Sharing news & views of the #FND community. Carer for FND, (Fibro, CP, POTS, CRPS) sufferer, wanting to help share info & experience. Non medical professional.
England, United Kingdom
Joined April 2021
- Tweets6.7K
- Following1.1K
- Followers2.6K
- Likes5K
Pinned Tweet
To avoid confusion, please be aware that this account has no connection to @fndconnect_uk which was formed later.
FNDConnect retweeted
Scamvougeras and Castle express the view that FND should be framed ONLY in psychiatric terms in a new article @CogNPsychiatry
zurl.co/pSx1u
My reply explains why I think this historical - and dualistic - approach is wrong: zurl.co/OAcPN
FNDConnect retweeted
New NHS England Neurology Service specification.
✅FND is one of seven core subspecialties
✅FND services MUST be provided in each specialised neurology centre.
This is huge recognition of how common FND is in neurology - and unthinkable 20 yrs ago. 1/
england.nhs.uk/publication/s…
FNDConnect retweeted
A conceptual framework for Functional neurological disorder (FND), highlighting factors like predisposing vulnerabilities, precipitating events, comorbidities, and perpetuating mechanisms centered around brain function and prediction errors.
thelancet.com/journals/laneu…
FNDConnect retweeted
Pleased to learn that this 2025 @braincomms article by Westlin et al is being featured in a @SecretaryINA & @global_gng journal club. Info below.
Delineating network integration and segregation in the pathophysiology of functional neurological disorder academic.oup.com/braincomms/…
I can’t believe my daughter has fractured a rib from a functional seizure.
Now for more memory loss episodes and heightened pain leading to more functional seizures.
#FNDaware
FNDConnect retweeted
📅FNDS is pleased to highlight the Placebo, Hypnosis, and Functional Disorders Conference 2026 (Nancy, France Oct 14-16) a meeting dedicated to advancing the understanding between mind, body, and society.
Additional information on the conference website:phfd-conf.org/en
FNDConnect retweeted
Outcomes and Cost-Effectiveness of an Interdisciplinary Clinic for Functional Neurologic Disorders | Neurology Clinical Practice. @NeurologyCP neurology.org/doi/10.1212/CP…
FNDConnect retweeted
"Mark Hallett and the renaissance of functional neurological disorder" - a tribute to the man and a look back at the evolution of FND over the last three decades.
zurl.co/hNvxy
Thanks @JankovicJoseph for inviting this for a special issue of "Clinical Parkinsonism"
FNDConnect retweeted
Congratulations Amanda !
Congratulations our @UCMovDis fellow, Dr. Amanda Lin on her new book on #FND.
FND has been the central focus of her work since before residency.
Link: a.co/d/09XOE4z9
FNDConnect retweeted
These researchers from @KingsCollegeLon are looking for 200 people with FND to fill out online questionnaires. Please consider helping out.
Have you ever felt dismissed, unheard, or not taken seriously by a doctor? 🏥
At King’s College, we’re running a study on how patients experience healthcare 💊
If you live in the UK and have a long term condition, please help us at the link below ⬇️
tinyurl.com/4zzcd93u
FNDConnect retweeted
This is a video that health professionals and some patients and families may find helpful to understand modern concepts around chronic nociplastic pain
A video on how to apply the understanding of predictive processing , threat systems to chronic pain 👉 youtu.be/ovMOmAbxbkQ?si=-pIK…
FNDConnect retweeted
The 6th International Conference on Functional Neurological Disorder (@FNDSociety) has been [and continues to be] a smashing success. The latest clinical insights, cutting edge science, & cross talk with other areas of neuroscience & clinical interest all covered.
FNDConnect retweeted
Four posters put up and ready to go at the @FNDSociety Conference #Baltimore. All related to #Hypnosis. @EdinPublishing @TomPlender @BSCAH1 @RoySocMed @WilliamMcGeown @NIRSlearn
FNDConnect retweeted
FNDS conference is in full force. FND and women: surprisingly little research focus, despite the high prevalence.
FNDConnect retweeted
While in Washington, DC for @FNDSociety conference 2026, I had the chance to meet Amir Gandjbakhche, a global leader in fNIRS research.
Amir kindly agreed to be hypnotised — and, because no good neuroscience opportunity should go unmeasured, we collected fNIRS data during #hypnosis. 🧠✨
Thanks to his fellow and students for the quick set up.
My quest continues: developing objective tools to measure and monitor #hypnosis in real time.
The goal is simple: reduce stigma, build clinical confidence, and help hypnosis move further into mainstream healthcare and especially for #FND
Science, curiosity, and a little trance work in the DC.
@EdinPublishing @NIRSlearn @BSCAH1 @Sec_BSCH @RoySocMed @WilliamMcGeown @TranceformM
Woolston care home resident raises awareness of little understood condition warringtonguardian.co.uk/new…
#FNDaware
