com/journals/laneu…
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Pleased to learn that this 2025 @braincomms article by Westlin et al is being featured in a @SecretaryINA & @global_gng journal club. Info below. Delineating network integration and segregation in the pathophysiology of functional neurological disorder academic.oup.com/braincomms/…
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📅FNDS is pleased to highlight the Placebo, Hypnosis, and Functional Disorders Conference 2026 (Nancy, France Oct 14-16) a meeting dedicated to advancing the understanding between mind, body, and society. Additional information on the conference website:phfd-conf.org/en
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FNDConnect retweeted
"Mark Hallett and the renaissance of functional neurological disorder" - a tribute to the man and a look back at the evolution of FND over the last three decades. zurl.co/hNvxy Thanks @JankovicJoseph for inviting this for a special issue of "Clinical Parkinsonism"
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FNDConnect retweeted
Congratulations Amanda !
Congratulations our @UCMovDis fellow, Dr. Amanda Lin on her new book on #FND. FND has been the central focus of her work since before residency. Link: a.co/d/09XOE4z9
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FNDConnect retweeted
These researchers from @KingsCollegeLon are looking for 200 people with FND to fill out online questionnaires. Please consider helping out.
Have you ever felt dismissed, unheard, or not taken seriously by a doctor? 🏥 At King’s College, we’re running a study on how patients experience healthcare 💊 If you live in the UK and have a long term condition, please help us at the link below ⬇️ tinyurl.com/4zzcd93u
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FNDConnect retweeted
This is a video that health professionals and some patients and families may find helpful to understand modern concepts around chronic nociplastic pain
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The 6th International Conference on Functional Neurological Disorder (@FNDSociety) has been [and continues to be] a smashing success. The latest clinical insights, cutting edge science, & cross talk with other areas of neuroscience & clinical interest all covered.
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Four posters put up and ready to go at the @FNDSociety Conference #Baltimore. All related to #Hypnosis. @EdinPublishing @TomPlender @BSCAH1 @RoySocMed @WilliamMcGeown @NIRSlearn
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FNDConnect retweeted
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FNDS conference is in full force. FND and women: surprisingly little research focus, despite the high prevalence.
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While in Washington, DC for @FNDSociety conference 2026, I had the chance to meet Amir Gandjbakhche, a global leader in fNIRS research. Amir kindly agreed to be hypnotised — and, because no good neuroscience opportunity should go unmeasured, we collected fNIRS data during #hypnosis. 🧠✨ Thanks to his fellow and students for the quick set up. My quest continues: developing objective tools to measure and monitor #hypnosis in real time. The goal is simple: reduce stigma, build clinical confidence, and help hypnosis move further into mainstream healthcare and especially for #FND Science, curiosity, and a little trance work in the DC. @EdinPublishing @NIRSlearn @BSCAH1 @Sec_BSCH @RoySocMed @WilliamMcGeown @TranceformM
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FUNCTIONAL NEUROLOGICAL DISORDER One of the most important diagnoses in neurology… is often missed because clinicians are looking too hard at the MRI and not hard enough at the EXAMINATION. A patient says: I cannot move my leg. But then: • Hoover sign appears • gait changes with distraction • tremor entrains • strength returns during automatic movement That is not nothing. That is a POSITIVE neurological pattern. Modern FND is no longer: “Diagnosis of exclusion.” It is a diagnosis of: ✅ inconsistency ✅ incongruence ✅ preserved automatic circuitry ✅ positive bedside signs The nervous system pathway exists. The brain is failing to ACCESS it normally. That single shift changes how you examine the patient. Hoover sign stops becoming a trick. It becomes a window into motor control. The patient CAN generate movement. But voluntary access becomes disrupted. And this is exactly why: • distraction may improve weakness • backward walking may normalize gait • tremor changes rhythm • functional seizures fluctuate dramatically FND sits at the intersection of: movement attention prediction emotion agency and motor control. The dangerous part? Patients are often harmed from BOTH sides. ⚠️ One clinician dismisses: Everything is psychological. ⚠️ Another escalates: benzodiazepines antiepileptics ICU admissions intubation Especially in functional seizures. Real expertise is knowing: when to stop escalating, without losing diagnostic vigilance. The best FND clinicians do 3 things well: 1️⃣ Rule out dangerous neurological disease carefully. 2️⃣ Rule IN FND positively. 3️⃣ Explain the diagnosis respectfully. Because the explanation itself becomes treatment. One sentence changes the entire consultation: 🧠 “Your nervous system pathways are still present. The problem is in how the brain is accessing control of them.” Not: “Nothing is wrong.” Modern FND management is not: “Reassure and discharge.” It is: • targeted physiotherapy • movement retraining • speech/swallow rehabilitation • psychiatric comorbidity management • nervous-system retraining FND is not anti-neurology. It IS neurology. And perhaps one of the purest examinations of how the brain converts intention into movement. #neurotwitter #Medtwitter #FND #Functionaldisorders
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The functional neurological disorder (FND) Special Interest Group of @anpadirect has compiled the 10 most influential works on FND published in #JNCN bit.ly/4d4Lbql
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We have just updated our functional sensory disorders checklist with this paper neurochecklists.com/explore/…
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FNDConnect retweeted
Just over 4 weeks left until the @FNDSociety 2026 Baltimore meeting! zurl.co/qqGFg If your budget can stretch, PLEASE consider booking the conference hotel. zurl.co/SDhZS Doing so will help make the meeting a financial success. Thank you!
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